+ Reply to Thread
Page 5 of 84 FirstFirst ... 345671555 ... LastLast
Results 41 to 50 of 833
  1. #41
    heeeeerekittykitty's Avatar
    heeeeerekittykitty is offline My babies, my cats ....ahhhh , bliss !!!
    Join Date
    Mar 2010
    Posts
    1,709
    Thanks
    316
    Thanked
    386
    Reviews
    0
    Achievements:Topaz Star - 500 posts

    Default Has anyone kept their edwards syndrome baby?

    Oh ally i have no experience in this but I couldn't pass this without replying , my heart broke reading your posts :-(

    Wishing you so much strength and love And I hope you can get as much support as you need to make your decision xxoo

  2. #42
    Join Date
    Apr 2012
    Posts
    90
    Thanks
    55
    Thanked
    16
    Reviews
    0

    Default Has anyone kept their edwards syndrome baby?

    Thinking of you & your family Ally & sending all my love.

    Take your time and whichever decision you make will be the one that is best for you & your family - there are no right or wrong decisions.

    xo

  3. #43
    LifeInShadesOfGrey's Avatar
    LifeInShadesOfGrey is offline Just a little bit silly :)
    Winner 2012 - Best Username
    Join Date
    Feb 2011
    Posts
    5,673
    Thanks
    2,053
    Thanked
    1,357
    Reviews
    34
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 posts

    Default Has anyone kept their edwards syndrome baby?

    I'm so sorry to hear that. Just do what is best for you all xxx

  4. #44
    Join Date
    Nov 2010
    Posts
    2,491
    Thanks
    3,579
    Thanked
    838
    Reviews
    0
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts
    trisomy.org has great resources including a lovely birth plan with really practical ideas written by a mum whose babies was diagnosed with full T18 during pregnancy.

    http://www.trisomy.org/birthing-plan-trisomy-18/

    Lots of love

  5. The Following User Says Thank You to Bubbles10 For This Useful Post:

    KaraB (12-01-2014)

  6. #45
    Join Date
    Jan 2013
    Posts
    81
    Thanks
    9
    Thanked
    16
    Reviews
    0

    Default Has anyone kept their edwards syndrome baby?

    Quote Originally Posted by Bubbles10 View Post
    trisomy.org has great resources including a lovely birth plan with really practical ideas written by a mum whose babies was diagnosed with full T18 during pregnancy.

    http://www.trisomy.org/birthing-plan-trisomy-18/

    Lots of love
    I just read that page ad bawled my eyes out. Extra hugs to you tonight ally x

  7. #46
    Join Date
    Mar 2011
    Posts
    186
    Thanks
    100
    Thanked
    138
    Reviews
    0

    Default Has anyone kept their edwards syndrome baby?

    So so sad for you Ally, sending big hugs n strength xxxx

  8. #47
    Myztik's Avatar
    Myztik is offline My April Fools baby
    Winner 2009- Biggest Post-Awards Whinger
    Winner 2010- Biggest Computer Nerd
    Join Date
    Jul 2006
    Posts
    30,329
    Thanks
    2,971
    Thanked
    1,567
    Reviews
    0
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 postsEmerald Star - 10,000 postsRuby Star - 15,000 postsDiamond Star - 20,000 posts

    Default Has anyone kept their edwards syndrome baby?

    I'm so sorry you are going through this xo

  9. #48
    Join Date
    Jul 2010
    Posts
    6,432
    Thanks
    5,466
    Thanked
    5,415
    Reviews
    0
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 posts

    Default Has anyone kept their edwards syndrome baby?

    I know every instinct in your body is screaming protect my baby, give it a chance. It's a horrible choice to make and both paths require so much strength.

    I can't tell you what to do, or even what I would do. But I think you should pretend its a friend whose in your situation and think about what you think she should do. Try to remove yourself and your feeling from the equation and make it a third person.

    Easier said than done, I know. Nobody will judge you what ever decision you make.

  10. #49
    Join Date
    Aug 2011
    Posts
    2,905
    Thanks
    969
    Thanked
    776
    Reviews
    4
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts

    Default Has anyone kept their edwards syndrome baby?

    Big hugs Ally x

  11. #50
    Join Date
    Jan 2013
    Posts
    10
    Thanks
    6
    Thanked
    11
    Reviews
    0
    Hi Ally

    A mum on another chat group directed me to your post here.
    I have 4 children and my youngest daughter is 13 months old and has trisomy 18 or Edwards Syndrome but she has the mosaic form.
    Our initial diagnosis came from our nuchal scan and blood test - the scan was perfect the nt thickness was 2cm which is great. She had a three vessel cord and nasal bone present. My blood work combined with my age gave a risk of 1 in 15 for Trisomy 18 (Edwards Syndrome). We had an amnio and our FISH results came back perfect! Ten days later our full result showed 8 out of the 15 cells cultured with the third copy of the 18th Chromosome. So a mosaic result.
    To cut a long story short our daughter was born in November 2011 at 38 weeks due to IUGR and was 3lb 14oz (1.7kg) and perfect! Everyone assumed it was a placental mosaicism. We stayed in hospital for 2 weeks due to my high blood pressure and her small size and she came home at 1.780 kg.
    At 6 months we had her blood tested and the result was 154 out of 200 cells showed the third copy of Chromosome 18 so 77% mosaic. She is perfect though still small (6.8 kg at 13 months old) and is sitting but not yet crawling. My son didnt walk til 18 months so I am not too worried! She breastfeeds and eats solids and sleeps well and is just gorgeous.
    Please pm me if you would like to chat and I would suggest having a look at Soft USA (Trisomy.org), Trisomy Advocacy Group, Hope for Trisomy and Living with Trisomy 13 (this has info on t18). Plus there are heaps of groups on facebook both private and open - Trisomy Families, Hope for Trisomy, Soft USA, Soft Australia - heaps!
    Please do not look at the Trisomy 18 Foundation website - that lady is not popular in the Trisomy community and really does not show a positive life with Edwards Syndrome I am sure that statistically the info may be correct but in the USA because of their health insurance and lack of medicare Trisomy 18 babies and children are denied life saving surgeries for heart conditions that are found in typically normal children who do get the surgery and often these babies are not given life saving procedures at birth such as oxygen etc.
    Sending you lots of love and strength
    Colleen xx

  12. The Following 9 Users Say Thank You to calpheepip4 For This Useful Post:

    coco168 (05-06-2013),Fox in Sox (08-01-2013),gilesy13 (06-04-2013),Glover (05-09-2013),Hokey Pokey (24-01-2013),KaraB (12-01-2014),LoveLivesHere (09-01-2013),Madame Mayhem (24-01-2013),MonsterMummy (08-01-2013)


 

Similar Threads

  1. Anyone had experience with Edwards Syndrome?
    By dncnllama in forum Pregnancy Tests & Help / Support with Results
    Replies: 4
    Last Post: 11-05-2013, 15:14
  2. Down Syndrome risk for 2nd baby
    By mum72 in forum Pregnancy Tests & Help / Support with Results
    Replies: 1
    Last Post: 02-08-2012, 10:31
  3. GERD baby jerking.... Sandifers syndrome or infantile spasms?????
    By bluejuice in forum Serious Health Issues
    Replies: 2
    Last Post: 01-06-2012, 01:46

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts

ADVERTISEMENT

ADVERTISEMENT

FEATURED SUPPORTER
Prams and StrollersLooking to buy a pram or stroller? :: Viewer reviews of prams :: Pram Buyers ...
FORUMS - chatting now ...
Fifth pregnancy lucky?Conception & Fertility General Chat
FetIVF
Sensational September 2020 TTCConception & Fertility General Chat
Obstetrician help in Adelaide?Pregnancy & Birth General Chat
Faint positive or evap linePregnancy Tests & Help / Support with Results

ADVERTISEMENT