DS is 5 weeks old. I received a call from the genetics counsellor at PMH today advising that DS needs to have further testing for CF as the Guthrie test came back positive. We have to go to the hospital tomorrow for a sweat test. We will have the results by the end of the day.
I am so overwhelmed right now. Stupid me - I googled CF and now I am totally freaked out.
Has anyone had their LO go through this? What was the sweat test like? Were the results positive? How did you cope?
+ Reply to Thread
Results 1 to 4 of 4
-
20-11-2012 00:05 #1
Senior Member
- Join Date
- Dec 2009
- Posts
- 238
- Thanks
- 161
- Thanked
- 136
- Reviews
- 0
Cystic fibrosis
-
20-11-2012 07:46 #2
Re: Cystic fibrosis
Bumping
-
20-11-2012 08:04 #3
Senior Member
- Join Date
- Feb 2010
- Posts
- 420
- Thanks
- 131
- Thanked
- 113
- Reviews
- 0
Cystic fibrosis
Hi, we had to have the sweat test, but our results were negative. The test itself is certainly nothing to worry about. It doesn't hurt. They put two electrodes on the leg to stimulate the sweat glands then strap a disc to the leg to collect the sweat. They leave the disc on for an hour. My little guy just ran around and played while we were waiting.
Google can be a horrible tool. I know a few people with cf leading very close to normal lives. It's hard to be very normal when you have meds and physio.
Good luck. If it is positive there are loads of support networks to help you through.
-
20-11-2012 08:25 #4
Sorry, I have no experience with this kind of thing but I just wanted to wish you luck for the test
Similar Threads
-
Cystic Fibrosis
By Katie030711 in forum Serious Health IssuesReplies: 8Last Post: 04-10-2012, 22:40
FEATURED SUPPORTER
LCF Fun Languages AustraliaFrench, Spanish, Mandarin, Italian & German lessons for children 0 - 12 years. Play-based and immersion language ...
BLOG POSTS
LATEST
A to Z of baby names inspired by Harry Potter5 easy ways to build your toddler’s vocabulary5 tips for planning the perfect baby showerPOPULAR
When can I start giving chores to my children?A guide to Parental Leave Pay in Australia – are you eligible?New baby nursery checklist – a guide to newborn essentials
FORUMS - chatting now ...
Magical MayConception & Fertility General Chat
Amazing AprilConception & Fertility General Chat
*spin off* Real Estate StoriesHouse & Gardens
Egg Donation Greece #10Egg Donation
IVF newbieIVF
Top 10 songsGames & fun stuff
The Word Association Game #24Games & fun stuff
Where do I buy cheap apparel/ clothing/ dress fabric online?Crafts and Hobbies
Baby girl name help!Pregnancy & Birth General Chat
REVIEWS