ADVERTISEMENT

+ Reply to Thread
Results 1 to 4 of 4
  1. #1
    Join Date
    Dec 2009
    Posts
    238
    Thanks
    161
    Thanked
    136
    Reviews
    0

    Default Cystic fibrosis

    DS is 5 weeks old. I received a call from the genetics counsellor at PMH today advising that DS needs to have further testing for CF as the Guthrie test came back positive. We have to go to the hospital tomorrow for a sweat test. We will have the results by the end of the day.

    I am so overwhelmed right now. Stupid me - I googled CF and now I am totally freaked out.

    Has anyone had their LO go through this? What was the sweat test like? Were the results positive? How did you cope?

  2. #2
    Join Date
    Jan 2009
    Posts
    2,819
    Thanks
    887
    Thanked
    583
    Reviews
    1
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts

    Default Re: Cystic fibrosis

    Bumping

  3. #3
    Join Date
    Feb 2010
    Posts
    420
    Thanks
    131
    Thanked
    113
    Reviews
    0

    Default Cystic fibrosis

    Hi, we had to have the sweat test, but our results were negative. The test itself is certainly nothing to worry about. It doesn't hurt. They put two electrodes on the leg to stimulate the sweat glands then strap a disc to the leg to collect the sweat. They leave the disc on for an hour. My little guy just ran around and played while we were waiting.

    Google can be a horrible tool. I know a few people with cf leading very close to normal lives. It's hard to be very normal when you have meds and physio.

    Good luck. If it is positive there are loads of support networks to help you through.

  4. #4
    Join Date
    Oct 2010
    Posts
    12,113
    Thanks
    4,024
    Thanked
    7,362
    Reviews
    2
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 postsEmerald Star - 10,000 posts
    Awards:
    100 Posts in a week
    Sorry, I have no experience with this kind of thing but I just wanted to wish you luck for the test


 

Similar Threads

  1. Cystic Fibrosis
    By Katie030711 in forum Serious Health Issues
    Replies: 8
    Last Post: 04-10-2012, 21:40

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts

ADVERTISEMENT

ADVERTISEMENT

FEATURED SUPPORTER
Pear Exercise Physiology Pregnancy & Women's HealthWe are Women's Health specialists and prescribe exercise to support changes in your body brought on by pregnancy, ...
REVIEWS
"Made bed time less anxious"
by Meld85
My Little Heart Whisbear - the Humming Bear reviews ›
"Wonderful natural Aussie made product!"
by Mrstwr
Baby U Goat Milk Moisturiser reviews ›
"Replaced good quality with cheap tight nappies"
by Kris
Coles Comfy Bots Nappies reviews ›

ADVERTISEMENT