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  1. #21
    heeeeerekittykitty's Avatar
    heeeeerekittykitty is offline My babies, my cats ....ahhhh , bliss !!!
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    Default Utterly devastated - looking for positive stories

    Happy2b3 thank you for your post and advice and I truly hope your right , I hope my son by far exceeds my expectations as at the moment I really am thinking worse case scenario about everything. I'm also very open to giving anything a try including alternative medicine.

    It wasn't me- that's great your son had an aide that must be an enormous comfort to you . Thank you for your pm . Xx

  2. #22
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    I'm sure your son will exceed so many of your expectations so often. I just wanted to add that many of the autistic children I've taught have been some of my most rewarding moments of teaching. I know lots of teachers who simply love working with their ASD kids, they bring something very special to a class. ASD school settings also provide specialist support and kids grow in leaps and bounds. Someone wrote something in this section about having a child with DS not long ago that really struck a chord with me about having kids with special needs, I try to find it and link it for you.

  3. #23
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    heeeeerekittykitty is offline My babies, my cats ....ahhhh , bliss !!!
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    Default Utterly devastated - looking for positive stories

    Thanks babyla for your insight . If you could find that link that would be great .

    I think the biggest thing for me is what if he never talks. How can he possibly lead a fulfilled happy life when he can't even speak :-( how can he make friends , find someone he loves and who loves him when he can't speak ? Will he see people talking and know hes different ? The thought of him never talking is just beyond devastating to me. Everything else I can handle but this one , my heart will just breaks for him. And knowing that I have years of waiting ahead of me to see if he WILL ever talk is just so overwhelming , the waiting is killing me.

    I know I'm just going through the initial shock and it will heh easier in time as I learn to accept it for what it is but for now my minds just a racing emotional mess.

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    I meant to ask if you had had a thorough hearing test done on your son? I read a story once about a child displaying certain aspect of autism and the parents had the hearing tests done and turns out the kid had enlarged adenoids and tonsils etc.. Poor kid never learnt to speak or communicate because of his problem.

    I had my sons ears tested and he was fine, I only need to whisper chocolate and he is at my side jn a flash. But you could look into that if not already.

    Hope you have a better day today xxxxxx

  5. #25
    heeeeerekittykitty's Avatar
    heeeeerekittykitty is offline My babies, my cats ....ahhhh , bliss !!!
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    Default Utterly devastated - looking for positive stories

    Quote Originally Posted by babynomad View Post
    I meant to ask if you had had a thorough hearing test done on your son? I read a story once about a child displaying certain aspect of autism and the parents had the hearing tests done and turns out the kid had enlarged adenoids and tonsils etc.. Poor kid never learnt to speak or communicate because of his problem.

    I had my sons ears tested and he was fine, I only need to whisper chocolate and he is at my side jn a flash. But you could look into that if not already.

    Hope you have a better day today xxxxxx
    Hi :-) yes I have had them checked once but I am booked in for them to be rechecked just to be 100% sure . I believe they are fine , As you said regarding your son and chocolate , there's a few things I could whisper or do at the end of the house that he would hear no matter how quiet , but I'm not a professional so to be extra cautious I'm getting them rechecked .

    Thx xxoo

  6. #26
    Nowhere's Avatar
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    HUGS, my daughter isnt autistic she has other types of SN ( long list), she goes to Special Ed school, at first i didnt want her to i tried main ****** it was a night mare ( DD needs are very very high) but then we got her into a high needs class, her class a few serverly autistic kids, a few kids with downs, and a couple of DP kids and DD ( cp, dyspraxi, sensory intergration disorder, jej dependant, metobolic disorder) her class is LOVELY we dont have the *****ing and fighting and bullying kids go through in the main ****** school, they all get along well and play together or along side depending on the strengths, we dont have the your not my friend today etc there ALL best mates its so nice to see, AND when they go into the play ground with the main ****** kids every one loves them everyone wants to push DDs chair or help another little girl on the swing, if Kenz gets out of her chair the other kids are so careful of her.

    Kid are not like they was when we was little they are nice to kids with Sn its the adults that are rude and uneducated but over time they come round as well.

    I know grown men and women that are autistic and carry on a perfectly regular life, autism yes ccant be cured but with the right therapy they can manage very very well.

    Once you get your diagnosis get onto the therapy ASAp you will get helping children with autism useit wisey get your son into what therapy they know will work best for him, DD does ABA therapy and it has helped her hugey, my nephew did it also and again helped him hugely all the kids in DDs class also do ABA therapy again all have made MASSIVE improvements with it

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    Hi there and ((hugs)), it's so crushing when your fears become reality, you have every right to mourn all the things that could have been. Please try not to dwell on them too long though, pick yourself up and get on with what has to be done to make your little guy the best that he can be.

    I'm not going to lie, it's going to be hard and there are going to be many times when you will question yourself and many tears along the way. A good proportion of those tears will be of pride. I've always found the good times ALWAYS make up for everything else.

    My oldest son is 23 now, he has an Intellectual disability, ADHD, social and emotional problems, auditory processing disorder, Schizophrenia (and other issues) and I'm still fighting to have him diagnosed with an ASD.

    School life was a nightmare for him because he was undiagnosed as a child (they thought it was only ADHD back then) and he struggled through main ******. Had he of been in a special ed school he would have done so well I believe.

    He is still a roller coaster for me, but as I said, the good times always outweigh the bad... and no one can make me smile and laugh like he does.

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    Default Utterly devastated - looking for positive stories

    I've pm-ed you some info that I hope helps

  9. #29
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    No judgement from me.
    My cousin has an autistic son and I think he didn't start talking until he was about 5. He's now about, um, 13 (they live in a different country so I don't get lots of details) and by all accounts is a bright boy who doesn't have too many issues. His passion is modelling plasticine and apparently is brilliant at it, to the point where he has even caught the attention of animators.
    I just wanted to post as a positive ASD story.

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    There's heaps of great advice & experiences in here

    I just also wanted to make sure that you take care of yourself - my daughter's first diagnosis was severe autism and a global development delay. Our second (and correct) diagnosis is a rare genetic disorder. It's TOUGH to here these things. (My daughter doesn't talk either and may never due to the disorder.)

    What's helped me enormously is spending time with other parents (mums especially) with Autistic kids and other special needs. Get in touch with services and people that you feel comfortable with and be as informed as you can about your options both for your son, your family and yourself.

    I've also seen a psychologist (bulk billed, through my GP) to help with some things - this might help you process all this info too

    There's this term called 'chronic sadness' which I totally relate to - you don't 'get over it', but you eventually find a way to be 'ok' and move forward bit by bit.

    PM me if you need xx


 

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