Kiwi - Welcome to the tread. Wishing you all the best for your coming cycle on the higher dosage of pred with Dr. S. I hope that this is THE ONE and it's not required to see Dr. M.
Festival - I've been looking forward to your update and wondering how you've been going. Sorry to hear your cycle is delayed but I tend to agree with your Dr. DHEA is only really affective after being on it for 3 months so considering you only have 1 month to go and you are putting everything into it it's worth waiting another few weeks that way there are no regrets! I know how frustrating the wait is but you are definately doing the right thing.
Scruffy - Welcome to the thread. Dr. Sack's Bondi protocol is prednisolone from day 1 and then increase it after ovulation. Dr. Matthias I've heard usually starts 3 weeks prior to the transfer. Wishing you the best for your FET and that the protocol you are currently on will do the trick for this one to stick and produce a BFP.
Earthpower - Hope you had a wonderful time in Vanuatu and that you are all revived to start your new journey with Dr. M. Wishing you all the very best.
Hi to all the other ladies.
AFM: My hysteroscopy showed a few adhesions that were removed. I definately have high NK cells (CD 57) shown as in the biopsy that Dr. M confirmed (but I already knew this with Dr. S's biopsy). I also have high nk cells in the blood (CD56). The next step is to work out which protocol I'll be on. Either IVIG and neupogen or IVIG & Humira. Dr. M is reluctand to prescribe Humira due to the nasty side affects but with all the research I've done Humira is THE drug to tackle those aggressive uterine nk cells. I'm trying to gather as much info as possible to understand a bit more about neupogen and if it's worth giving it a shot or moving straight to humira (if Dr. M will approve!!!). I'm in limbo at the moment and very confused!
Results 31 to 40 of 938
31-08-2012 21:56 #31
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01-09-2012 06:25 #32
High Natural Killer Cells
Just popping in to say hi to the newbies and of course to everyone else. I'm on my Hens weekend up the Hunter Valley so posting off my phone (awake way too early as a very late night!)
Everything is going well. 14 weeks today yay! I'll be using my last pessary tonight (yippee!!). Still on daily Clexane shots and weaned down to 25mg prednisolone. Plus the Cardiprin and megafol still.
I'm still singing Dr Ms praises. Without him... I'd still be on the ivf roller coaster. I'm glad he's taking the aggressive side with you ladies as I believe it'll end up with a BFP very soon! Can't wait to read them rolling in.
My wedding is in less than 2 weeks now... Eeeeep!!
Enjoy your weekend ladies Xx
01-09-2012 15:37 #33Junior Member
- Join Date
- Sep 2012
I am new to bub hub. I am currently on my 2nd IVF cycle. I was diagnosed with an auto-immune dissorder a couple of years ago. When I had my initial blood test to determine if I was ovulating, this revealed I had really high ANA levels. After seeing an immunologist, this was found to be my only symptom of the auto-immnue dissorder and he described the condition as like a cousin of Lupus.
However I don't fully understand the effects this has on my body personally, specifically the effects on my infertility. I am very happy with my fertility specialist, however he doesn't seem concerned about the immune condition. Whereas I am starting to feel like this is very significant contributor to my infertility. As I have had 2 laporoscopys with both showing everyhing was in good working order, my blood tests say im ovulating, my husband has good sperm count and ive produced a good number of eggs during my last cycle (12 eggs, 6 frozen embryos and 1 tranferred embryo). So I guess I'm just getting a little bit frustrated and want some more investigation into how my immune dissorder is affecting my fertiliting. After reading the above posts about Dr Matthias, it sounds like the right person to see for my concerns. Because many of the tests, etc that you all mention above I have never even heard of and it sounds like these are some things that both my specialists should be looking at.
Does anyone have any tips or advice on what tests I can request my Immunologist or fertility specialist to do when I go back and see them?
(I am also at day 7 after an embryo transfer, so there is still a chance I will be hearing positive news in a few days ) But I'm also at the stage where I am googling madly and looking or all sorts of answers to fill in the last few days of the dreaded wait. xx
Last edited by ParkVille; 01-09-2012 at 15:40. Reason: grammer
02-09-2012 22:39 #34
Hi ladies, I thought I might join you as we're starting our first cycle after being diagnosed with high nk cells and MTHFR. I keep thinking I've got a handle on what's going on, then read more and realise that I'm actually just REALLY confused, so please bear with me.
Today's cd1 for me, so I'll be booking on with my clinic tomorrow and receiving my instructions then. I do know that my fs is planning to have me start 5mg prednisolone 3x day from day 6. From what PPs have said this is too late to have an impact? Is that a usual starting dose, or is it low? I'm not sure what my nk levels are, but will ask for them tomorrow. I asked about aspirin at our appt, but was told that wasn't standard at Repromed. I'm leaning toward just telling them I'll be taking aspirin unless they can give me a reason not to! I'll be back tomorrow with more info.
All in all it feels good to be back on the wagon after months spent in limbo land. Feeling very good about this cycle
03-09-2012 06:41 #35Junior Member
- Join Date
- Aug 2012
I am 5.5 weeks, and feeling good too
I just wondered if you knew how long you are going to be on the clexane shots? My directions from the specialist say indefinitely, so wondered if this would be likely to be the whole pregnancy or not? (I am not due to see the specialist for a few weeks) Have you mastered a technique to stop bruising? my tummy is black and blue!
03-09-2012 12:53 #36
Hi everyone, good to see some new faces...I can now hardly keep up...
I was back from the holiday last week and it was divine! So happy we made time to do this before the rollercoaster begins...
Nat, thanks for checking in and so happy for you and how exciting the wedding is only two weeks away! Its all happening for you!
Helen, sorry to hear you are in limbo atm, I don't know the drug you mentioned (neupogen and humira) but hopefully it will be sorted and you can start soon. Seems the waiting game is more unbearable isn't it?
ParkVille, hope you get your BFP this month and don't have to worry about any tests at all. If you are diagnosed with an auto-immune dissorder, I would suggest you to check this out and at least know how much impact it has on your fertility. Based on Dr. Alan Beer's book (is your body baby-friendly?), autoimmune diseases will definately have a negative impact on fertility, but because there are so many different type of autoimmune disease, further investigation need to be done, such as b/t or boipsy will shed more light and determine to what degree and what the treatment plan is. I hope I didn't make you worried unneccessarily.
Also a bit update about my very 1st appt. with Dr. M. I showed him all my past test and he said high NK test result and positive ANA test (1:80 tilter) are some indication that my immune system needs to be treated. He ordered a set of local b/t (about 8 viral of blood) which I have just done after the appt. The b/t result will take about two weeks I think, then thenext step is to determine whether to have biopsy or not based on the result. Does anyone know what are the key factors to determine this? Im hoping that I don't have to do the boipsy and the result is clear enough for the treatment plan.
03-09-2012 13:01 #37
Festivegirl, Im so sorry to hear that your cycle is postponed. I know how much you want to get on with it and any delay is so disheartening. As much as I can see the Dr. Reid's rationale, its most annoying though you have to wean off pred and start again. I know wean-off is such a bugger of time! I have taken DHEA before as well, I hope you don't have much side effect. I hope it works for you! Hang in there!
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03-09-2012 14:52 #38
High Natural Killer Cells
Littleratbag - I'll be on the clexane indefinitely. Until 30+ weeks or so but probably more. I still get bruises, I ice the area first then jab the needle in straight and quick. They don't always bruise, usually 2 or 3 a week. I find that they sting heaps! Not looking forward to doing it when my belly is full of baby!
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03-09-2012 15:31 #39
High Natural Killer Cells
April - he'll go through everything. He was the one who suggested that I'd be able to fall pregnant naturally (cause that hadnt even crossed me mind). I just wanted to know of he could fix me!
04-09-2012 12:02 #40Member
- Join Date
- Aug 2011
Nat - I love getting your posts - thanks for the tips on clexane - I will be starting this in a few weeks and was getting a bit worried - I had heard its painful and lots of bruising! I will try as you suggest with ice and direction of the needle!
Helen - I am glad at least that you know what you are tackling with both 56 & 57. That is a big step forward. Congratulations on finally getting yourself to this point.
I really feel for you with this uncertainty hanging over you about the right drugs to take. This kind of thing can drive you mad. Hang in there. Keep asking Dr M questions. I found that an additional session really helped me to feel confident that all of my concerns were addressed and that I knew why he was recommending a particular course of action. Please let us know how you get on and what you find out. I am sending you good vibes.
Welcome to all the new folks! It is lovely to have you on this journey with us.
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