+ Reply to Thread
Results 1 to 2 of 2
  1. #1
    Join Date
    Oct 2011
    Location
    Brisbane
    Posts
    11
    Thanks
    0
    Thanked
    0
    Reviews
    0

    Default Epilepsy/ seizures

    My four month old daughter has been having seizures since 8 weeks. They still have no idea what's causing them. 3 medications have 'failed' and, although they are small, she still has around 15 per day. I'm finding regular support networks (child health nurse/ early intervention parenting service) unhelpful and irrelevant to our situation. She has also started on the ketogenic diet. Has anyone had experience with any of this? Where did you go for support?

  2. #2
    Nowhere's Avatar
    Nowhere is offline Winner 2007- Most Supportive Of Feeding Other-Than-Breast Award
    Winner 2010- Most Optimistic Poster Award
    Winner 2010- The Most Supportive Member Award
    Join Date
    Jan 2007
    Posts
    11,112
    Thanks
    365
    Thanked
    1,623
    Reviews
    0
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 postsEmerald Star - 10,000 posts
    hey
    My daughter has a seizure disorder its part of her over all metobolic issues, she is 6 years old now and is on 4 lots of seizure meds a day and still has absent seirues she will likely always ahve them but nothing prolonged now, she really mainly has her drop seizures now and her myclonic seizures whenshe is unwell, but unterestingly she had a heap the other night setting of ehr apnea alarms just cause she was over tired.

    It can be hard work getting a med combo that works and the mood changes with meds can really suck but you will get there in the end

    suport wise just meeting other mums at the hospital really xx


 

Similar Threads

  1. Any mums with epilepsy?
    By monnie24 in forum General Chat
    Replies: 16
    Last Post: 12-05-2014, 19:56
  2. Epilepsy in Children
    By lovelymum in forum General Chat
    Replies: 9
    Last Post: 11-08-2013, 23:11
  3. Seizures
    By chaddy83 in forum Serious Health Issues
    Replies: 1
    Last Post: 07-12-2012, 11:14

Tags for this Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
FEATURED SUPPORTER
Cots on BubhubLooking to buy a cot or bassinet? :: Cot safety checklist :: Local or online nursery ...
FORUMS - chatting now ...
Yummy MummiesMovies / Music / Books / TV Chat
pregnant and homesickIssues with Family Members
IVF Babies due August/Sept/Oct' 16 #4pregnancy and babies through IVF
Is an expensive OB worth the extra money?Pregnancy & Birth General Chat
Same Sex Parents TTC #5Same Sex Parents
REVIEWS
"Made bed time less anxious"
by Meld85
My Little Heart Whisbear - the Humming Bear reviews ›
"Wonderful natural Aussie made product!"
by Mrstwr
Baby U Goat Milk Moisturiser reviews ›
"Replaced good quality with cheap tight nappies"
by Kris
Coles Comfy Bots Nappies reviews ›