+ Reply to Thread
Results 1 to 3 of 3
  1. #1
    Join Date
    Oct 2007
    Posts
    132
    Thanks
    0
    Thanked
    0
    Reviews
    0

    Default Has Anyone Heard of Mildly Delayed Myelination

    Hi There,

    My DS has feeding problems - Tube Feed, Developmental Delays cannot walk or talk lots of babble, Reflux, Obstructive Sleep Apnoea was diagnosed with Noonan Syndrome but since then the Geneticist does not think that DS has Noonan Syndrome anymore and thinks DS has something Neurological going on and has referred us on to a Neurologist. DS has a MRI a few weeks ago and it revealed that he has Non Specific Mildly Delayed Myelination. The Neurologist wants to look at the MRI and present DS's case at a meeting of Pead & Genetic Radiologists.

    Looking forward to any replies.

    Kim

  2. #2
    Join Date
    Sep 2009
    Posts
    4,956
    Thanks
    666
    Thanked
    636
    Reviews
    7
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts
    I have never heard of it before until now. I had to google it to find out what it was. Seems to be a fair bit of uncertainty out there for parents with diagnosed children

    BubHub is usually a great source of info, so I hope you can get some replies of parents who have a child with a similar condition.

    Goodluck hun

  3. #3
    Join Date
    Jan 2009
    Location
    1234
    Posts
    2,821
    Thanks
    887
    Thanked
    583
    Reviews
    1
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts
    Bumping for you :-)

    ***Sent from my phone***

  4. The Following User Says Thank You to Happy2be3 For This Useful Post:

    Misschief  (21-07-2012)


 

Similar Threads

  1. Delayed Language
    By Ulysses in forum General Chat
    Replies: 26
    Last Post: 17-07-2012, 13:24
  2. Mildly echogenic bowel - anyone else had this on 20wk morph scan?
    By Taiyed in forum Pregnancy & Birth General Chat
    Replies: 11
    Last Post: 04-06-2012, 12:58
  3. Synarel and delayed AF
    By Renvind in forum IVF
    Replies: 7
    Last Post: 17-02-2012, 07:25

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
FEATURED SUPPORTER
The MAMA CentrePregnancy, birth & beyond care with your very own midwife. Home & hospital birth support, VBACs, antenatal & postnatal ...
FORUMS - chatting now ...
@Nattie84General Chat
Miracle March TTC and Testing ChatConception & Fertility General Chat
Same Sex Parents TTC #5Same Sex Parents
I think I'm pregnant and I'm freaking out!Pregnancy Tests & Help / Support with Results
Positive or negative? Clear blue or First ResponsePregnancy Tests & Help / Support with Results
HGC lelvels stressed please helpConception & Fertility General Chat
Largest bassinets on market?Pregnancy & Birth General Chat
REVIEWS
"Pigeon teats rule!"
by Alex
Pigeon PP Wide Neck reviews ›
"Wonderful natural Aussie made product!"
by Mrstwr
Baby U Goat Milk Moisturiser reviews ›
"Replaced good quality with cheap tight nappies"
by Kris
Coles Comfy Bots Nappies reviews ›