As for the 'new' neocate i haven't heard about any specific formula changes unless its a recent thing, i do know they changed the name and packaging around may/june for some of the formula's, but there wasn't any make up change as far as im aware. As far as the NAN issue goes this isn't the first time companies have changed the ingredients of formulas....usually with any changes babies experience some level of discomfort but not like the NAN issue. I think that's a unique case so i wouldn't worry too much
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26-08-2012 09:37 #81
07-09-2012 09:06 #82
Sigh. After running out of our Neocate a few weeks ago we managed to get into see his Paediatrician. Decided to try soy formula. It's not gone well for us, he's been severely constipated for nearly a week now - having a dozen screaming fits a day trying to get the poop out and every time he gets some out there's just more and more there.
I want him back on Neocate, goodness knows how long it'll take to get in to see the allergist for a script. Nobody selling any on Gumtree either
10-09-2012 09:29 #83
Can you call your paed Meggles and tell them the soy isn't working and ask for another Neocate script to tide you over til Allergist? Our paed could get us more provided we had Allergst appt organised.
We finally had our Allergist appt and she has confirmed stay off soy and dairy and gave us another 5 months scripts. We had skin prick tests and now need a blood test and appt to see GE for a gastrscopy. And she suspects gluten intolerance. Its a combination of scary and relief that we may get some answers.
10-09-2012 09:41 #84
And we've had no problems with the new Neocate. The labelling looks different, and its more concentrated so the scoops are slightly smaller but I think that's the only change and he's been fine with it thankfully, so looks like nothing to worry about.
10-09-2012 09:52 #85
I managed to track down an awesome Mama who lives a couple of hours away, and she had 7 tins that she no longer needed PLUS a script that she can fill periodically for us if need be.
I'm going to make an appointment with the allergist again and hopefully get a script from him so I don't have to be using someone elses!
10-09-2012 09:58 #86
That's fantastic! What a relief that must be.
10-09-2012 19:58 #87Member
- Join Date
- Jun 2012
Hi Meggles - your paed and / or GP can prescribe Neocate if he's failed soy and if he has an appointment to see an allergist. A copy of the letter from the PBAC is at the bottom of this page.
Print it off and take it to the doc with you. They should be able to give you the script.
So sorry this is happening to you. Am in the middle of writing the covering letter to the PBAC now objecting to the decision and attaching a mega-petition with comments.
Keep your fingers crossed.
10-09-2012 23:31 #88
Meggles, FYI for future reference if your bub has constipation again and nothing is working try Lactulose. It works really well! My bub has had constipation issues since starting solids and its the only thing that helped clear it up - now i make sure she has loads of fruit and vegies during the day and it seems to keep her fairly regular. Since starting on Soy tho she's gone back to constipation and her reflux has been aweful, altho for the first few days she seemed fine (the dr did say it would probably slowly creep up and not been an instant reaction). So im making another appointment to see him and organise a pepti-jnr script. Luckily i still have 2 Neocate repeats left so have plenty of time to organise it all. I'd prefer her to be on Neocate as i know it works but will be happy with whatever alternative im offered so long as she's happy and comfortable on it!
11-09-2012 02:09 #89
Neocate /elecare or any prescribed formula users
I second the lactulose. Great stuff x
11-09-2012 14:17 #90
Neocate /elecare or any prescribed formula users
Jo - did you get a good response for the petitions?
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