Oh wow, that gives me a bit of hope! Thank u! I'm going to print that and take it to the paed!
+ Reply to Thread
Results 41 to 50 of 95
20-07-2012 17:19 #41
20-07-2012 20:45 #42
I'm a bit confused - my DD would fall into the "severe intolerance" category as she presented with Failure to Thrive as well as reflux/colic. What does that mean for us? Isn't a paed a specialist?
Last edited by Cue; 20-07-2012 at 20:49.
20-07-2012 22:52 #43
It is a bit confusing.. And yes, that's what I thought too!
21-07-2012 20:34 #44Member
- Join Date
- Jun 2012
Neocate, Elecare and the PBS - CLARIFICATION
I agree this is a serious problem - but just to clarify.
Paeds and GPs still can prescribe Neocate and other amino-acid based formulas (like Elecare) in consultation with either a paed gastro, a paed allergist or an immunologist. That can take the form of a phone call or email between the GP or paed and the specialist and they then have to have an appointment to see the specialist. And they have made allowances for waiting lists to see specialists too.
I don't think they've taken into account the prevalence of cows milk protein intolerance (2% of the infant population under 1 yr) and soy intolerance (approx 1%). They have made the destinction between CMPI and reflux (although they often occur in the same kids they are different things).
I also don't think they've taken into account the very small numbers of paed gastros, paed allergists and immunologists in the country. In Perth the waiting list is now up to 2 yrs to see a paed gastro out of PMH.
So its definitely worth complaining.
We've published and article on it here...
And I've uploaded our letter to the PBAC and our responses here as well. Print off the response from the PBAC and take it to your GP or paed appt so they know what they're allowed to do.
Hope this helps.
Reflux Infants Support Association Inc
PS if the attachments aren't usable through this forum, email me at firstname.lastname@example.org and I'll email them through.
20120516 PBAC response pg 1.jpg20120516 PBAC response re amino-acid formulas.jpg20120417 Hill re amino acid based forumla pg 1.jpg20120417 Hill re amino acid based formula pg2.jpg
The Following User Says Thank You to JoMatthews For This Useful Post:
22-07-2012 07:28 #45
Thanks so much for your help! I will view the attachments on my comouter later as im on my phone.
23-07-2012 11:53 #46
I just got back from our Paed appointment, he hadn't heard about the change. He decided to try to get the script approved anyway, when they asked if it was in consultation with a gastro/immunologist/allergist he just said yes and gave his own name. They approved it and we have a script
24-07-2012 17:53 #47
That's great news!
26-07-2012 08:23 #48
Hi guys - I'm sorry to crash your thread but a QLD newspaper is doing a story on these changes and how they affect parents. they are looking for a QLD parent to talk to about the issue. If you'd like to chat with the journo her name is Jackie and her details are sinnertonj @ qnp.newsltd.com.au (without the spaces) or 07 3666 6346.
26-07-2012 11:50 #49
Bummer! I'm in NSW.
26-07-2012 11:55 #50Senior Member
- Join Date
- Jan 2010
I just managed to wean DS off neocate advance last week... So glad I did now with all this happening!
By BH-editor in forum Research HelpReplies: 3Last Post: 30-07-2012, 11:06
By Astridr33 in forum Colic Reflux WindReplies: 0Last Post: 04-05-2012, 14:06
By Witchypoo in forum General Parenting Tips, Advice & ChatReplies: 2Last Post: 12-02-2012, 18:39
Maternity ClothesLooking to buy maternity clothes? :: Check the bubhub directory of local & online maternity clothes shops :: Find ...
LATESTWhy it is OK for your child to be differentWhat is a blessing way? How is it different to a baby shower?7 ways to break the ‘mumnotony’ at home
POPULARWhen can I start giving chores to my children?New baby nursery checklist – a guide to newborn essentialsWhat to pack for labour and hospital – a checklist
FORUMS - chatting now ...
Husband VentFamily & Friends
Trying from monthsNon-IVF fertility assistance
The Not So Serious Vent Thread #7General Chat
Egg Donation in South Africa #14Egg Donation
I am... #20General Chat
Pregnancy test recall!!!Conception & Fertility General Chat
IVF babies due Sep/Oct/Nov 2017pregnancy and babies through IVF