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19-07-2012 18:38 #31
19-07-2012 18:57 #32
im not arguing hon, I just would hate to see a desperate mum try something with out checking with a pead, and yes it may be stupid but you never know.
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19-07-2012 19:21 #33
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Bunny Lover (19-07-2012)
19-07-2012 19:29 #34
Just discovered this a week ago - we've run out of repeats and have about 6 tins left. We're seeing DDs paed on Monday so I thought we'd be ok. I'm a bit worried!!!
20-07-2012 01:35 #35
Surely they would be able to phone someone or do something, they're not going to let our babies starve!
20-07-2012 01:35 #36
I hope! Cue, let us know how you go x
20-07-2012 14:42 #37
I will let you know - I'm hoping her paed knows a paediatric GE that can help.
It was so horrible when DD was sick before going on Neocate. Luckily she eats a lot of solids now but she still can't have dairy or soy, at least not until we've gone through the process of challenging the intolerances.
Was any consideration given to the poor kids relying on this formula when they made this decision? Our prescriptions are registered, couldn't they have sent some info/warning out in advance to make sure we had time to find a GE? So annoyed, I might write to my local member...
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Bunny Lover (20-07-2012)
20-07-2012 17:46 #38
Here's a link to the official information, guys -
It seems a bit vague as to whether it's an absolute REQUIREMENT for babies to see a specialist (Gastro/Immuno/Allergist) or not, but I'll have to contact my paed and ask.
Grr, how annoying - only in April they took standard Neocate off the PBS list and we had to frantically try and figure out how to feed my baby when I only had 1 bottle left for the day :\
20-07-2012 17:47 #39
Standard neonate is no longer made.
20-07-2012 18:14 #40
thanks for putting thelink up, it makes more sense now, ntohingis going to chance with my monkey im glad to see.
I wish i had of known you was looking for neocate a friend of mine ha bucket loads fo of load that her son was nt tolerating and she ended up giving it back to the local pharmacy to send over to poor countries
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