What an amazing little girl!!! I think that with a mother like you in her corner, she will be able to live a full and very happy life. Her diagnosis doesn't need to define her and it sounds like she's developing in leaps and bounds despite everything life has thrown at her.
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24-01-2015 10:12 #21
24-01-2015 10:24 #22Senior Member
- Join Date
- Dec 2013
You and your daughter are both amazing! She sounds like she is doing wonderfully!
24-01-2015 11:04 #23
Forgot to add pics! Oops
ImageUploadedByThe Bub Hub1422061294.112132.jpg
What CP does to her muscles. She walks around like this without AfOs on!
ImageUploadedByThe Bub Hub1422061346.984698.jpg
ImageUploadedByThe Bub Hub1422061391.443774.jpg
Such a happy not so little anymore girl
ImageUploadedByThe Bub Hub1422061475.518606.jpg
24-01-2015 11:29 #24
She's adorable! Love her afos. My DD wears them too.
24-01-2015 11:30 #25
Well done for having so much strength. Your daughter is amazing. I am a mum of a premmie as well and we are only just beginning our journey with lots of doctors appointments. You have given me the courage to be brave and strong for my little man. Well done to you both.
24-01-2015 11:34 #26
Congratulations on the birth of your little man! Hope the appointments are a breeze to get through for you.
The two favourite quotes I live by are...
"You don't know how strong you are, until being strong is your only choice"
"No one ever said it would be easy, they only promised it will be worth it"
Hope these quotes inspire you further, they were a great strength to me, and still are!
24-01-2015 13:14 #27
Oh, she's absolutely beautiful!!! How is she developmentally now aside from the walking on toes? Are there other signs of CP?
24-01-2015 13:24 #28
She has delays with gross motor skills and her balance is awful. She needs assistance climbing stairs etc and has lots of falls.
She also shows other signs of CP. The main signs for us were :
- uneasy on flat surfaces frequent falls
- her hips are clicky - showed on an X-ray her hip is slightly displaced (we just need to improve this with lots of weight baring exercises) so we now see hip surveillance clinic too!
- massive constipation issues which we are still working through.
- pelvic instability
- she gets tired really really easily. Eg the other day she climbed stairs at a shopping centre (she insisted) with my help and she was so tired she could barely move for the rest of the day... That night she had lots of pain in her muscles.
11-02-2015 13:15 #29
What an amazing story, I bawled my eyes out reading it. Your little girl is SO beautiful!!!!
I am currently starting a study on maternal stress in parents of babies born very pre-term, so I just wanted to let you know that there is lots of research being done into ways to better support and assist mamas who face similar challenges to you xx
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