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  1. #21
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    What an amazing little girl!!! I think that with a mother like you in her corner, she will be able to live a full and very happy life. Her diagnosis doesn't need to define her and it sounds like she's developing in leaps and bounds despite everything life has thrown at her.

  2. #22
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    You and your daughter are both amazing! She sounds like she is doing wonderfully!

  3. #23
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    Forgot to add pics! Oops

    ImageUploadedByThe Bub Hub1422061294.112132.jpg
    What CP does to her muscles. She walks around like this without AfOs on!

    ImageUploadedByThe Bub Hub1422061346.984698.jpg
    Her AFOs!

    ImageUploadedByThe Bub Hub1422061391.443774.jpg
    Such a happy not so little anymore girl

    ImageUploadedByThe Bub Hub1422061475.518606.jpg

  4. The Following 5 Users Say Thank You to LysnDan For This Useful Post:

    Apple iPhart6  (24-01-2015),Carpe diem 2013  (24-01-2015),New Hope  (24-01-2015),PomPoms  (24-01-2015),Sookie Stackedhouse  (24-01-2015)

  5. #24
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    She's adorable! Love her afos. My DD wears them too.

  6. #25
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    Well done for having so much strength. Your daughter is amazing. I am a mum of a premmie as well and we are only just beginning our journey with lots of doctors appointments. You have given me the courage to be brave and strong for my little man. Well done to you both.

  7. #26
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    Quote Originally Posted by New Hope View Post
    Well done for having so much strength. Your daughter is amazing. I am a mum of a premmie as well and we are only just beginning our journey with lots of doctors appointments. You have given me the courage to be brave and strong for my little man. Well done to you both.
    Thank you.
    Congratulations on the birth of your little man! Hope the appointments are a breeze to get through for you.

    The two favourite quotes I live by are...

    "You don't know how strong you are, until being strong is your only choice"

    And

    "No one ever said it would be easy, they only promised it will be worth it"

    Hope these quotes inspire you further, they were a great strength to me, and still are!

  8. The Following 2 Users Say Thank You to LysnDan For This Useful Post:

    Apple iPhart6  (24-01-2015),New Hope  (24-01-2015)

  9. #27
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    Oh, she's absolutely beautiful!!! How is she developmentally now aside from the walking on toes? Are there other signs of CP?

  10. #28
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    Quote Originally Posted by Apple iPhart6 View Post
    Oh, she's absolutely beautiful!!! How is she developmentally now aside from the walking on toes? Are there other signs of CP?
    Thankyou @Apple iPhart6
    She has delays with gross motor skills and her balance is awful. She needs assistance climbing stairs etc and has lots of falls.

    She also shows other signs of CP. The main signs for us were :

    -Tiptoe walking
    - uneasy on flat surfaces frequent falls
    - her hips are clicky - showed on an X-ray her hip is slightly displaced (we just need to improve this with lots of weight baring exercises) so we now see hip surveillance clinic too!
    - massive constipation issues which we are still working through.
    - pelvic instability
    - she gets tired really really easily. Eg the other day she climbed stairs at a shopping centre (she insisted) with my help and she was so tired she could barely move for the rest of the day... That night she had lots of pain in her muscles.

  11. #29
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    What an amazing story, I bawled my eyes out reading it. Your little girl is SO beautiful!!!!

    I am currently starting a study on maternal stress in parents of babies born very pre-term, so I just wanted to let you know that there is lots of research being done into ways to better support and assist mamas who face similar challenges to you xx


 

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