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  1. #31
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    Hi Cuddles,

    Sounds like you're getting some good advice here.

    For a few of you, its worth knowing that alot of these kids will still be constipated even if they're still pooing. Often if its really liquidy poo, they've getting overflow diahhorea - ie there are harder chunks stuck in the bowel and all that's getting through is the liquid. You need a doc to feel the tum and work out if they're still full or not. I know mine was pooing like a champion (with pain & wind etc) but when the paed gastro examined her he said that she was still chockers (and had an elongated and kinked bowel - but I digress). Put her on a laxative and the amount that came out of her was truly horrific. But it settled down and so did she.

    On the subject of wind and painful pooing associated with CMPI (cows milk protein intolerance - its about protein intolerance not lactose - lactose is sugar and babies don't usually have issues with it, if they're going to develop them, til much later). About 2% of bubs are CMPI and about half of those are also soy intolerant.

    You can buy pepti jnr and neocate over the counter - they're just expensive. Much cheaper on script (but hard to get on script because govt is reticent to subsidise them - paeds have to be in consultation with an allergist or paed gastro over your child to prescribe it - Neocate & Elecare, not Pepti Jnr). Pepti Jnr isn't broken down as much as neocate. Both are worth trying pre-appt with paed to be able to speak to the results. Its hard to get them to take Neocate coz its revolting. Add some gripewater or vanilla essence at the beginning to void the taste a bit.

    That said, breast is best for these bubs. I had useless supply and my bubba was too small to suck properly so I gave it away (probably too early) but I've since learned that they break down breast milk so much easier than formula or any type. But it means a strict elminiation diet as others have outlined here.

    For more chat on this:
    https://www.facebook.com/Reflux.Infa...ssociation.Inc
    www.reflux.org.au

    Great books for your info:
    Reflux Reality (Australian based, great advice by reg nurse who had 3 very severe reflux and also suffers with it herself)
    Colic Solved (by Texan paed gastro)

    Hope this helps

    Jo Matthews
    President
    Reflux Infants Support Association

  2. #32
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    Jo does pepti jnr taste better than neocate? And is it more broken down than Nan HA Gold (which is what I'm currently using).

    Ta!

  3. #33
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    Sorry two more questions if anyone knows...

    1. How is Zantac administered? Is it the same as losec or is it a liquid? Why would one be prescribed over another?

    2. DD won't sleep past 1 sleep cycle since Wednesday lunchtime (night and day). In the day she'll scream when she wakes up and won't settle in her basinette with me rocking or patting her but will sleep if I hold her. Would this be because of her reflux and wind or a behavioural thing (is she having a wonder week - she's 16 weeks tomorrow).
    I don't want to set up a sleep association from holding her every time she wakes.

  4. #34
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    Quote Originally Posted by CuddlesAwait View Post
    Sorry two more questions if anyone knows...

    1. How is Zantac administered? Is it the same as losec or is it a liquid? Why would one be prescribed over another?

    2. DD won't sleep past 1 sleep cycle since Wednesday lunchtime (night and day). In the day she'll scream when she wakes up and won't settle in her basinette with me rocking or patting her but will sleep if I hold her. Would this be because of her reflux and wind or a behavioural thing (is she having a wonder week - she's 16 weeks tomorrow).
    I don't want to set up a sleep association from holding her every time she wakes.
    Zantac is a liquid. My babies have been prescribed both. Losec reduces the amount of acid the stomach produces and Zantac neutralizes it.

    As far as the sleeping goes- if she's happy to sleep upright against you, it could be the reflux...

  5. #35
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    Nope, she's flat in my arms.

    I wonder if Zantac can be given alone. DD still spits out most of the Losec.

  6. #36
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    I recently read a post on bubhub in which the poster suggested 'BabyBiotic'.

    Here is the link to the thread:

    http://www.bubhub.com.au/community/f...ic-Wind-issues

  7. #37
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    Hi all,

    Just an update on DD. We got in early to see the paed today and I feel so much better now!

    We are checking a few things

    1. Now giving Nexium for her reflux and 20 mgs a day instead of 5 of Losec - he couldn't believe how low her dose was!

    2. We started giving her lactose free formula and I cut dairy out of my diet (as I'm mix feeding - 1-2 breastfeeding in 24 hours, the rest formula) so he's said to continue on with that and to give up the breastfeeding (upon advice that's my ultimate goal) to see if it was a lactose intollerance.

    3. Take a urine sample from her to test for / rule out a urinary tract infection.

    4. Stop sleeping her in her basinette and slowly stop wrapping her and have her in her cot so she has more room and up on a lean at the head (which we do with her

    5. Once she is 4 months start her on some cereal (unsure what that is exactly or where to get it or how to feed it to her.

    So if she's purely on lactose free formula and on the new reflux drug, doesn't have a UTI she should fingers crossed start to feel better and hopefully sleep better.

    If there's still a problem we can re look at her symptoms and see if maybe its something else. He pretty much ruled out a milk protein allergy as she doesn't seem to have a rash anywhere other than her face.

    She's also really healthy otherwise. It was good to see him check her out fully and take our concerns seriously and have a few options to see what's really wrong with her and not just fob us off or leave us to let her 'grow out of it'

    I hope the new drugs work and I'm actually really excited about making the other changes (I've been hoping to start sleeping her unwrapped and in her own cot for ages now, so now is as good a time as any!)

    If anything I feel more relaxed about her sleep patterns too. Everything is interrelated and I can see a solution in sight!! Fingers crossed!!!

  8. #38
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    Hi Cuddles - sorry I've been off here for so long! I don't know about the taste of pepti jnr sorry. Neocate is foul. Nan HA Gold is cows milk based and definitely won't work as well as pepti jnr or neocate / elecare if your bubs is CMPI.

  9. #39
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    Just read your last post cuddles and wanted to check in.

    A couple of things - though facial rashes can be associated with CMPI, its more likely to be mucous or blood in the BMs. Lactose intolerance is extremely rare in babies this young - not impossible though but its a different ball game.

    Be careful with early introduction of solids. It sometimes works but can also make things worse.

    Solids (particularly something like rice cereal) can be a nightmare for refluxers (it was with mine). Here's why. If you give something akin to liquid concrete to a kid who already has a problem with moving things through the system, you'll get constipation and have more reflux. So the food that you give initially may be far more likely to come back up (because its more solid) but if it stays in the system longer and backs him up, the reflux will just get worse. So take care.

    Maybe try puree pear or something first? Pear's a pretty low allergen and will move through fine. And don't be in a hurry to introduce it. ;-)

    Hoping things have improved for you on the 20mg of Nexium.

    Cheers

    Jo

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    Quote Originally Posted by JoMatthews View Post
    Just read your last post cuddles and wanted to check in.

    A couple of things - though facial rashes can be associated with CMPI, its more likely to be mucous or blood in the BMs. Lactose intolerance is extremely rare in babies this young - not impossible though but its a different ball game.

    Be careful with early introduction of solids. It sometimes works but can also make things worse.

    Solids (particularly something like rice cereal) can be a nightmare for refluxers (it was with mine). Here's why. If you give something akin to liquid concrete to a kid who already has a problem with moving things through the system, you'll get constipation and have more reflux. So the food that you give initially may be far more likely to come back up (because its more solid) but if it stays in the system longer and backs him up, the reflux will just get worse. So take care.

    Maybe try puree pear or something first? Pear's a pretty low allergen and will move through fine. And don't be in a hurry to introduce it. ;-)

    Hoping things have improved for you on the 20mg of Nexium.

    Cheers

    Jo
    Hi Jo,

    The 20mg of Nexium has done wonders! She's no longer in pain.

    We went off the lactose free formula and she's on Karicare Aptamil Gold, but seems to be getting constipated on it.

    She's on 2 meals a day and for breakfast has a fruit mix puree (apple, pear, banana - sometimes a mix of all, sometimes on their own) then a veg mix puree for lunch (either sweet potato and carrot or spinach, pea and brocoli) and I want to introduce a 3rd meal as she seems to get upset when I eat my dinner and she's not eating anything as well as that the paediatrician said to introduce a 3rd meal at 5.5 months, which she now is.

    I rang the Karicare info line who suggested I try the HA Karicare which I'm willing to try if it helps her constipation and wind which seems to also have reappeared in the last week.

    Her skin is also getting quite dry I've noticed, not sure why that is.

    Jo, do you see any issue with making that change (new formula, and additional meal) reflux wise!?

    Thanks!



 

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