We are expecting our first child and are considering storing her cord blood and maybe cord tissue.
Would love to hear from anyone who has gone down this path or is considering it.
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24-04-2012 22:56 #1Member
- Join Date
- Feb 2012
Has anyone stored or is considering storing cord blood & cord tissue?
25-04-2012 00:18 #2
Yes we have and I would highly recommend it - we will do it for all our children. It's important that you fully educate yourself on the subject, there is a lot to know and the future for stem cell technology is very bright. I did a lot of research on the topic and was amazed just how many parents do it. America and Europe are streets ahead of the rest of the world...
At the end of the day you are making a decision for your unborn child and family. In my opinion it's much more important to spend money on this 'insurance' than a fancy pram and nursery etc.
Let me know if you want some websites to do some research on
Good luck x
25-04-2012 06:49 #3
I considered it and decided not to.
I figured if the child comes down with something early on then it's probably genetic so the cord blood will be similarly tainted and useless.
If it's something that can be fixed with gene therapy, then they can get fresh cells from bone marrow instead of relying on frozen cord blood. (I know it's invasive and painful.)
The longer it's stored the more chances that it accidentally thaws (human negligence) and becomes useless.
With improvements to stem cell technology, I expect there to be ways to increase numbers of existing stem cells collected from appropriate biopsies of tissues, and ways to de-differentiate cells to produce stem cells de novo, and ways to increase the number of stem cells in situ. I expect these anticipated improvements will be more likely to help than genetically identical cord blood. (That's my personal judgement of the odds - i.e. just a feeling on the matter.)
I did want to donate to the public cord blood bank, as it may have been able to benefit someone (medically or for research) in the here and now, and my child could also try the public bank later if medically appropriate. But it's so difficult to donate to the public bank that we've put it in the too hard basket and will not be doing that either.
25-04-2012 06:54 #4
We considered it too in some detail but we want to delay cord clamping so this bub can reap the full benefit if that so its not really possible...
25-04-2012 07:49 #5
We think we will, the small amount of research shows not much can be done with it currently but that it is more of an 'in the future' sort of thing. The cost while expensive to start is not that high spread over the years, we probably will as I'd hate to have needed it and not stored it. Would love the research sites LUVBUG.
25-04-2012 07:55 #6
Close friends of ours lost their first baby due to a horrible, rare genetic illness. They were both carriers, but couldn't possibly have known that, as it's such a rare condition. It only presented itself when she was around 6 months, and there was no treatment - she just degenerated until she passed at 11 months. It was the most horrible, traumatic thing to happen. Apparently cord blood could have helped as the only possible source of treatment, but of course as they didn't know anything was wrong until 6 months, it wasn't an option.
Having been so close to this heart-wrenching situation makes me think seriously about it. We don't know what we don't know.
Last edited by peoniesarepretty; 25-04-2012 at 07:59.
25-04-2012 08:07 #7
Thanks for starting this thread. I can't find anyone who has done it or anyone who is going to.
But we will be. My DH has had cancer 2x now, and second time he was only able to have the ridiculously high doses of Chemo to kill the cancer thanks to a stem cell transplant. I figure I want that option in the bank, ready for our child if he needs it.
I think we will go through Cryosite as they are the only ones I can see in Australia who offer both Autologous and Directed Allogeneic stem cell transplants.
In case you're not sure [cause I had no clue until hubby got so sick] an Autologous means the cord blood you store can only be used to treat the child in which it came from.
Directed Allogeneic means that because Cryosite is licensed by the TGA you can use the Stem Cells to also treat other compatible family members.
It is an additional expense, so you have to way up the options for you as to if you fork out the $$. For us there is no way that I could not store it 'just in case' baby or even hubby needed it down the track. My thoughts are, I pay insurance on my house, car, contents, so why not this?
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25-04-2012 08:26 #8
I did consider it briefly but haven't done any research yet. At the moment I want to delay cord clamping so the other isn't an option. But I will look into it further b4 I decide 4 sure, although it seems unlikely.
25-04-2012 08:27 #9
Can someone please tell me more about the delayed clamping? I have never heard of this before. What does this achieve?
25-04-2012 08:39 #10
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