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18-05-2012 08:59 #31
18-05-2012 09:40 #32-
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- Sep 2009
I have never heard of this before. Is the issue speech related only? As in, is he still normal in every other way? Normal intelligence, normal social skills, etc?
If so, sign language is the way to go. I started Makaton with DS when he was 18 months old and he's now picking up on it at 2,5yo.
Though he has some words now, so Makaton isn't needed ad much anymore.
I really hope he will start getting some words as he gets older. If only the basics like yes, no, want, need, au, help, etc....
I'll keep a lookout for updates from you. I would love to know how he develops at pre-school.
Big hugs I know what it is like to have to wait until they get older before you can get a proper diagnoses. I always say: "A mothers instinct is never wrong".
Mine wasn't wrong. It was spot on.
18-05-2012 11:49 #33
Thanks DE your a darling :-)
Misschief - here's a link . http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Childhood_apraxia_of_speech?open
Yes it's just a speech issue , well in my sons case it is just that IF he is officially diagnosed with this . He's development is normal in every other way, no delays , understand everything , all seems well, he's just not talking AT ALL .
Thanks for your advice I've begun doing a heap of reading on sign language etc and I think this is out next step .
Thank you so much for your support . I am praying my mothers instinct is wrong and clouded by irrational paranoia and worry but I highly doubt it . Time will tell.
I'll keep this thread updated as things progress , all the best with your son also . Thanks again xxoo
Last edited by heeeeerekittykitty; 18-05-2012 at 14:07.
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18-05-2012 12:39 #34
How old is he again? I remember when DS started ST not long after he turned 3 and he had a vocab of about 5 words? He understood what was said to him and is 'normal' (sorry to use that term) in every other way but his lack of speech has hindered his comprehension of the world. Even now he is a month of turning 5 and still doesn't understand so much (eg he doesn't understand "yesterday" and "tomorrow").
Must go, Mummy duty
18-05-2012 12:45 #35Senior Member
- Join Date
- Jun 2011
I hope I can answer any questions that you have. Please PM me
18-05-2012 19:21 #36
To help you with reserch in Australia its called Developmental Verbal Dyspraxia.. there are some good facebook groups etc. I have just pmd you in regards to my own son. Although my son presented and still does present with ALOT of DVD symptoms over the last couple years he seems to have either done VERY well with dyspraxia, or doesnt have it. He is now considered to have "Expressive language delay, phonological errors, an advanced stutter" but in his recent assessment is shown to have good average language skills in terms of comprehension and use eg (he, she, yesterday, him, her) etc etc.
Even if your son does have severe Dyspraxia.. he is almost certainly going to talk, but maybe with an impediment. Please dont stress, he is very young still .. to see how much my sons speech has come over the last 4.5 years is amazing.. hes getting there and im confident that if he can shake this stutter his speech will be completly average for his age by grade 1 or 2
12-06-2012 19:26 #37
Hi all :-)
Just an update on this thread to all the lovely people who've shown support and always replied , and to anyone who may be on a similar journey if their child isn't talking .
Today I had a follow up appointment with my pead , 6 months ago he advised me to come back if DS still wasn't talking .
He asked lots of questions again , then played with DS for awhile, he agreed he's social skills are very good along with many other things , and if it was autism it would be a very mild case most likely .
He said there are many very late talkers and sometimes there's no reason at all , no one knows why, and sometimes there is a reason however he wasn't really into talking hypotheticals at this stage as we could talk forever . He wanted more actions at this point .
Three things he wanted , an EEG done under sedation to test for lauder keffler syndrome or any other issues .
Second step is a blood test to test for chromosome abnormalities .
Third step is a formal 2 hour assessment done by he's colleague who specialises in developmental disorders .
I still feel very stressed but also very happy that he is being thorough and we are actually checking things and doing something instead of just waiting and seeing.
Has anyone gone through any of the above with their child , EEG, chromosomal blood test or a formal assessment ? Is love to hear all about it and what the outcomes were , to be honest I don't know much regarding all 3 as to what they check for or how they are done but I'm beginning to research .
Thanks again to everyone who's shown support since I began starting threads at 16 months about my sons lack of speech . Xxoo
Last edited by heeeeerekittykitty; 12-06-2012 at 19:29.
12-06-2012 19:43 #38
The Paed sounds very thorough and I can understand why it all seems a bit overwhelming but good at the same time.
My dd (only 8 months old) had an EEG a few weeks ago as part of the research study, but it wasn't under sedation, it was an awake EEG and only for 10 minutes. She had to wear this cap thingie which is really lots of electrodes connected with stretchy clear elastic to form a cap. It was pretty cool and pretty easy for them to fit. I've watched documentaries and things in the past where they had to stick each electrode down with sticky stuff to scalps/etc, so this is a vast improvement.
My ds had a general for grommets at 15 months of age and it was very uneventful, although maybe your ds will just have sedation and not a general anaesthetic, so it might be even better!
I hope someone can help you with more specific experiences and mostly I hope you get an answer at the end of it all! (and a talking boy!)
12-06-2012 19:56 #39
Formal assessments involve lots of answering questions and filling out forms. The answers are based on a scale 'all the time, some of the time, rarely, and never' etc I would also anticipate some observation would take place.
sounds like u have a fantastic paed. Good luck lovely. Answers = knowledge =power =help! These are all great things.
12-06-2012 20:43 #40
Thx so much Mim1 and DE .
I feel very happy with how thorough my pead is being , and just very relieved that instead of being told to just wait and see we are actually doing something .
Your very right DE, as you know , I'm worried sick about this constantly but Ive become less fearful of getting answers and more hopeful that answers will shed some light on whats going on and will therefore = help .
I pray that in a years time I can update this thread and say " he speaks , he's talking , he's chattering away non stop , he was just a late talker !!" but I just don't think that will be the case : no :
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