Starfish knows way more about Asherman's than I do - but did you say that yor OB performed a hysteroscopy? I thought that was how Asherman's was definitively diagnosed? i'm sorry if these are silly questions, but like i said, i was only diagnosed in Sept by my FS who cut out all of the scar tissue and i was very fortunate to only be affected on the left side of my uterus for some reason.
I'm so sorry you're feeling unsupported by your medical professionals. Do you hae a current FS? Again sorry for the silly questions...
One thing that i've been asked about by a few people when i've told them about the Asherman's, is why wasn't a hysteroscopy performed immediately. I didn't display any symptoms, you see, i bled normally every month, I would get pain, but have been diagnosed with Endo for over 15 years. It was just fortunate that my FS said after the 2nd cycle - I want to take a look, perform a lipoidal flush and take an endo biopsy...and he found it.
PS: Thank you so much for the earlier well-wishes. I have my appt with the OB on Thursday, i'm just hoping with everything that things are ok.
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12-11-2012 16:58 #51Senior Member
- Join Date
- Feb 2012
12-11-2012 17:18 #52
Know the risks of D&C's - Asherman's Syndrome
My experience is that AS is very poorly understood by many in the medical profession, including those involved in fertility and pregnancy.
Unfortunately, I think you have encountered the kind of ignorance that can lead many women to be misdiagnosed or to wait unnecessarily long for a diagnosis.
I would go to another GP and get the referral. Your appt with Prof V is only a week away now so I don't think it would hurt to wait till then to start the hormones. At least this way you will know definitely one way or the other.
12-11-2012 17:20 #53
Know the risks of D&C's - Asherman's Syndrome
Also I had pooled blood in my uterus when I had my 1st hysteroscopy with Prof V and no one had picked up during all the scans I had when I was cycling for a FET
The Following User Says Thank You to Starf1sh For This Useful Post:
13-11-2012 09:15 #54
Starfish - Thank you, thank you, thank you!! Yes that is what I will do. I'm so confused going back and forth in my head on if I have AS or do perhaps it's just hormonal (which I hope it is). This GP upset me enormously as she just wouldn't listen or take seriously on what I had to say she probably thought I was insulting her intelligence. She must have such a massive ego!!!!! I'm so hurt and feel let down by her. She made me feel like a crazy hypochondriac. Anyway I've been referred (by my friend) to another local GP who I hope will be open to listen to my concerns. I have an appointment on Thursday so hopefully she'll refer me to Prof V. I hope you are going well in your pregnancy.
KandP - I had a hysteroscopy mid August and my Gyno removed multiple adhesions and since then NO period. I had provera for 10 days and no withdrawal bleed. Now he wants me to have progynova and provera for 2 months!!! I'm feeling like I'm ovulating and 2 weeks later having AF pain. There is no doubt in my mind that I'm having the pain but I have no idea if it's actually happening unless I have blood tests. I had a pelvic ultrasound a few days after what I felt was AF pain and there was no pooled blood but the sonographer said it looks like a new cycle is about to start as I had tiny follicles on my ovary's. WTF? I'm just so confused.
My FS is in Cape Town as I have frozen embryos from an OS donor. My Gyno that performed the hysteroscopy is also my reproductive immunologist (I also have high nk cells) so I have to keep on good terms with him as he will be providing my immune meds IVIG/Humira (also IVF drugs to do overseas cycle) as he is the only RI in Australia that can help me. So I'm stuck. I don't want my current Gyno to perform any further hysterocopy's on me just in case he damages me further (if, in fact I do have AS). Therefore I'll be going to Prof V. I'm so mixed up cause I might just just have hormonal issues and I'm doing all this worrying for nothing all I know is I just have to get to the bottom of this ASAP!!!!
All the best with your OB appointment on Thurs
15-11-2012 17:27 #55
I saw the lovely local GP today who was very caring and listened to my concerns. She was happy to refer me to Prof V so I'll be seeing him on Tuesday. I'm looking forward to knowing one way or the other soon what's causing my amenorrhea. I'll keep you posted.
Starfish - I checked in on your thread and I was so excited to read that you saw bubba's heartbeat. It is such a special moment. Very happy for you!
16-11-2012 10:51 #56
Glad to hear you found a supportive GP Helen. Good on you for persevering and advocating for yourself to get the answers you need. Will be thinking of you on Tuesday and keen to hear how it all goes
Thank you so much also for your well wishes. We had our official scan today after an early one on Monday following a bleeding scare. I was still a bundle of nerves in the waiting area and I'm sure it will be the same every time. Little bean's heart rate had gone up to 133bpm and is still being a little overachiever and measuring a couple of days ahead
Sonographer could not find any evidence of the clot today but it only had a volume of 0.1ml and was less than a cm in diameter on Monday so seems it may have all bled out? We have booked in with an OB, Rob Buist who has experience with post AS pregnancies and has also delivered some of Prof V's success stories.
DH and I just cannot believe this is real It all seems so surreal that after 4.5 years of an uphill battle we might actually have a baby
17-11-2012 08:27 #57Senior Member
- Join Date
- Dec 2011
- Far North Qld
Starf1sh - I've been out of touch for a while, I'm so happy to hear you are well on your way! You deserve this. I can't thank you enough for how you've helped me. At the pickup stage of my last cycle I had the fs check my cervix to see if the scarring had come back but all looked really good from the surgery with Prof V. We still didn't get a bfp but the Dr Y is confident he can get us there with a souped up fet. I can't be happier for you.
Helenmac - It's so unfair that there are so many doctor's out there with God complexes. I'm lucky that the 2 I normally see are open to other information and don't hesitate to jump online and have a look, which they have done for me resulting in me having surgery with Prof V late June this year. I can't praise him enough. The head fs at my fertility clinic even admitted I couldn't have seen anyone better, and he considers himself to be one of the best in the country (he's based in Perth). I wish you all the best and hope you get your bundle of joy soon.
I'm a bit out of touch with bubhub, I've had a hard time coping with everything lately so haven't been on much. My gp has started me in betablockers for migraines, which apparently will work together with the meds for my fronzen transfer next month. I nearly fell off my chair when the fs agreed with my treatment from the gp. My problem now is a lining issue, which I've had form the start but they are now throwing everything at it. I'm on Inderal(for migraines), Vit E and Trental all twice a day at a high dose. I will start progynova and cardirprin along with a bucket load of pressaries. God I hate those things.
If it wasn't for these forums I wouldn't have a clue what to do. I knew nothing about ivf and certainly didn't know what questions to ask. I want to thank all of you for your input and your willingness to share with us.
The Following User Says Thank You to Amps For This Useful Post:
17-11-2012 10:52 #58
Amps, great to hear from you. Thank you so much for your kind words. I'm sorry you have been having a rough time but I'm so very pleased to hear that the cervix has remained opened and your FS is feeling positive for your FET! I also took Trental 3 x daily 400mg for about 3 months leading into this cycle and high dose Vit E (1000mg). Not sure if either of those made a huge difference. I also had a lot of trouble with my lining even after my surgeries. I didn't respond very well to synthetic estrogen and I ended up with a couple of cancelled cycles.
However, I just thought I would share with you that I had a much better response doing a cryo-stim cycle (low dose of 75mg FSH to kick the ovaries into producing their own estrogen and a lead follie and stimulating the lining that way). I still only ended up with a 6mm lining but I was struggling to get to 5mm on the other protocol. I'm also a believer that if the embryo has 'the goods' it will implant on a thinner lining and there are STACKS of success stories on the Asherman's site that will attest to this.
Good luck and keep us posted!
Petrult, if you are still reading along just wondering if your bubba is here safe and sound?
KandP, Congrats on your fab news too!
20-11-2012 11:23 #59
My appointment went well with Dr. V this morning. He has requested I have a MRI uterus scan on Thursday and next Tuesday he'll do the operative hysteroscopy.
Thank goodness there isn't much of a wait and I'm relieved I'll have a diagnosis by early next week.
20-11-2012 15:13 #60
Great news Helen, and pleased to hear things are moving so quickly! Keep us updated xx
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