Looking for some advice.
My daugther was a rather strange child (very different to my two other children), she didn't say a word till she was 2.5 and used to grunt if she wanted things.. she didn't say mumma till 2.5 and I started her with speach therapist. Therapist initially said she felt she might be autistic due to a lot of her behavour etc.. but over time with the speech therapist she improved and now has a wide vocab and is up to speed for a 4 year old (she's 4.5 now). So we dismissed that idea.
She has some strange behavioural problems such as an obsession with window overings, she hates curtains hanging down and has to have everything pulled up and tucked away from the window. Once she got so bad she was upset about the nieghbours window she saw that had the curtain down and that really worried me. She has also shown this behaviour at kindy but not as much as at home. I talked to the pediatrician (at the same health clinic as the therapist so they work together with her) and they said they would do any necessary testing so we have an answer one way or ther other if it's aspergers (that's the latest thinking that she 'might' be just on the spectrum?)
She was toilet trained (it took a very long time) but things seemed fine for a while there but I've been having some serious problems with her pooing her pants - this started around November and was on and off.. but it got worse and worse the last 3 weeks with her soiling 7-8 pants a day just a bit each time. My GP did some tests for lactose intolerance and upset stomach etc but all came back fine. He thinks she is constipated and getting an 'overflow' so gave me some laxative stuff for her to take each morning. We've done 3 mornings and he hasn't improved.
Up till now her kindy said she's okay, only a few pooing accidents but it is getting slightly worse. The spoke to the pediatrican and said all was okay but after that they noticed the curtain obsession and then the pooing was getting worse. Today her teacher pulled me aside and told me not only did she poo her pants 4 times today but she also caught her eating her poo and smearing it on the wall! she felt so concerned because my daughter doesn't really 'react' to anything.. you could yell and scream at her all day but she would just say 'I'm sorry' and then laugh or start singing.. she's like on another planet it's so frustrating.
She also has trouble following direction - I've often thought she is just willful but now I wonder if this is another sign (e.g. I will say go and get your shoes and she'll walk in the other direction).
As a baby she was odd, not only refusing to talk but also I have all these photos and videos of her with this blank expression on her face. She never even noticed if I left the room or returned (both my other son's used to cry and were happy when I came back). We had her hearing tested as she never noticed when people were speaking to her (we used to have to turn her to face me and I often still have to do this to get her attention). but her hearing is fine.
I'm just so frustrated as most specalists say there is possibly 'something' going on but it's 'mild' and they can't figure out what it is.. even the speech therapist said (she was very experienced) tha tjust when she thinks she's one thing she goes and proves everybody wrong.
so frustrated and desperate for some advice from any asperger's mums or autism mums - does any of this sound familiar? am I going about a diagnois the right way? I'm getting the kindy to write to the pedatrican so hope that helps?
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29-03-2012 18:38 #1
Asperger's.. possibly? 4 year old.
29-03-2012 18:43 #2
No advice, but could not reply without giving you some great big hugs!!!
Last edited by babylove81; 29-03-2012 at 20:29.
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29-03-2012 20:23 #3
Sorry I have no advice either but just wanted to give you some of these .
I hope you find some answers soon
29-03-2012 21:04 #4
Thanks. I don't see a dedicated forum for this sort of thing so will just *bump*
29-03-2012 21:14 #5
You have been doing the right thing so far. The other thing you could do is get an assessment with a child psychologist. They will use various questionnaires and other tools to investigate your child's development and to help clarify diagnosis. The info from the psych may help the paediatrician come to a diagnosis.
29-03-2012 21:29 #6
So your first port of call should be the paed, who will then refer to get psych assessment, speech asessment and occupational therapy assessment.
Be aware that the diagnosis of aspergers(that particular label) is rarely dx before 6-7 yrs of age, typically once big school has started. So u may be looking at a pdd nos or classic autism(but probably high functioning) also, if there is a speech/language problem, which comprehension falls under (not understanding direction,) than an aspergers dx is rare, because typically aspergers children, dont have or havent had any language problems at all.
Both of my boys hAve autism, some of what you say definitely sounds a bit like them,but every child with asd is different. All i can say is your concerns are valid, and its worth getting investigated starting with the paed.
29-03-2012 21:38 #7
I'm not an Aspergers mum, but I do work for Asperger Services Australia.
From what you have described, it would be enough for me to want to get an assessment done by a paed or a clinical child psych who specializes in AS....
Girls often present quite differently to boys, which different behaviors and differences. A lot of what you have described though, does signal a red flag that something is not right. Whether it's Asperger Syndrome or not, only a professional can tell you, but it does sound that it is a possibility at the very least xxxxxx
29-03-2012 21:44 #8
29-03-2012 21:51 #9
both psych and paed ruled out aspie dx for my sons due to language difficulties. After a lot of reading on the net, most info i come across backs thatup as well.
And i did say rare, not impossible.
Of course its just my opinion.
29-03-2012 21:53 #10
Maybe we are thinking along different lines of language difficulties... What is fairly common in an Aspie child is that they are late talkers - sometimes not talking until 2-3 years old but they do catch up with no seemingly ongoing language issues......
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