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  1. #1
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    Unhappy Mucous in stool and MPI- advised to stop breastfeeding

    Hi
    I am so worried about my little boy who is now 16 weeks. He has had slight reflux and cramps/colic for for the past 12 weeks. I have been on an elimination diet eating only lamb, chicken (no skin), potatoes and carrots for the past two weeks. He is still passing lots of mucous in his stool (or what I think is lots of mucous). We have seen two specialists. One has advised us to stop breastfeeding and start him on Neocate and on no account to start solida. The other has said t o start on solids and to continue breastfeeding.


    I am so confused and not sure what to do. I don't want to stop breastfeeding but I don't want to cause permanent damage to his bowel. He is 7kg and otherwise well. His eczema is slight and his congestion is getting better.

    If anyone has dealt with something similar I would love to hear about it. Especially if you have weaned and started Neocate or similar.

  2. #2
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    DD is 7.5mo and was weaned onto Neocate at 13 weeks. I was devastated and suffered from PND due to having such an unsettled baby.

    She had very mucousy poo, becoming bright green or dark sludgy green, awful reflux, poor weight gain and tummy pain.

    I tried eliminating dairy and soy but at that point I was so depressed and exhausted, I basically started starving myself as I was scared to eat anything. We went to Tresillian for the second time to wean her.

    As I said, I was gutted to stop BF but in our case it was the best thing we ever did. She is thriving on Neocate and no more reflux or pain.

    I am hoping that if I have another baby I will be able to BF regardless of any intolerances as I'll have a lot more knowledge next time.

    If you have any other questions, let me know. I'm no expert but happy to share my experience.

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    Loulou33  (22-03-2012)

  4. #3
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    I'm onto my 2nd baby with intolerances to both dairy and soy. My DD had severe reflux and at 3 months was losing weight, pooing blood and mucous and refusing to feed. We saw a specialist paediatric gastroenterologist who finally gave her strong enough doses of the reflux medication to manage the pain. I had to eliminate dairy, soy, wheat and eggs and was able to reintroduce wheat and eggs (one at a time) but failed the dairy and soy challenges. She could tolerate soy from about 9 months and dairy in my diet from about a year old. She is now 2 and can have small amounts of yoghurt and cheese but not cows milk or she has mucous in her poo.
    My DS is 4 months old and I went off all dairy and soy before he was born. He still has reflux and started medication at 8 days old. I am dairy and soy free. The intolerances can make the reflux worse, but don't think that just by eliminating the problem foods the reflux will disappear. It can take a full month for the proteins to leave both your system and then your baby's.
    My DS's reflux is well-managed now with the medication and my diet. His paed suggested we start solids as soon as he was 4 months so he had some puréed pumpkin twice last weekend and we had two very unsettled nights. Solids can help sometimes, but I'd be more inclined to get the other issues sorted first, especially if he is one whose reflux flares up with solids like my kids.
    Adjusting my diet worked in keeping my kids intolerances under control, but if Neocate is needed it generally gives great results, although it can be a challenge to get babies to actually drink it.
    If you have any other questions, feel free to ask!

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    Loulou33  (22-03-2012)

  6. #4
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    Thank you all for your responses. I was wondering if anyone knew the dangers of having mucous in the stool? I asked the paediatric gastroenterologist and he was very evasive. Has anyone been told if this increases the baby's risk of developing allergies later n in life, or not outgrowing their current allergies? I would not want to condemn my child to a life of food allergies.

    Cindye - we have not been given any medication as everything we have tried has made him worse (Zantac, Mylanta, omeprazole). Even panadol gives him really bad tummy pains.

    Cue - how did you wean on to Neocate? I was told to go cold turkey but that does not feel right. He loves breastfeeding so much for comfort as well as anything else and it seems wrong to go from feeding on demand (sometimes 14 times a day) to a bottle every 4 hours.

    I was hoping I could stay on the special diet for another couple of weeks to see an improments. I have been dairy free for nearly 6 weeks but it has only been 2 weeks since I have eliminated all soy, eggs, nuts, corn etc etc. Maybe I can stay on the diet for a few weeks while slowwly introducing him to Neocate.

    If anyone knows of a good paediatric gastroenterologist in Melbourne or NSW please PM me. We have seen one in Melbourne but we want a second opinion. He is so well known that I don't think anyone else will see us to give a second opinion. We may need to go to NSW.

    Thanks!

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    Just quickly, my DD had mucousy stools for the first 12-15 weeks. The last few weeks there is almost no mucous and is becoming pasty. I was told if the poo is still yellow and doesnt smell foul mucous isn't a problem. I was worried for a while but I know a lot of bf babies with mucousy poo so I'm not concerned anymore.

    Is it just the mucousy poo and colic that made you see the dr?


    Baby wearing, co-sleeping, booby feeding mummy to one

  8. #6
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    Hi - can't be gluten or dairy as I am coeliac and have been gluten free for 10 years and dairy free for 6 weeks.

    Thanks Etienne - his poos are green (lime green to dark green and everything in between) and foul smelling. I eat nothing but lamb, potatoes, carrots and pears (have dropped the rice and chicken) so can't really be anythiing in my diet. Today his refluc has bothered him - vomitted 8 times already and screaming.

    We also breastfeed and he is with us 24/7 except when i shower! I don't want to stop breastfeeding unless I am very sure Neocate will work. I am scared too stop and start the formula and he is allergic to it.

  9. #7
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    Loulou, soy has very similar protein to dairy- my DD's paediatric gastroenterologist told us that 50% of babies who are intolerant to dairy are also intolerant to soy. With my DD, I was off dairy for a full month before I went off soy too and it wasn't until I had been off soy for a full month too that the mucous stopped.
    When we were getting to the root of DD's issues, her paediatrician said I could give her neonate for a month while I did the elimination diet, but continue pumping to keep up supply, but I was concerned about the potential for breast refusal after a whole month of not feeding, particularly when she was already associating the boob with pain. But it could be something you could try if there are no other options.
    And as far as medication goes, the advice I've been given is that if something like mylanta doesn't give relief, then the issue may not be reflux at all. Some of the other medications like Zantac and Losec are accumulative and can take up to a fortnight to give full results, but mylanta should give instant (if somewhat short-lived) relief for reflux. If it isn't, I'd be getting straight back to the doctors to make sure it isn't something more serious. For us, the best thing we did was find a care-giver who really worked with us to find solutions.
    Also, the NZ reflux website "cryingoverspiltmilk" is an invaluable source of information if you haven't come across it yet. Also http://home.vicnet.net.au/~disa/welcome.html is great, particularly the info on food allergies/ intolerances.

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    Loulou33  (22-03-2012)

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    my youngest dd is allergic to dairy and soy , I did an elimination diet for a while and we did both breast feeds and neocate till 10 mths when I went to completely neocate, what I did was give her morning and night bf's and then suppliment with neocate during the day except for a bf during the middle of the day after or before her nap. I saw how much better she was on neocate at 6mths and went to all neocate during the day and bfing at monr , night and during the night if she woke up for my convenience till weaning slowly to full neocate at 10 mths.
    I don't like the idea of completely weaning cold turkey unless needed but you do have to be strict on your diet and any little thing I slipped up on I could tell including things like crackers that had soy as a thickener etc I changed to coconut milk in my cooking and rice milk for making smoothies etc.
    Sorry your bub is having so many issues I hope you can get it sorted soon.

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    Loulou33  (22-03-2012)

  13. #9
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    I intended to wean slowly but in the end I did it pretty quickly as dragging it out was hurting both me and DD. I think all up it took about a week. I just started dropping feeds and adding bottles as I felt comfortable. I never had a massive supply so it didn't take long for my breasts to adjust.

    I had the exact same thoughts as you - what if I stop BF and the Neocate doesn't fix the problem? In our case, I could see the difference immediately so I knew I'd done the right thing. Neocate helps to heal the gut as well as being tolerated by their system.

    As for bubs wanting to drink it, I was worried about this as well because everyone kept saying how gross it is. However, DD downed it without a second thought. We use Neocate LCP which apparently is a bit more palatable than the original.

    As for other allergies, we were advised by her paed to get allergy tests done just to be safe and she was all clear. Usually they grow out of CMPI and SPI relatively quickly, I think usually between 1-3yrs old but I could be wrong on that timing. We were told it shouldnt cause any major issues later on but she may always be a little sensitive to dairy overload (like me!).

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    Loulou33  (22-03-2012)

  15. #10
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    It's not something as simple as too


    Baby wearing, co-sleeping, booby feeding mummy to one


 

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