Thank you for the book recommendation. I will see ifI can get it on DH's ereader.
diamondeyes - I will look for the spirited child book as well. It sounds like something I need! DD is sporting a fat lip and a black eye today from being knocked over by him yesterday. Blah.
rae81 - your poor nephew We have done diet changes and haven't noticed any dramatic changes. We just try and avoid the really obvious stuff now, like MSG and colours, as they do make him a bit worse but nothing more subtle seems to make a diff.
I shall keep this thread updated as to our progress. Hopefully it will be helpful to someone.
I haven't heard back from the GP yet about a new referral or about the anxiety clinic. Hopefully I get a call today.
Thanks to all for your support, advice and hugs! It has been a real help for me
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Results 31 to 39 of 39
21-02-2012 08:01 #31
21-02-2012 09:48 #32
i probably didnt word my post right or actually explain what i meant.
i think the book is a load of shiz, it basically said my boys are just spirited and dont have asd!! sham! there was a story about a woman who was late to the class because her son was losing the plot over his socks and needed them taken off and put back on twisted in different ways etc just to feel right.
thats not spirited thats sensory issues!!!!
i have a copy if u want me to post it to you, but pleaaaaaaaaaaase dont let that book convince u of anything.
i got 3 chapters in and was infuriated by it. because no doubt a lot of parents with kids clearly on the spectrum, will read that book and think "oh its fine he/she is just spirited"
21-02-2012 13:10 #33
21-02-2012 22:21 #34
I am struggling so much with this now. Today, for instance, we were at my sister's and he was playing outside and kept making this noise. It's something from a tv show and he just kept screaming it over and over. I asked him to stop a number of times as it was freaking my niece out. He wouldn't stop so I was telling him to look at me in the eyes so I knew he was listening. Anyhow he wouldn't look at me, cracked the poos and threw a tennis racquet. My sister then told him off for throwing things (fair enough and she is never mean, always fair) and he started bawling. He was climbing all over me crying and she was trying to get him to say sorry and I thought.. Just leave it, yanno? But then.. If it was her DD (same age), she would be expected to apologise. My sister wasn't being horrible. She wS just saying "you could really hurt yourself or one of the babies, or someone else, or one of the dogs and you need to be more careful and say sorry."
I just don't know how to act now.
No call from GP yet. Just had to unload so there ya go
22-02-2012 06:50 #35
The Following User Says Thank You to Zombie_eyes For This Useful Post:
Mrs Molly Coddle (22-02-2012)
23-02-2012 21:11 #36
We have made some progress. Public OT has said she will asses my boy, not as in depth as a private OT but it is something.
Is it just me and wish that it was easier, that it isnt a constant struggle or fight. I love love my kids and my son with anxiety has such a loving personality. Tonight he told me he loved me to out of space and back and then said I love you until you die. I then told him that infact you love somebody even after they die. Then he started to cry and was worried, telling me I would die before him. Just another thing for him to worry about and it reallly shouldnt worry his precious heart. He is only 5.
I also did have a laugh today when filling out an update of a medical form for school. Anxiety was one of the medical conditions and you had to put down what were the symptoms and as much info as possible. Also how to treat. ........i was thinking maybe writing down everything that doesnt bother him....the list may be shorter.
27-02-2012 15:04 #37
03-03-2012 13:57 #38
Just a bit of an update. We are seeing the paed in April. My GP faxed our referral to the paed and they called to offer us an earlier appt which is great. Wr had our first psych appointment this week. It went OK. DS was very distressed so I left early with him and DD, while DH finished the session. She seems good but perhaps a little cold. Time will tell how we get on I suppose. Wr have to keep a diary of his meltdowns and anxious episodes for 2 weeks then we see her again. Keeping the diary is quite eye opening and confronting.
16-03-2012 19:01 #39
Hi Mrs Molly Coddle
Well he has yet to be assessed or what we have been told a sensory profile will be made. I was supposed to get a phone call sometime during last week/this week and well we havent heard a god damn thing. So not sure. Have a phone meeting with our public psychologist in a week or so and will follow up on it.
Our medical registrar decided that since therapy of over a year and a course for me hasnt worked than medication was the go. Im not happy about it, but Im willing to try anything for him to be a normal functioning child. Anxiety can be so delibitating. So we have been doing the medication for a week and a half and it will be about 4 weeks before we see any significant changes.
This school holidays are going to be fun as this will be the first time that we need to use vacation care. Will only be for week two as MIL will be staying with the kids(not sure if that is a bad idea or not).
I would see how your psychologist appts go and if you arent jelling with them then you need to find another. You really need to feel confident and comfortable and so does your son especially with having anxiety.
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