This is kind of a vent/ support/ advice/ offer your experiences kinda thread
I have 2 kids. E has just turned 2 and J is almost 10 months. Both are severely hearing impaired and have been since birth. They both wear hearing aids. With this comes Early Intervention (2 days a week) hearing appointments, hearing tests and a lot of work at home.
Now as if that doesnt keep me busy enough. Since starting solids at 6 months J has developed eczema in reaction to food allergies. He is highly allergic to egg and also but not as bad wheat. So shopping is getting more expensive and Im having to bake a lot of foods for the wee man.
This is the bit that has knocked me. Our very trusted paed has referred E to a clinical psych to be assessed for ASD. I seen her on my own and she is concerned and wants to see E to do a full developmental check and and ASD assessment. E and J's teachers are also both concerned about her over all development.
Im just beginning to struggle a little. We have such a full on life and Im just left feeling like F me whats gonna happen next!
And if one more person says Im lucky because it could be worse Ill lose it!!
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22-12-2011 14:54 #1
How much does God think I can handle
22-12-2011 15:03 #2
big big big big big I have no magical story or experience that defys all odds and proves that these little people grow up to be really GREAT people, but I do have heaps of . I hope you at least have a great Christmas- full of smiles, laughter and happiness.
22-12-2011 15:20 #3
I also have no advice but loads of
22-12-2011 20:31 #4
Thank You Ladies
22-12-2011 20:37 #5
22-12-2011 20:42 #6
Yep, you've got a full plate! And that is an understatement! I know what you mean with the "see how good you've got it" statements. It's hard to get angry because you know they are trying to be supportive, but it doesn't acknowledge how you're feeling does it?
All I can try and suggest is that you do need to take time for yourself. This isn't a luxury or selfish pampering. It's necessary because the last thing your family needs is for you to burn out! Get as much help as you can! I hope you've got people around you to assist you and give you a time out from time to time!
Take care! Hugs!
You'll have to excuse the iPhone auto correct. It sax!
22-12-2011 20:47 #7
I don't have a special needs child so I won't claim to understand, just wanted to offer you hugs you must be feeling overwhelmed and your why me feelings I would think are normal
22-12-2011 21:05 #8
Big to you. You've got quite a load there, and as others have said, I think your feelings are normal.
Have you got support for yourself? My DD is on the ASD spectrum, and the services I've been able to access (not just for DD but for myself) are amazing. GFP is right, you need some you time, and it's not selfish in the slightest.
My 22 year old nephew is deaf and autistic, and he can be quite a struggle. His mum is an amazing, patient woman, but I can guarantee you that she had her "why me" moments, times of many tears and needed breaks. Reach out to all the services that can be offered.
24-12-2011 12:55 #9Senior Member
- Join Date
- Jun 2006
Have 2 with autism, happy to chat if you would like too
30-12-2011 23:39 #10
i know it seems like u couldnt possibly deal with this on top of everything else at the moment, but early intervention can work wonders, it'll be hard and maybe even worse before u see how much better it can be. but no matter what we are all here for you, and you will slide into that world the way u have the hearing impaired world.. agree with others, make sure even if its an hour...that u get some you time, something to look forward to, to relax
can u get anyone to help you? with the baking and stuff? i cant see where ur located but if i was close id try to help xox
i hear u on the "it could be worse" or the one that gets me is "autism is a gift" get the eff outta here. it is not a gift. children are a gift!! their struggles are not!
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