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  1. #1
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    Default I've had pityriasis rosea for 16 MONTHS! help, it's destroying my life.

    It's meant to only last for up 10-12 weeks, most of the time it's gone after 6 weeks, I just can't take it any more it is destroying my life and at the same time disadvantaging my son's.

    So I got this when I was 14 weeks pregnant (around mid June last year) this is when I started noticing it. doctors said it was pityriasis rosea, explained it to me said it should be gone with in 10 weeks, well that time past and then some more time, up until now I have seen 5 different doctors.

    My son is now 10 months old, so I have had it about 16 months now. I went to the doctors 2 days ago, it's just an endless story of being told the same things does nothing, well does ease off the itching a bit.

    I don't know if I have been making a mistake by telling different doctors this is what I have been told it is before they say anything...

    So what this is really doing to me, well besides the random itch attacks that can drive anyone mental, it's destroying my life, I hate leaving the house, I have lost contact, other then facebook with almost all my friends.

    I'm so worried it's getting into summer and where I live it will get very hot, if you know a bit about this rash, well when you get hot, the rash get A LOT brighter and where you can't normally see any marks there they will be. it takes over most of my body, I don't know what to do, I need something to help this.

    I have hardly any adult social interaction, My biggest interaction is every now and then play cards with my neighbour and her friends who are 55-69 years old, I am only 20.

    A "simple hurt less rash" is bringing me down, I get so stressed out because of it all, I have no started sub concisely teeth grinding/ clenching plus some other issue's I just break down and cry, I feel so helpless over this.

    Please if you have ANY advise even the smallest thing please let me know.

    P.S. before anyone say's go to a dermatologist, I can't until march next year, I live in the country, there is no dermatologist out here permanently, we have 1 guy that comes from Sydney every so often and that's it.

  2. #2
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    I had it for a few months and it drove me crazy, I can't imagine how you must be feeling I think anyone who says it's a "painless rash" hasn't suffered a bad dose of it.

    I'm so sorry to tell you this but the only thing that cleared it up for me was actually seeing a skin specialist I really think in your case it would be worth travelling to get to a specialist

  3. #3
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    Go to a solarium. I know, they are terrible for you long term, but trust me, it works. I had that when I was about 20 and read on the net it hates sun light so I went for 2 treatments and it was gone...

    do you have a halo on your stomach? that's a sure sign it's pityriasis rosea

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    Quote Originally Posted by Benji View Post
    I had it for a few months and it drove me crazy, I can't imagine how you must be feeling I think anyone who says it's a "painless rash" hasn't suffered a bad dose of it.

    I'm so sorry to tell you this but the only thing that cleared it up for me was actually seeing a skin specialist I really think in your case it would be worth travelling to get to a specialist
    I don't even know how to drive let alone have a car, so it's a 8 hour bus and train trip plus hotel, I think I am going to have to work out something maybe me and bub will have to have a few trips to Sydney, that's assuming you would need to go more then once?

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    Quote Originally Posted by delirium View Post
    Go to a solarium. I know, they are terrible for you long term, but trust me, it works. I had that when I was about 20 and read on the net it hates sun light so I went for 2 treatments and it was gone...

    do you have a halo on your stomach? that's a sure sign it's pityriasis rosea
    Country area, I don't even think there is a solarium here.

    What do you mean by halo?

  6. #6
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    Quote Originally Posted by delirium View Post
    Go to a solarium. I know, they are terrible for you long term, but trust me, it works. I had that when I was about 20 and read on the net it hates sun light so I went for 2 treatments and it was gone...

    do you have a halo on your stomach? that's a sure sign it's pityriasis rosea
    I was wrong there is one in the next town, I guess even if I go once first and see what it does, 1 time shouldn't have too many risk.

  7. #7
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    http://en.wikipedia.org/wiki/Pityriasis_rosea

    also known as a herald, it's a big round spot on your stomach that's way bigger than the others, there is a photo of the herald.

    Can you sun bathe in just a bikini in your backyard? Once or twice in a solarium won't hurt you. I found it got better after the first one, but the 2nd one really got rid of it.

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    Haha nah not in my backyard.

    Oh the herald patch, I believe I did when I first had it, but it's just spread takeing over a lot of my body, tho above the navel, in the center, I now have almost one big patch that's about 10cm long and 6cm wide, they have just melded together, then it gets lighter small dots, travels around to my back, but only really where my ribs are, then almost my entire back is covered, goes over my shoulders down my arms but not as many after elbow it all goes along the side of my neck, my chest and the back of my thighs, this is when I'm not heated, after a hot shower it covers a lot.

  9. #9
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    Default Pityriasis Rosea Relief

    I had this nasty stuff for about a year. Dermatologist biopsied it for the diagnosis. I was told it would last 6 to 8 weeks. Ha! I tried everything I could find, black soap, bio oil, dandruff shampoo, tanning, all with no results.
    I found a cream on eBay, it is called Prreze. It worked within 5 days. I have seldom been so happy in my life! I had the rash from scalp to feet. Started with a small patch and spread from there. Unsightly, itchy, nasty.


 

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