I am a member of a large group of T1D parents and only a few receive the carers payment. Everyone automatically gets the allowance though, to assist with the cost of medicine and consumables.
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03-08-2012 10:21 #21
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03-08-2012 10:30 #22
Its crazy isnt it, how medical issues are seen as nothing to the government, my DD has very high medical needs but wasnt even eligable for physio or OT untill she was also diagnosed with CP. For centre link when single i was eligable for carers pension as DD falls under being on life suport at home but now we are back together eligable for nothing they even canceled careers allowance and i had to re apply which was a joke.
Kinda of topic but how does your lil one go with needles my DD is fine with finger pricks and used to be ok with canulas and injections for a long time but due to a majory traumatic experience in november she went really bad against needles and cannulas she is slowly getting better but still hates it with a passion. I use buzzy for shots on her. OH and she isn T1D she has a differnt endo condition and required needles, she is the opposite of diabieties in many ways she cant control her low blood sugars if her feed is discontected for more than 30 to 60minutes ( she used to have 30 minutes max from normal to bellow 2 )she will hypos when she is on IV glucose he only has about 5 minutes from it tissueing to he sugars dropping its a night mare
03-08-2012 10:36 #23
You really should see a Centrelink officer as the criteria for each person is applied differently and things about your situation will be particular to you and no one else.
The website is just a vague guide. There's always a lot of confusion between the allowance and the payment and it really does pay to see someone from Centrelink (personal experience and DH is CP recipient) to lead you down the right track.
03-08-2012 12:09 #24
DS2 goes okay with needles, every now and then he has a cry if the spot is a bit tender or if it flicks out (which happens because he moves...he's 14 months old so tends to do that a lot!). He is generally good with the finger pricks too, we have the lancet set at 1/1.5 because his fingers are so teeny tiny. He is going onto an insulin pump soon, so that will be my first experience with a cannula/infusion sets. I'm not looking forward to possible site infections and him pulling at the tubing, but it is a better option in the long term for his health (and more flexible too).
I have heard about Buzzy for shots, does it work well?
03-08-2012 15:12 #25
When you go onto the infusion pump actually before so you have it ready look up on faceboo Belly buttons she makes belts for kids with feeding tubes and as the insulin pumps are often on the belly they would work great for that its like a belt to protect it and it would protect the site and also you could clip the pump on it as well, so it would be all secure nice for him they do them in fun fabric to kenz loves her
The jury is out here on if buzy works he does if she is asleep i can put buzzy on and she wont feel the needle at all but if she is awake and sees it she goes mad lol
03-08-2012 15:14 #26
Oh and the canula for the pumps isnt bad at all, as its just an intramuscular one kenz had the sensor in for a week and putting it in was fine, we used to put a insuflont in her every few days as well to access for her needles they are fine, Infection risk yes but no where near as high as with an IV port or line as long as you ue good hand hygine all is fine
03-08-2012 16:39 #27
Type 1 diabetes is now a recognised disability for children aged 10–16 years.
That's what I found off the website and I hope you guys are gettingor will push to get full entitlements cause by the sounds of it my situation is nothing compared to yours
just reading your posts made me want to cry at the extent of what your babies go through with medical condition and feel so ungrateful
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03-08-2012 16:40 #28
03-08-2012 17:30 #29
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03-08-2012 17:52 #30
Witwicky, I'm really shocked they've knocked you back. I definitely think you should persist.
I get both carer allowance and payment for my dd with Aspergers. It does involve a lot of extra involvement in the way of dealing with meltdowns, appointments and meetings with the school, but it sounds like less than what you have to do for your son. It makes me angry that you've been denied. I hope there's something you can do to get them to reassess you.
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