I just read this. I dont really understand how it helps us but I thought you al may be interested
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24-04-2011 11:36 #51
24-04-2011 16:08 #52
MHW- Yeah, our neurologist menitoned about this coming in from July. I think for the 12,000 of funding we will have to apply through centrelink for it. And the money can be used similar to the helping autism money for therapy and such.
Kiz- I'm glad to hear that your home and I was wondering what do you think it was that helped to change Bree so much apart from getting the seizures undercontrol. The reason I ask is that my lil man is so grumpy and miserable a lot of the time and I wonder if there is something we are not doing for him, or if he is in pain.
Does anyone ion here do swimming lessons for there kids? I'm thinking about it because it might help ASh's low muscle tone and be good physio any ideas?
Welcome to the new mums too, hope everone is having a nice easter!
24-04-2011 22:06 #53
HAPPY EASTER EVERY BUNNY!
Welcome everyone old and new that I haven't met yet
Sehan I've messaged you!
Thank you to all that supported me in our latest ordeal. I'm not sure how I would have coped in Brissy without the advice and kindness of the mums on here
I really do feel like I belong to an exclusive club
25-04-2011 09:51 #54Senior Member
- Join Date
- Jun 2008
Hope every one is haveing a happy easter weekend.
25-04-2011 20:35 #55
Hi Kiz, just stopping in to say I'm so glad that you are out of hospital. It is the most draining awful time being in there fully focussed on your little one and dealing with ever changing hospital staff (and other children!)
Hi everyone else, some of you know me from the GDD thread (sorry I've been slacking off and not posting lately)
My son is nearly 14 mths and has a chromosomal abnormality that results in a syndrome with some "facial characteristics", delayed learning and milestones, speech delays or absence, and some level of learning difficulty (the range of severity is wide so we are finding out as we go).
He is a stubborn and strong little guy that keeps surprising everyone, he started crawling over a month ago and is pulling up on everything now, so he is not that far behind. We see some specialists and have had health problems related to his kidney (he only has one) and urinary tract in the past, but *touch wood* have not been in hospital now for nearly 4 mths!
3b&1p chocolate custard is my DS's FAVOURITE food hehe
myhusbandswife I got happy tears when I read your post about J smiling when he heard your voices. Thats the most beautiful thing I've heard in a long time!! You are an amazing mummy!
Hi to all I've not personally said hello to. Look forward to chatting in the future
28-04-2011 15:54 #56
just dropping in to update.
I have been diagnosed with post natal depression today and been prescribed antidepressants.
Also we were rejected for carer payment. The lady from CL that called me suggested that we re fill out the care needs forms and re apply because she cant understand why we would be rejected. Who would be the best to fill these out? Our GP did it last time but I guess not good enough. Our normal paed or an audiologist do you think
28-04-2011 16:46 #57
MHW, I've been told by many SN mum's that majority of carers payment/allowance cases get rejected the first time and you need to appeal.
Then, majority of the time during the appeal process they get approved.
We don't qualify. Apparently DD's sickness and medications, etc etc doesn't cost any extra money....
Grrr, be back soon, DS is playing is the shower and things are sounding to "getting water absolutely everywhere"
28-04-2011 16:53 #58
We get the allowance for both. We are applying now for payment because its pretty hard for me to find a job that would be flexible enough for all of their appointments. We have 2-3 regular appointments a week including early intervention
28-04-2011 17:11 #59
Isn't it ridiculous the hoops you have to jump thru?! There's no reason either of you should get rejected. We got approved for allowance, but not payment, go figure. We meet the income criteria, but need to provide more info of her care?? I dunno, for us it would be an extra $10 a fortnight and every bit helps, but I seriously don't have the energy to chase up yet another lot of paperwork. Why do CL need the same info again and again?!
Forever Mine, you just have to fight every step of the way, don't you
I hope it all comes together for you really soon. I swear when you finally get your CF dx you should sue your local hospital (I am anti-suing, but I'd make an exception in your case). You should be reimbursed for all the tests and trauma your family, especially Willow have been thru
MHW, you have 2 children with SN, don't you? I would get your Paed to do the paperwork, but like Forever Mine said, I think if you appeal they will give it to you. Sometimes I wonder if they're just testing to see if you really think you deserve it.
Someone started a thread a while ago about the financial cost of having an SN child, actually I'm pretty sure I told you Forever Mine that you shouldn't have so many expenses lol! I should have shut my mouth cos ever since I said that we've had ongoing costs. And no one reimburses you, no one cares how much your daily life costs and the carers allowance barely covers the meds and formula
How is everyone's weeks going anyway? We spent the night in hospital last night for RSV, but all is good with us
28-04-2011 17:22 #60
We werent going to bother because of what DH earns we wont get much.
But the lady i spoke to said its definatly worth it because if you are on carer payment (even if its just $1) yu are automatically entitled to full FTB and also get a pension card which meand cheaper rego and other things
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