Dh and I found ourselves in this situation when pregnant with ds2.
Following the nuchal scan we were advised our child was high risk of; Downs syndrome, Trisomy 13 Patua syndrome and Trisomy 18 Edwards syndrome.
A short definition of trisomy 13 and 18 means baby would have severe mental retardation and many physical birth defects, organ failure and most babies die before their first birthday. (losing a baby after birth was more heartbreaking for us to think about than it happening whilst I was pregnant)
We had talked previously what we would do if we were faced with this and the decision was mutual that we would terminate.
The 2 weeks following the biopsy were the worst of our lives, I shed so many tears, I was a mess. We went to church every day and prayed our baby was spared of these syndromes. Our thoughts were still to terminate if baby did have any 3 of these syndromes.
In our opinion if our baby wasn't healthy to enjoy quality of life it wouldn't be fair to bring him into the world. We also took into account the financial pressure, hospital trips and the life of struggle we may have had ahead of us and decided it also wouldn't be fair on us.
Thankfully our baby boys results came back clear, we were overjoyed and relieved. Connor is now 8mths old.
Until your actually in the situation you don't know how you would would feel or what you would do.
View Poll Results: Would you continue your pregnancy if...?
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Results 91 to 100 of 163
25-11-2011 17:44 #91
25-11-2011 17:45 #92
I'm not sure. I really don't think I could know until I was in the position.
25-11-2011 19:46 #93
I would continue - we don't have the testing done so we wouldn't know in any case. I could never make that decision.
25-11-2011 19:50 #94
I used to think I would continue the pregnancy. Now after the last few days on here I really don't know. I would really have to consider how much the baby would suffer - it wouldn't be about the burden of looking after a disabled child, it would be quality of life that would be the main factor in my decision.
26-11-2011 14:21 #95
A few people have said on here that they wouldn't know cos they didn't have the testing done. Did you guys not have the 20 week scan? Because that is when many of the issues are picked up... Many more things can go wrong aside from DS and spina bifida
26-11-2011 14:41 #96-
- Join Date
- Sep 2010
Most likely not.
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26-11-2011 14:47 #97Senior Member
- Join Date
- Oct 2011
yes unless it was life threatening to the baby, I never got the blood work for downs because it wouldnt matter to me, I was pretty shocked when they told me at the DR office it was so I could abort if it came back the baby would have downs, made me sad but each person knows their limits but for me not an option
26-11-2011 14:56 #98
Yes I would continue the pregnancy.
26-11-2011 15:22 #99
Last edited by Electric Rodeo; 22-12-2011 at 13:05.
26-11-2011 15:31 #100
To be painfully honest, I don't value human life above all else, and I don't think that all lives are worth living. I have asked my husband to take care of things should I ever go down the path of a mind-destroying disease like Alzheimer's. I am strongly pro-euthanasia, and view medical termination in the same light.
I have been fortunate enough to never face this decision, and as our family is complete I now know that I never will. However, should I have had a baby with a disease, disability or deformity that I would not be prepared to live with myself, I would not bring them into the world to suffer it. As their mother I am their voice and would do my best to make the decision on their behalf.
My heart goes out to all who are faced with this.
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