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  1. #1
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    Default severe reflux and failure to thrive

    Our little man is currently 13 weeks old. we have struggled with slow weight gain (60gms a week) since birth. Born term and 3.2kgs. He has had 3 admissions to the royal childrens hosp for aspiration at 2 weeks of age, and 2 more for failure to thrive. We have tried everything for his relflux, omeprozole, domperidone, bed proping, thickners, gaviscon ect. He has has an abdo ultrasound, barium meal and tests for metabolic disorders. All normal.

    On our last admission, the doctors (who are stuck for ideas, calling our little Luca 'the mystery baby!) think he may also have a cows milk protein allergy. He was commenced on neocate, and has had good weight gains. Still vomitting large amounts however. It was extremly hard to take my exclusively BF baby of the breast and onto formula..

    The doctors are pulling at strings as DS has no common symptoms of an allergy. I am still struggling with not BF (as i am also a midwife!!). After much research i find that this allergy does not necessarily mean that they baby has to be placed on formula. The mother can simply removed dairy from her diet.....

    we go back to the doctors monday for a check up..
    When we go back im going to ask for a trial of fortified breast milk, to see if this has any difference.

    so my questions are;

    * Has anyone had a baby with a cows milk protein allergy still BF, and still thrive?

    * Has anyone had a baby with severe reflux also not thrive?



    Any help or advice would be much appreciated!
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  2. #2
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    hi rissa1, my daughter should reply, but I'll just pop in My grandson has severe allergy to all dairy and egg, but for the first 6 months, he was getting excema on his face which was the way the allergy presented itself. Once he was tested and Veronica cut all dairy and egg from her diet, the excema cleared totally. He has never failed to thrive, but the allergy was fixed once his mum changed her diet. He is still bfing, and going great. Marie.

  3. #3
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    Hey

    Im not a breast feeder as DD has more issues then the milk protein intolerance so it wasnt possible But DD does have servere reflux and FTT.

    DD is now four and have done alot of readng on what I could do if I have another. baby the same ( god help me lol ) Anyway i have reserched on breast feeding a bub witch such issues and with protein intolerance it s very possile, Alot have to cut out dairy and goats milk as they are simalar proteins and stil go through to the EBM, and also soy as they is another really hard protein for them to digest, Where you may run into trouble is if bubs also has problems matabolising fats and sugars such as lactose, the reason being is EBM is very high in lactose. From what you have said it doesnt sound like lactose or fats are an issue so you should be all good on that front.

    Here is some info have come across about soy and dary derivertves that may help

    List of Soy Derivatives:
    Gum arabic (not soy, but some can react)
    Bulking agent
    Carob (not soy, but some react)
    Emulsifier
    Guar gum (not soy, but some can react)
    Hydrolyzed vegetable protein (HVP)
    Lecithin* (not considered an allergen in most as it's soy protein free)
    Miso
    MSG (Monosodium glutamate) !
    Protein
    Protein extender
    Soy Flour
    Soy nuts
    Soy panthenol
    Soy protein
    Soy protein isolate or concentrate
    Soy sauce
    Soybean
    Soybean oil (not considered an allergen in most as it's soy protein free)
    Stabilizer
    Starch
    Textured vegetable protein (TVP)
    Thickener
    Tofu
    Vegetable broth
    Vegetable gum
    Vegetable starch

    Dairy Derivatives:
    artificial butter flavor
    butter
    butter fat
    butter oil
    buttermilk
    casein (casein hydrosylate)
    Caseinates (in all forms)
    Cheese
    Cream
    Cottage cheese
    Curds
    Custard
    Ghee
    Half & Half
    LactalbuminLactalbumin phosphate
    Lactoferrin
    Lactulose
    Milk (in all forms including condensed, derivative, dry, evaporated, goat’smilk, and milk for other animals, low-fat, malted, milkfat, non-fat, powder, protein, skimmed, solids, whole).
    Nougat
    Naturlose (sweetener derived from whey)
    Pudding
    Rennet casein
    Sour cream
    Sour cream solids
    Sour milk solids
    Tagatose (sweetener derived from whey)
    Whey (in all forms)
    Yogurt

    According to FAAN, These products DO NOT contain milk:
    Calcium Lactate
    Calcium Stearoyl Lactylate
    Cocoa Butter
    Cream of Tarter
    Lactic Acid (however, lactic acid starter culture may contain milk)
    Oleoresin
    Sodium lactate
    Sodium Stearoyl Lactylate

    This is a list of dairy and soy free safe foods

    Breakfast
    Alphabits Cereal
    Bisquick - original and reduced fat
    Cheerios
    Ore Ida hash browns
    Plain Oatmeal
    Post Shredded Wheat
    Puffed Rice
    Rice Chex
    Rice Krispies Cereal
    Sara Lee Bagels (plain & cinnamon raisin are definitely okay – double check any other flavors)
    Whole Kids Waffles
    Lunch/Dinner/Easy Prep
    Applesauce
    Armour Jumbo Beef Hot Dogs
    365 Tater Tots
    BK French Fries (may be cooked in soy oil)
    Black Olives
    Bush’s Best Baked Beans Original
    Chef Boyardee Rice with Chicken & Vegetables
    Dinty Moore Beef Stew (confirmed)
    Dole Tropical Fruit Salad
    French Fries
    Fruits & veggies (no sauce or butter) are okay, as are any unprocessed, unbreaded meats
    Green Olives
    Ian's Chicken Nuggets
    Ian's Sweet Potato Fries
    McDonald's Hamburgers (no bun -- it has soy flour)
    McDonald's French Fries (may be cooked in soy oil)
    McDonald’s Chicken select strips
    Pasta
    Roads End Organic Mac & Cheese
    Shelton's Turkey Dogs
    Tyson Chicken Nuggets
    Yorkshire Farms Hot Dogs
    Yukon Gold Rissole Potatoes with Garden Herbs
    Yukon Gold Julienne Fries with Sea Salt (1. http://www.alexiafoods.com)
    Snacks
    Betty Crocker Fruit SnacksChi-Chi's Salsa
    Desert Trading Co. Black Bean Dip
    Dominick's Animal Cookies
    Gerber Fruit Snacks
    Healthy Times HuggaBear Cookies*
    Healthy Times Teddy Puffs
    Honey Maid Graham Crackers - contains soy oil
    Jello
    Jet-Puffed Marshmallows
    Jewel Oatmeal Cookies
    Jiffy muffin Mixes -- blueberry, apple cinnamon & corn (just use rice milk instead of cow's milk)
    Kroger low sodium Rice cakes
    Mother's Plain no sodium Rice cakes
    Nabisco Fun Fruits
    Nabisco fruit snacks (Gerber & Betty Crocker are fine too)
    Nature's Choice cereal bars*
    Newman's Own Alphabet Cookies (Graham & Arrowroot - now contain a warning that they are made in a factory with
    peanuts, nuts & dairy)
    Newman's Own Pretzels
    President's Choice Animal Crackers
    Pringles (original) - contains soy oil
    Rice crackers
    Rold Gold Pretzels
    Store brand Rice Cakes (plain)
    Super Pretzels (http://www.superpretzel.com/)
    Trader Joe's Potato Sticks
    Triscuits
    Tyson chicken nuggets
    Veggie Chips (Whole Foods Brand - no veggie booty, though, it has soy)
    Veggie chunks (fresh cooked)
    Wheatables
    Desserts
    Edy's Whole Fruit Frozen Fruit Bars (I found these to have guar gum in them which is a soy derivative, but the Edy's sorbet is safe)
    Rice Dream Frozen Dessert
    Milk
    Rice Milk (365, Rice Dream; Pacific Foods contains guar gum & carob bean gum, which many soy-allergic folks cannot tolerate.)
    You can substitute rice milk for cow's milk in most recipes with no problem.
    Bread
    Sara Lee Bagels (check labels as not all are safe)
    Iron Kids Bread
    Margarine
    canola oilFleishmann’s Light IN THE TUB
    Fleischman's light UNSALTED sticks
    Mother’s Margarine – ONLY during Passover
    Baking/Cooking
    Canola Oil
    Chocolate baking chips from
    Countrys Delight Semi-Sweet Chocolate Chips (contains lecithin - not confirmed if soy or egg derived)
    Distilled Vinegar
    Duncan Hines Butter Flavor Cake Mix
    French's Zesty Deli Style Mustard
    Hellman’s Light Mayonnaise
    Hershey's Chocolate Syrup
    Ketchup - Heinz is confirmed safe
    Lard
    Lipton Recipe Secrets - Savory Herb with Garlic
    Olive Oil
    Savion Chocolate Cake Mix
    Spectrum Shortening
    Baby Food
    Gerber Lil Entrees -- Turkey & Green Bean Dices and Chicken & Veggies varieties
    Gerber Lil Entrees -- Turkey w/Green Beans & Sweet Potatoes & Chicken w/Apples varieties
    Gerber Graduates - Turkey & Rice Stew
    Gerber Graduates - Chicken Stew
    Kid Cuisine Franks & Beans (beware -- this can get messy!!!)
    President's Choice Animal Crackers
    Calcium and Vitamins
    Nature's Plus Calcium Supplement (also corn free)
    Yummi Vegetarian Multivitamin
    Yummi Calcium Supplement

    IF you need to eliminate further here are the other lists
    Egg:
    Albumin
    Binder
    Coagulant
    Egg white
    Egg yolk or yellow
    Emulsifier Globulin
    Lecithin
    Livetin
    Lysozyme
    Ovalbumin
    Ovamucin Ovamucoid
    Ovovitellin
    Powdered egg
    Vitellin
    Whole egg

    Corn:
    Acetic acidAlcohol
    Alpha tocopherol
    Artificial flavorings
    Artificial sweeteners
    Ascorbates
    Ascorbic acid
    Baking powder
    Barley malt
    Bleached flour
    Blended sugar (sugaridextrose) Brown sugar
    Calcium citrate
    Calcium fumarate
    Calcium gluconate
    Calcium lactateCalcium magnesium acetate (CMA)
    Calcium stearate
    Calcium stearoyl lactylate
    Caramel and caramel color
    Cellulose microcrystalline
    Cellulose, methyl
    Cellulose, powdered
    Cetearyl glucoside
    Choline chloride
    Citric acid
    Citrus cloud emulsion (CCS)
    Coco glycerides (cocoglycerides)
    Confectioners sugar
    Corn alcohol, corn gluten
    Corn extract
    Corn flour
    Corn oil, corn oil margarine
    Corn starch
    Corn sweetener, corn sugar
    Corn syrup, corn syrup solids
    Corn, popcorn, cornmeal
    Cornstarch, cornflour
    Crosscarmellose sodium
    Crystalline fructose
    Cyclodextrin
    Decyl glucoside
    Decyl polyglucose
    Dextrin
    Dextrose (also found in IV solutions)
    Dextrose anything (such as monohydrate or anhydrous)
    d-Gluconic acid
    Distilled white vinegar Drying agent
    Erythorbic acid
    Ethanol
    Ethocel 20
    Ethyl acetate
    Ethyl maltol
    Ethylcellulose
    Flavorings
    Food starch
    Fructose Fruit juice concentrate Fumaric acid
    Germ/germ meal
    Gluconate
    Gluconic acid
    Glucono delta-lactone
    Gluconolactone
    Glucose
    Glucose syrup (also found in IV solutions)
    Glutamate
    Gluten
    Gluten feed/meal
    Glycerides
    Glycerin
    Glycerol
    Golden syrup
    Grits
    High fructose corn syrup
    Hominy
    Honey
    Hydrolyzed corn
    Hydrolyzed corn protein
    Hydrolyzed vegetable protein
    Hydroxypropyl methylcellulose pthalate (HPMCP)
    Inositol
    Invert syrup or sugar
    Iodized salt
    Lactate
    Lactic acid
    Lauryl glucoside
    Lecithin
    Linoleic acid
    Lysine
    Magnesium fumarate
    Maize
    Malic acid
    Malonic acidMalt syrup from corn (barley malt is fine)
    Malt, malt extract
    Maltitol
    Maltodextrin
    Maltol
    Maltose
    Mannitol Methyl gluceth
    Methyl glucose
    Methyl glucoside
    Modified cellulose gumModified corn starch
    Modified food starch
    Molasses (corn syrup may be present; know your product)
    Mono and di glycerides
    Monosodium glutamate
    MSG
    Natural flavorings
    Olestra/Olean
    Polydextrose
    Polysorbates (e.g. Polysorbate 80)
    Polyvinyl acetate
    Potassium citrate
    Potassium fumarate
    Potassium gluconate
    Powdered sugar
    Pregelatinized starch
    Propylene glycol
    Propylene glycol monostearate
    Saccharin
    Salt (iodized salt)
    Sodium carboxymethylcellulose
    Sodium citrate
    Sodium erythorbate
    Sodium fumarate
    Sodium lactate
    Sodium starch glycolate
    Sodium stearoyl fumarate
    Sorbate
    Sorbic acid
    Sorbitan
    Sorbitan monooleate
    Sorbitan tri-oleate
    Sorbitol
    Sorghum (not all is bad; the syrup and/or grain CAN be mixed with corn)
    Starch (any kind that's not specified)
    Stearic acidStearoyls
    Sucrose
    Sugar (not identified as cane or beet) Tocopherol (vitamin E)
    Treacle (aka golden syrup)
    Triethyl citrate
    Unmodified starch
    Vanilla, natural flavoring
    Vanilla, pure or extract
    Vanillin
    Vegetable anything that's not specific Vinyl acetate
    Vitamin C and Vitamin E
    Vitamins
    Xanthan gum
    Xylitol
    Yeast
    Zea mays
    Zein

    Wheat:
    barley
    beer
    bran
    bread crumbs
    bulgur
    cereal extract
    couccous
    cracker meal
    dextrin
    distilled vinegar
    durum, durum flour
    enriched flour
    farina
    gluten
    graham flour
    high gluten flour
    high protein flour
    malt
    rye
    seitan
    semolina
    soft wheat flour
    spelt
    vital gluten
    wheat (bran, germ, gluten, malt, starch)
    whiskey
    whole wheat berries
    whole wheat flour

    Ingredients that MAY indicate presence of wheat:
    gelantinized starch
    hydrolyzed vegetable protein
    modified food starch
    modified starch
    natural flavoring
    soy sauce
    starch
    vegetable gum
    vegetable starch

    Peanuts:
    Artificial nuts
    Beer nuts
    Cold pressed, expelled, or extruded peanut oil
    Goobers
    Ground nuts
    Mandelonas
    Mixed nuts
    Monkey nuts
    Nutmeat
    Nut pieces
    Peanut
    Peanut butter
    Peanut flour

    MAY indicate the presence of peanut protein:
    African, Asian (especially Chinese, Indian, Indonesian, Thai, and Vietnamese), and Mexican dishes
    Baked goods (pastries, cookies, etc.)
    Candy (including chocolate candy)
    Chili
    Egg rolls
    Enchilada sauce
    Flavoring (including natural and artificial)
    Marzipan
    Nougat


    Hope that helps

  4. #4
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    Default Reflux and Failure to Thrive - Eosinophilic oEsophagtis?

    Hi,
    My daugther is 6 years old now, so this is from memory but I had similar issues with my daughter she had failure to thrive which started when she was 4 months old. The reflux came a bit later on. I eliminated dairy and egg from my diet and continued to breastfeed until she was 12 months old, the only formula we were offered back then was Peptijunior which she still reacted to so I had no other option but to breastfeed. Looking back I really wish I hadn't persisted to breastfeed because she just didn't grow on my milk, as it turns out it was many many allergens I was eating not just milk and egg that were causing the problems, so we think anyway. My daugther is on Neocate now though, even at age 6 because she still has failure to thrive and has severe allergies. She started Neocate when she was 18 months old because after many tests that didn't show any problems and she still didn't show improvement we were referred to a gastroenterologist for an endoscopy - she was diagnosed with Eosinophilic oEsophagitis (google it for more info) it is often misdiagnosed as GERD and is not a very commonly known disease. If you think some of the symptoms fit then I would suggest you talk to your doctor about it - it can be a long hard road to a diagnosis and whatever your child has, you know best and if you feel things are still not right then you just have to persist. The baby years of weight gain are near impossible to catch up on if they have missed out on it. Good luck....
    Sarah


 

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