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  1. #101
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    yea the not knowng when theyre coming home was the hardest part for me aswell. i found it helpful to focus on all of the lil acheivements like coming out of the humidi crib and then coming out of the canmed bed (hospital bassinet with a water bed underneath to help keep them warm) that way it felt a lil less overwhelming. as far as im aware alot of iugr babies have heads that are bigger than there bodies. i think it has something to do with the body protecting the brain and therefore giving the bulk of the nutrients to the head rather than the body (sorry if that doesn't make sense). ur lil man will be home soon

  2. #102
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    its very common for IUGR babies to have big heads. its kinda like their head is a 'normal' baby head size but their bodies are just smaller and skinnier... its actually a good thing (even tho it might not seem right now) because their brains are developing normally and are the size they 'should' be IYKWIM.
    my son is now 1yr and he still has a boof head!!!

  3. #103
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    Yep, I also found the uncertainty one of the hardest things. Uncertainty about when they can come home, uncertainty about what caused the growth restriction, and uncertainty about what treatment they'll end up needing.

    I also struggled with the feeling of loss of control. My baby was in ICU for just over a week, and SCU for a week and I didn't even get to hold him until he was 7 days old. The hospital staff would make decisions about his treatment and what to do next and then just inform me. Or else tell me 'this is what needs to happen' and wait for me to give it the rubber stamp of approval. He didn't feel like my baby, he felt like the hospital's baby. Things would happen overnight and I'd just be informed about them. And I had no input into his routine eg when to bath him etc. All of this was understandable and necessary, but it did contribute to a feeling of isolation and powerlessness.

    It does pass though. And now when I look back on that time I try and think of the positives - I got to sleep at night while he was cared for and fed by caring, experienced nurses. It's like having the world's best nannies. And I also took inspiration from the stories of all the premmies in the nursery with us. They were so much tinier than my boy and had so many battles ahead and yet were doing so well. In some way I feel lucky to have caught a glimpse into how our medical system is able to make these babies healthy and strong and to have met some amazing nurses and doctors and parents. One nurse in particular was just awesome. Its like a whole alternate world that most people never see.

    I'm not trying to be Pollyanna about it though - I was devastated to be in the situation we were in and it was the most difficult time of my life. But in the bad there were kernels of good, iykwim.

    Big hugs to anyone who has had to go through it, or is going through it right now.

    Rose.

  4. #104
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    we're home... he now weights 2.45 kg... and it's weird though when he came home.. he lost 45 grams .. i don't know if that\s normal or anything but i don't want him going back to the hospital.. i think it has something to do with the food.. in the hospital they were giving him my milk with a fortifier to make a 24 calories instead of 20 calories... but now that im home i don't have the fortifier.. they just told me to put 1 scoop of powder milk in 300ml of breast milk.. see the problem is since i came home.. he isn't sleeping at all.. and i have had some trouble extracting the milk (cause he won't breastfeed i have to extract).. i'm worried that his weight's gonna drop.. hope not.

  5. #105
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    hi guys.. i have a question.. how much weight did u'r baby gain after birth??? my son was born at 3.10 and he is now 6.10 exactly but it's been 2 months since his birth.. is it a little slow??? i can't seem to notice any change in him.. he's stil so tiny and small.. he now looks like a newborn baby.. we're u'r babies the same?

  6. #106
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    I'm sorry - I don't know pounds to kilo conversion. My DS was born at 2.1kg and at 10 weeks is now 4.2kg. At 2 months he was about 3.7kg. He goes through growth spurts - some weeks he puts on almost nothing then the next week he'll put on 400g.

    I've been told that the important thing is they don't drop off their own curve on the weight charts. If you plot him on the charts at the back of your baby health book he should follow a nice curve even if below the lines on their graph. My DS is still off the chart but following his own curve nicely so his paed is happy. And yep, my son still looks much like a newborn too.

    If you're worried, give your paed a call and check.

  7. #107
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    okay, just done the conversions with an online calculator. So he's 2.7kg now, is that right? And came home at 2.45kg last month? If I've got that right then that might be a little slow. Maybe call your doctor and check. They'll know your baby and know whats considered good for them in their circumstances.

    Good luck. I hope all is okay.

  8. #108
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    yeah.. well if it's in kg.. my son was born at 1.660kg.. he.s now 2.9 kg.. so i just wwondered how the other babies grew.. and my doc isn't that much of a help.. she rarely sees iugr babies.. i think my son is the first one.. so she expects him to pick up the growth of a normal baby.. she's always telling me how he's under the curbe.. or something like that.. she sent me to see a specialist for himm.. because his liver enxsymes were too high.. so now i have to go to a specialist to see what;s wrong with him... it;s so scary.

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    I hope the specialist either gives you the all okay or is very helpful. These early days are a scary time. 1.3kg gain is probably quite decent given how small he was. He's almost doubled birthweight which is good, I think.

    Good luck.

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    My daughter was born 2.02kg or 4lb7oz and came home at 1.88kg. When she was 1 month old she was 3.12kg and at 2 months she was 3.99kg.
    We were ofter congratulated on our new born even 5 months after she was born!!! When she was 10 weeks old i had to go into hospital for an operation and my husband was walking the hallways with her so i could sleep and he bumped into a new proud father with his 4.4kg brand new bub whom was almost double the size of our 10week old daughter!!!
    My best advise is make sure you get your bub weighed every month so that you can keep a close eye on your growth charts. If they start to slip then insist on seeing a specialist.
    Our girl stopped putting on weight and growing at 4 months and she has now been diagnosed with multiple food allergies. At first people just thought i was paranoid but i knew something was not right and eventually they saw. Definatley go with your gut instinct if your worried push for more info and see another Dr.

    Just for interests sake does any other iugr bubs have food allergies, i wondered if there was a link at all??


 

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