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  1. #11
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    Hi Nic - I am so sorry to read of your losses. I had 5 consecutive losses so I have some idea as to what you may be feeling right now.

    After my 5th loss at 11.5 weeks (bubs died at 8.5 weeks but my body didn't realise it), I went to the recurrent miscarriage clinic at Royal Women's in Melbourne. Where are you located?

    These are the tests they ran:

    * lupus anticoagulant
    * anti dsDNA antibodies
    * anti endomyseal antibodies
    * anti cardiolipin antibodies
    * anti nuclear antibodies
    * extractable nuclear antigen antibodies
    * activated protein c resistance
    * prothrombin gene mutation
    * homocysteine
    * protein c deficiency
    * protein s deficiency
    * antithrombin III deficiency
    * factor XII levels

    Took about 10 vials of blood. As it turns out, I have lupus anticoagulant AND Prothrombin Gene Mutation (inherited disorder). In other words, my blood clots too much and they think it cuts off blood supply to babies. My treatment is like Gabi's - low dose aspirin while ttc, and then clexane injections (a type of heparin) plus low dose aspirin while pregnant. I am almost 28 weeks and no problems so far.

    Not all that much is known about recurrent loss, and many regular OBs don't know about many of these tests and appropriate treatments. If you can see a specialist of any sort that has experience with recurrent loss, I would urge you to do so. If it weren't for the recurrent miscarriage clinic here (and it's part of the public system so all free), I would not be where I am now - previous OBs had no idea.

    Best of luck to you. Feel free to PM me if you need more info.

    - Jules

  2. #12
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    Eco Goddess is offline Loving life under the Bodhi tree!
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    Quote Originally Posted by olibecham View Post
    ahhh nic, so sorry to hear your news.

    as you know im in the same boat. ive had some tests also and should get some results back by tomorrow. im hoping they find something so that they can fix it.

    im also going to try acupuncture and chinese herbs (first appt. tomorrow) as ive heard some promising success stories.

    i dont know about you but i want to be pregnant again ASAP. im just not sure if thats the best thing. how are you feeling?

    anyway im feeling your pain, it feels like a bit of a cruel joke to me but we're going to keep trying... once more anyway.

    bec
    It sucks to know that other people are in the same situation I wouldtn wish this on anyone.
    Let me know how you go with the acupuncture and herbs...I'm prepared to try ANYTHING!


    Quote Originally Posted by iveturned40 View Post
    I am so sorry Nic to hear this. I too have asked for a battery of tests previously on loss and everything comes back fine for me. We are off to see my ob next week again and I am going to request another laparoscopy as I fear my endo has grown back (judging by my AF pain!!). I dont think there is any harm in asking your ob for a laparoscopy. I didnt even know I had endo until he went in for a look and discovered it in a large balloon hanging off my right ovary. Also my right tube is blocked. Anyway, hang in there. Wait till you feel a little more clear headed, take your list and see what he says. Let us know what happens. You are still young, so I know egg age is not an issue with you...it is with me.

    Huge hugs Nic
    Thanks, the specialist did say that if it happened again he would arrange a laproscopy to check things out.

    Quote Originally Posted by needinghelp View Post
    Hi Nic

    so so sorry for your loss

    I am probably sounding like a broken record on this website but if it helps someone from avoiding the pain of losing a pregnancy then it is worth it.

    When you get your thyroid checked don't accept "It is normal". Ask for the actual number and ask for T3 and T4 to be tested as well. Thyroid is just TSH which is the standard test.

    If your number is above 2 ask to see a specialist (encrinologist? I think)or have it further checked out because it has to be below 2 to sustain a pregnancy.

    Hope this helps and more
    Thanks - you have given me more of an idea about the thyroid issue - I will be asking for details of my results and further testing if need be!

    Quote Originally Posted by CrazyJ View Post
    Hi Nic - I am so sorry to read of your losses. I had 5 consecutive losses so I have some idea as to what you may be feeling right now.

    After my 5th loss at 11.5 weeks (bubs died at 8.5 weeks but my body didn't realise it), I went to the recurrent miscarriage clinic at Royal Women's in Melbourne. Where are you located?

    These are the tests they ran:

    * lupus anticoagulant
    * anti dsDNA antibodies
    * anti endomyseal antibodies
    * anti cardiolipin antibodies
    * anti nuclear antibodies
    * extractable nuclear antigen antibodies
    * activated protein c resistance
    * prothrombin gene mutation
    * homocysteine
    * protein c deficiency
    * protein s deficiency
    * antithrombin III deficiency
    * factor XII levels

    Took about 10 vials of blood. As it turns out, I have lupus anticoagulant AND Prothrombin Gene Mutation (inherited disorder). In other words, my blood clots too much and they think it cuts off blood supply to babies. My treatment is like Gabi's - low dose aspirin while ttc, and then clexane injections (a type of heparin) plus low dose aspirin while pregnant. I am almost 28 weeks and no problems so far.

    Not all that much is known about recurrent loss, and many regular OBs don't know about many of these tests and appropriate treatments. If you can see a specialist of any sort that has experience with recurrent loss, I would urge you to do so. If it weren't for the recurrent miscarriage clinic here (and it's part of the public system so all free), I would not be where I am now - previous OBs had no idea.

    Best of luck to you. Feel free to PM me if you need more info.

    - Jules
    That is one great list of tests! I am in Newcastle, NSW... the specialist I have been referred to is great and he also works for Sydney IVF, so has a lot of knowledge in the area. Thanks so much for all of that info...hopefully I can get somewhere!

  3. #13
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    Hi nic

    sending you big hugs - i had all the same tests that CrazyJ mentions in her list....they didn't find anything but it helped to cross things off the list.

    I am also a big fan of chinese medicine and acupuncture and believe that that treatment is what has helped me sustain this pregnancy. It has given me such a sense of well being.

    I wish you so so well with this and hope you are ok. you are in my thoughts

    sue x

  4. #14
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    Hi Nic - I am glad you are seeing someone who has an idea!! Best of luck to you. Maybe print off that list and give it to him.

    I forgot to mention that when we started to ttc again after our last loss, I had a few rounds of acupuncture and also did the very foul smelling and tasting chinese herbal tea for only around 1 - 2 cycles, then I fell pregnant with this bub. I did not continue traditional chinese herbs once I got my BFP b/c I was just too scared. But I have to wonder if acu and TCM helped me.

    - Jules

  5. #15
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    Hi MiniNic

    I had that huge list of tests that CrazyJ mentioned - 14 vials of blood. That FS also referred me for a HSG (dye in the uterus to look for abnormalities, fibroids etc). 9 months later, my new FS finally got DS to do a SA and looks like subnormal morphology (pretty standard test) and fragmentation (newer test that they called sperm chromatim structure assay I think at QFG) have caused our 5 m/cs.

    Thinking of you.

  6. #16
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    mini-nic

    I had a similarly long list of tests - I think CrazyJ's pretty much covers it. When I changed specialist, the new one also insisted on DNA fragmentation on your partner. It's great that your RE is with Sydney IVF also as they were the first group in Aus to start testing DNA fragmentation and also have techniques to solve the problem which have shown good success. There's also natural killer cells which have been shown to play a role in 1st trimester loss - another new area which Drs may not automatically test for. But, I'd suggest pushing for it as it can be treated.

    Also, progesterone tests when you're pregnant again - ask for some serial progesterone tests along with the hCG. Sometimes the corpus luteum slows down production too early (before the placenta is functioning enough). A drop in progesterone can cause the uterus to start shedding lining but can also have less visible effects, such as lowering your immune resistance to the bub.

    I really wish you didn't have to go through all of this. You're an amazingly strong woman.

  7. #17
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    Hi Nic,
    This might be an old story that I hope you get over it!
    I'm in the same boat now. Had three miscarriages in a row and now advised to visit the recurrent miscarriage clinic at John Hunter Hospital.
    I just would like to know who are the specialist that you were with? Is it better to go to a private specialist or to the clinic at JHH?
    Appreciate your help!!

    Heba

  8. #18
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    Hi Heba!

    This is an old thread BUT I have been through EPAS at JHH three times - just make sure they do FULL bloods and that everything is covered. There is one lovely nurse there that I was impressed with and one final doctor/ob that took the initiative to check what bloods had been done and go through and work out the ones that had been missed.

    I wasn't impressed with the fetal medical unit at all or the person who was in charge. I found them slack and didn't check that everything had been tested and refused me medications that would have saved one of our baby's life. The fetal medical unit also failed to return any of my calls, nor could I get through to them on several occasions when an u/s showed that there was a placental issue and our baby could have been saved if they'd checked it out.

    It is fine to go through EPAS, but then I would go through a private fertility specialist. It may take a while to get in, but ask to go on their waiting list and if you can they also offer an emergency waiting list for appts available at the last minute that I've been able to score with our own fs in the past.

    I'm sorry to hear that you're going through this. One step at a time - go and get checked out and see if a reason can be found. Hopefully it is something that is easy to prevent happening again.

  9. The Following User Says Thank You to Little Ted For This Useful Post:

    Heba  (17-10-2014)

  10. #19
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    Thank you Little Ted for your reply. That was really helpful!
    I have a specialist who I've seen few times before, and she did some blood tests after my 2nd miscarriage. Because she was away at the time the third loss happened, I got referred to JHH EPAS. I liked how the nurses were caring and one of the nurses there suggested to me to go through the recurrent miscarriages unit. That's why I was a bit unsure where to go and follow up and whether JHH will provide better assessment and caring!? But with your story and feedback about the fetal unit, I might prefer to go again and follow up with my specialist..
    Thanks again!!


 

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