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  1. #971
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    Quote Originally Posted by mamapanda View Post
    Hi there. I'm not sure where to post - if I'm allowed to post here - as my little guy has not been diagnosed.
    He's 2.6 years old.
    We had a development assessment done when he was 20 months. He scored very low for communication and was diagnosed with language delay. Have seen a paediatrician who has said that its a possibility he's on the spectrum but wants to hold off til he's a little older as its not clear.
    Have been trying to find a forum or Facebook group where could talk to parents in similar situation but haven't had much luck.
    Welcome. I have a 2.5yr old that is under 4 specialists and waiting for screening. I'm happy to chat more with you if you need it. I also have an 8yr old aspie. They do like to hold off on diagnosis until they are 3 but can put it off until they are at school (my oldest).

  2. #972
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    Thank you for welcoming me. I just feel so alone sometimes. My hubby is the only one who seems to understand (sometimes), although even he seems to think I get to worked up about worrying bout little man. My mum seems to think I'm just being a worrier!
    Some of his signs are language delay (receptive and expressive), repetitive behaviour especially when tired like opening and closing doors, echolalia, delayed in gestures like pointing and waving. He seems to 'zone out' a lot.
    Sometimes it's more obvious than other times like it comes in waves or something. We have just started him on iron a couple months ago as we found out he was anaemic, and for a while after we thought wow what a difference, but he seems to have regressed again.
    He's always seemed different to other children/babies his age but it's hard to explain why.
    Anyway just need to get off my chest thanks.

  3. #973
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    White Mage is offline Today has been cancelled, go back to bed.
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    Yes welcome mumma panda.
    You are doing the right thing and that is what matters.

    My eldest was diagnosed at 4. In the meantime we did speech therapy through the Medicare health plan.
    I also got into a good Early
    Intervention Service.

    Some good building blocks to start.

  4. #974
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    Thanks, he has NDIS funding for the language delay so we have been doing speech therapy

  5. #975
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    Another trip to emergency with my little boy. I hate having to put him through it but I just can't hold him down sometimes. For the little things like a blood nose. Just needed his nose pinched for a few minutes and we were good to go. But the screaming! We looked like a horror movie with all the blood he was coughing up and snorting. He is ok now but I'm not. I couldn't keep my head.

  6. #976
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    Quote Originally Posted by Sookie Stackedhouse View Post
    Another trip to emergency with my little boy. I hate having to put him through it but I just can't hold him down sometimes. For the little things like a blood nose. Just needed his nose pinched for a few minutes and we were good to go. But the screaming! We looked like a horror movie with all the blood he was coughing up and snorting. He is ok now but I'm not. I couldn't keep my head.
    Oh no... I have no words just sending you big hugs

  7. #977
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    Quote Originally Posted by mamapanda View Post
    Hi there. I'm not sure where to post - if I'm allowed to post here - as my little guy has not been diagnosed.
    He's 2.6 years old.
    We had a development assessment done when he was 20 months. He scored very low for communication and was diagnosed with language delay. Have seen a paediatrician who has said that its a possibility he's on the spectrum but wants to hold off til he's a little older as its not clear.
    Have been trying to find a forum or Facebook group where could talk to parents in similar situation but haven't had much luck.
    Welcome. Hope we can be a shoulder to cry on when you need it and a sounding board for any questions you might have. My son is a month off 4 and has only recently been officially diagnosed. It was a dark time before it and to be honest it feels much the same now we just have more paper work. It's taken us a long time to get here, we started on this road when he was just over 2. I was told the same as you and they wanted to wait and see... My son still doesn't talk much but is starting to talk a little more every day.

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    Default Awesome Mums of Autistic kids- how many of us are there (#2) ?????????

    Quote Originally Posted by White Mage View Post
    Your not over reacting. Your not being over protective. No.. they don't get it. It's not the same.
    Children generally have a pretty good understanding of boundaries, especially if you set them. And know if Mum or Dad tells them to "GET OFF THE ROAD" it means get off or you are in deep trouble! And for the most part they might listen.
    Tell that to a child with Autism that has selective hearing, tunnel vision, or just blatantly ignores you. Do not understand boundaries and will continue to do that.
    My DS2 is exactly this way, you can have a full conversation with DS2, and know that you are more or less talking to yourself, and you know the moment he will let go of your hand, he will bolt and wont stop if you yell at him to do so.
    This is why I shop online now. 30mins on the PC is much better then 2hrs of me getting angry because DS1 is cutting in front of people, running with a mini trolly, asking me every 10 seconds for something he can't have, or worse taking something out of the store without paying for it.
    While DS2 is crying in distress because he can't take being in aisles because of them being narrow. He gets anxious when he feels confined. Elevators are nightmares.

    DH and I do go off at each other when things with the kids get frustrating. But we understand that we aren't necessarily angry with each other, just the crap situation we are in. ANd we remind each other of this, or else we will start making it personal.
    Quote Originally Posted by Mod-Degrassi View Post
    @bigZ I can very much relate to your frustrations.

    Our DS requires such a high level of supervision because he has no sense of danger. He will just run off.

    There are certain activities like picnics that a lot of families enjoy, but to parents like us it means constantly running around after your child because they won't just sit down like the other children. They won't eat and enjoy the food that everyone else happily eats. They will want to do the same thing over and over, and will crack it when you try and redirect them. IT'S HARD.

    We took DS on a ferry ride on the weekend and he repeatedly asked to go swimming in the water. I have no doubt he'd jump in there if he didn't have adequate supervision.

    For us, the good moments outweigh the tough times, but when we do have those really rough moments or rough days, it's like a firm kick in the guts.
    Quote Originally Posted by White Mage View Post
    Yep Degrassi has it right.

    Ds1 is my no1 public offender.

    Went to a kiddy farm with 4 of my DIG friends. And while their kids happily fed feed to the farm animals. There is me running after my DS2 2 fields away.

    Went to one of those park picnic parties. Kids are all hanging around the playground. Again my DS2 is chasing birds trees away. Spent my time trying to distract him with food. But he kept stealing other kids cupcakes to suck the icing off.
    OMG yes to the icing, he would live off icing and sugar if we let him. I have seen him lick icing off a cupcake and then when his brothers are looking the other way he sneaks up and swaps his licked one for their icing covered cupcake.

    Yes to everything else as well thanks ladies, you've put into perfect words exactly how it happens. So good to know I'm not alone or just being "crazy" thanks for letting me vent here 😘

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    Quote Originally Posted by bigZ View Post
    Welcome. Hope we can be a shoulder to cry on when you need it and a sounding board for any questions you might have. My son is a month off 4 and has only recently been officially diagnosed. It was a dark time before it and to be honest it feels much the same now we just have more paper work. It's taken us a long time to get here, we started on this road when he was just over 2. I was told the same as you and they wanted to wait and see... My son still doesn't talk much but is starting to talk a little more every day.
    Thank you.

    One thing that confuses me tho is Mr T is generally a very mellow little man. He has mini meltdowns every now and then but I don't think it's too full on.

  10. #980
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    Quote Originally Posted by Sookie Stackedhouse View Post
    Another trip to emergency with my little boy. I hate having to put him through it but I just can't hold him down sometimes. For the little things like a blood nose. Just needed his nose pinched for a few minutes and we were good to go. But the screaming! We looked like a horror movie with all the blood he was coughing up and snorting. He is ok now but I'm not. I couldn't keep my head.
    How is he going Sookie???


 

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