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  1. #81
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    MyFourCubs is offline MyThreeCubs plus one- I am the luckiest Mum in the world...
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    Hi everyone I'm bouncing because for the first time in days I actually managed to read your posts and keep up with them and understand them- even Sarah's!! (Thank youf or the ABA stuff am absolutley going to try and implement those stradegies with Alex.) Thanks also letitia for that website, just had a quick look and will definately start printing stuff out!

    Well I haven't taken the 3rd lot of my additional meds today and feel quite focused, I don't know what to do really. All my dr has given me on top of my usual meds is slow release paracetamol- that's all it is, (I don't do real pain meds they freak me out,) so I don't understand why they are having such an effect on me but seriously, I take them and a while later I feel like I am dosed up to the eye balls- foggy and bloody awful. It is freaking me out. Maybe I should cut it to one instead of 2 tablets? I can't stand the amount of pain i'm in but really it's a joke, I need to be able to function and I am just so bloody tired ANYHOO< will post now while I am coherent! Have even been able to post a few other things on the forum as well!

    Lettia don't ever apologise for being a downder, you are the sparkliest, happiest person on this partuicular forum and we love you for it! It must be so hard for you right now, I wish I had advice to help. I so worry about when alex is bigger and I can't physically restrain him anymore. I would def talk to the paed- how much can you take?

    Kylie thanks so much for your PM you are too lovely, I am glad all is ok with you atm. How is Jock going at school??

    Sarah I feel that way about alex often when I see other kids, it's hard when you are confronted with just how different they are. But sophie is making good ground and in a few years, who knows? You may see hardly a difference at all! (This is what I PRAY FOR EVERY NIGHT!!!!!!!!!!!!!!!!!!!) I think you have more chance tham me here, sadly.

    Porridge I really hope your week is going better. We can all relate, believe me- Alex was KING of the meltdowns and he still has them, thankfully less frequently. I guess you need to remember that on top of the autism he is a 2 year old- this seems to be the worst phase and hopefully he will settle down soon. It's awful when you have a day that is supposed to be great and it isn't. You can't control them you can't "make" them good, I think that's the hardest thing about it. Oh, Alex is obsessed with thomas too and it has caused MANY MANY a meltdown!! Can you carry some thomas stuff to distract him? Trains, books that kind of thing? That's what we have to do.

    Scrapmad what exactly is PDD-NOS? I feel a bit dumb here but I don't understand what it stands for exactly. Whatever it is, a dx is the starting point for the help you need and you need it- take as much as is offered.

    Well, Alex is going GREAT at pre school which is fantastic, have given up on TT for a bit at the advice of his teacher. She says he shows no sighns of toilet readiness and is concerned we will hinder his progress in other areas if we force it. Sucky but I do see her point. We are having a lot of power struggles with alex, he is obsessed with the computer and I do think visuals will help (should have done it ages ago!) so will get busy printing and laminating. (Think ALDI has laminators for $23 this week!)

    I as you all know am not great but have started working for my friends company 4-6 hours a week, just office stuff, invoicing etc, MYOB- SO need the break and the extra csah will be nice too!

    Well hope I was coherent enough tonight, have to be at the girl guides shop first thing in the morning as Claudia is making her "Guide promise" next week and of coarse I leave it to the last minute to find the shop is open tommorrow morning- that's it!! serves me right for being so disorganised.

    HUGS to everyone, hope y'all are well xxx
    Last edited by MyFourCubs; 13-03-2009 at 22:57.

  2. #82
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    Hi ladies,
    Wanted to introduce myself...I have two kids, my oldest little man is 5 and has autism. Jas my daughter is 3 and in true girl style, thinks she rules the world hehe.

    I wanted to tell you (as you all know, every child with autism is different but) life seems to be getting a bit eaiser as Ty is getting older. So hope is out there, I think its all down hill from the diagnosis..(which is by far the most difficult thing to go through!!)

    So dont forget to breath and take some time for yourselves. You will get there

  3. #83
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    Hi all, how is your Saturday???
    Mine is boring, lol. Kids are playing the Wii, chores are (mostly) done, it is cold and very wet - am grateful for the rain though-, and my darling Craig is up in Sydney having a wonderful time at the pub with lots of our (Navy gunbuster) mates, post freedom of entry march. And I am here with the kids like every other weekend it seems. Am sick of not going anywhere during the w/end cause it is too hard with Jock and the other kids, I either can't be in enough places at once or think Jock will be frightened, have multiple meltdowns or something, there always seems to be a reason to not go to anything interesting, ya know. Somethings I could go to, but I need more hands, and most of my friends down here have their own families to deal with. Guess it is something I'll have to deal with until the end of the year...just gives me the sh*ts.
    Anyway, enough of my pity party.
    Sara, good to get a coherant post from you, LOL. I get majorly out of it on panadol, especially if I am already worn down, so i think I would have much the same result from taking those meds too...doesn't do much for your pain though, does it, if you stop taking them. Have you seen a natropath, maybe they could give you other ways of easing the discomfort? Good luck with the working a day as well now. I am so not brave enough to consider working yet...good to see Alex is enjoying kinder, and the TT will work soon enough, so don't stress.
    Oh, and PDD-NOS stands for prevasive developmental disorder - not otherwise specified. It is sometimes classed as atypical autism, usually they use that one when the child is obviously on the spectrum, but doesn't have enough criteria to say, yep, it's autism, YKWIM? That's how it was described to me, anyway.
    Letitia, hang in there lady, I know the feeling about hanging out to change the meds, I can't believe I am hanging for Jock to see the peads, but I am sick of him injuring members of the family.
    Sarah, I think it is probably harder when your autisitc child is your eldest, because you are not doing the unconscious comparisons that parents do to the older kids, ya know. For me sending jock to preschool was terrifying and stuff, but it wasn't as big a shock seeing him surrounded by NT kids, cause I aready had that at home...does that make any sense? I am sure she will have a good time, and with all the hard work you and the therapists put in, she will do great. And as for the millions of things still to be done, well we all have those days/weeks/lives, believe me!
    SMM2K...what can I say, you are awesome taking on uni with all the other stuff in your life!! Autism QLD should hopefully be able to point you in the direction of respite services in your area too, if not, try any local special schools, they often have all that info at hand, and see if maybe you can organise respite, even if it is only a couple of hours to do some study each week.
    Hi TyJas, welcome. Come here as often as you want to pass on your words of wisdom, and regale with your kids accomplishments. I have 3 girls, and they think the world should do what they want too, lol.
    Rosie, where are you??? Hope you are hanging in there and the house hunting is going well. ry not to commit hari kari, though I am sure you are tempted with life going as it is at the moment.
    Well, think I have caught everybody up. Have to go change a stinky 6 year old now...the day he stops doing 2's in his pants, I will be throwing a , for sure.

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    Hi ladies,
    No personals *again* from me today sorry, just a quick fly-by while DS sleeps on the couch .. he could wake at any moment so I have to take 'me' time where I can

    We've had a copy of the diagnosis sent to AQld so we should get a call from them any day now to organise an initial appointment .. things are better for me now that I've sorta come to terms with what this means for us as a family, although I hesitate to use the word 'Autistic' when it comes to my son because he is on the higher-functioning end of the spectrum and when people look at him they don't see a classical cause of autism IYKWIM? It's hard having to explain why he behaves the way he does sometimes you know?

    Ah well, we'll get there come hell or high water!

  5. #85
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    MyFourCubs is offline MyThreeCubs plus one- I am the luckiest Mum in the world...
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    Hey guys, still here and coherent lol, but Hannah is sick, has been in my arms all night and I ahve just popped her down in our bed and she won't last long so I'lkl be quick!

    Kylie I tried every naturapath under the sun when I first got sick- spent a BOMB, you have no idea! My goodness I tried bowen therapy and kinesiology and spiritual healing, bloody everything alternative and the main****** ones thrown in as well! I finally gave in to actual pain meds about 4 years ago as I just hit the wall and could no longer function and nothing had worked. I am on amitryptlaline which is actually an anti depressant but in lowish doses is a pain med- I don't do antiinflammatories, morphin type stuff or anything like that- bloody good thing if paracetamol knocks me around! I see me chiro regularly and I treat myslef to a chinese massage when I get time- very very rarely. I do take a heap of alternative meds too, but so far found no cure. Crap huh? I look at Alex sometimes and it doesn't suprise me that he has all his problems when you look where he came from- depresses me more really as it just kind of confirms how unwell I am iynwim. Anyway, sorry- long rambling answer to a very quick question! I would also be bummed about being home every weekend alone while your hubby is away. Would SUCK actually, I really wish we lived closer and we could all hang out!

    Wecome Tyjas- feel free to hang around anytimes you like! We can all be a bit mad but in a good way I think, lol.

    Hey scrapmad (can we know your real name or something shorter? I feel like I'm insulting you if I call you scrappy!!

    Hope all you guys are well and having a good weekend, Hannah still quiet but tis late so am going to bed.


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    oh dear it is very late and am trying to sobber up to prevent a hang over, (lots of water after a big night.) I just wanted to ask a question;

    In a few months I am going to try and concieve a girl only because autism is 4 times more likely in boys. This will be my third baby. (I promise no more trying to sobber up...I am very well behaved while preggers.)

    Please don't get me wrong I love my little man with all my heart!! but if I can avoid the heart ache of another child with disablititys that would be great. It would not worry me to have another boy except for the autism factor.

    So after all that has anyone faced this before? and has the 'shelters method' worked for you?

    uh oh good chance I will regret this message tommorrow lol.
    Last edited by TyJas; 15-03-2009 at 03:35.

  7. #87
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    Another quick one from me ...

    @ calling me scrappy - I can get pretty scrappy when the occasion calls for it you know! My name is actually Stacie but I prefer to be called Stace

    DS is STILL asleep upstairs (in mums bed of course .. he's been co-sleeping with me for the past 3 or so months) so I'm taking the opportunity to get a decent tidy-up done downstairs while I can.. it's amazing at just how destructive a little person can be!

    We had a small victory yesterday - I took DS to a playcentre to let off some excess energy being that our courtyard isn't big enough to swing a cat in. There were at least 2 birthday parties in full swing when we got there, children absolutely everywhere and I was quite worried that DS would meltdown because he doesn't like anyone in his personal space or to be around large groups of children. He did really well actually!! He played quite well with the other children, there were a few pushes and shoves but all in all he behaved himself and I was so proud!

  8. #88
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    hey girls im still here.. (maybe not all my head)

    seth is still saying ball this is freaking awsome.. i am truly excited.. and he can also say hi to a fake phone to his ear.. all while he is in a different environment.. he is unsettled but we are still continuing the gluten free diet

    now im on a laptop so i dont have long.. i hope your all well..

    seth is nearly 2.5years old and ruby nearly 1year

    when ruby is standing he will pay alot more attention to her cant wait till she is walking..


    ok seriously update in a sec. i will make dh find the charger

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    Hi Ladies
    Feeling a little better today. No upset posting today.
    SARA Good to hear you are better but it is a shame you have pain. I can't believe you are now working 1 day and having to deal with you health issues and children. You are amazing. Take care of your self.
    KYLIE You are such a strong lady being on your own all the time. Are you able to take the kids some where for a picnic in a park so they can play and have a nice lunch with you? It must be so hard and I know what you mean by not being able to go out with the kids. Peter is a handful and Emily thinks what her brother does is ok for her to do. She listens to her brother and not me and does what he is saying. Not so good.I really can't wait for friday and get his meds changed. I hope you can find some sort of help in the way of respite so you can do some thing for your self. Take care.
    TYJAS I too have a 6 yr old autistic boy and a 3 yr old girl who thinks she knows every thing too. It must be the age and being a girl that is why she has the attitude she has. I hope we can offer some support and we all come here to vent when we need it.
    Well ladies it is Sunday night and I need to iron uniforms for school and work. I hope you all have a good day tomorrow. Take care talk again soon. Letitia

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    Hi ladies ,

    Sorry I haven't been on for a few days.. Im just going through a seperation with my husband and I hate it .Ethan has been responsding quite bad with the change in routine etc.. I am getting depressed I feel like I'm heading down the post natal depression again .I tried to stop him from going but I feel he is in still denial about Ethan.. He says I act more like a nurse than a mother and that hurts. I would do anything for my son to be the best he can be and I love him to bits.
    Anyway I better go and get some sleep to start another day. so sorry for the sober post .

    Andrea 27
    Ethan 2.5


 

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