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  1. #701
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    Misschief- You are in a pickle. How frustrating. All our kids are different so different. Just like everyone else. No two people are the same, how come just because our kids have a label outsiders automatically think suddenly our kids are all the same and on the same line. They are all unique.

    Having said that, my DS sounds much like yours. Though he is 2, he seems equivlent to a 15-16 month old. He seems to be fairly smart, but he is in his own world so much that he isn't picking up on things a lot of other kids do.

    What is the weighted blanket used for? What other toys or equipment do you use?

  2. #702
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    The weighted blanket gives an extra pressure on his body and muscles which will help him relax at night and hopefully sleep better as well.

    I need to buy "chewy tubes" and Q's and P's (special necklaces) for his oral sensory problem (he is obsessed with chewing, licking and biting everything and anything )
    I also need to buy a disk swing that he can lie on/sit on. It calms him when he's very upset and gets aggressive.
    Oh and a series of DVD's to help with his speech.

    Early Intervention playgroups have closed for 4 weeks. When we get back, they will have all the proper information for me including prices and where to buy.
    Yet when I googled "weighted blankets" I found that they are ridiculously expensive I might even look into making one myself if I can find a pattern.

  3. #703
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    Misschief- Yes thats a good idea. I must google too and see if maybe I could make one. My DS sleeps ok, most of the time, but he is a wriggle worm and moves constantly all night. From one end of his cot to the other, sideways too. Does this sound like your DS? I wonder if it would benefit mine.

    Diamondeyes- Your not wrong, that many peole on that other thread told me to give DS a "break" and leave him alone. I knew something wasn't right.

  4. #704
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    My daughter is nearly 7 and was tested and confirmed at age 4 and a half, she is a bright girl that didn't talk till she was 4 And it was echolia, untill age 5 and still has some echolia, she copies her peers, repeats what they say, she has social problems, still toliet ring issues, she like to hide in a sock ( licra suit) , I had to quit my full time job as she was not drinking eating for any one, got bad dehydration , and constipation issues, so now after 2 years early intervention I'm starting to look after my self agai, also I'm a single mum and not much family support but find it great when you can link in with support groups, happy mothers day every one

  5. #705
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    HI everyone,

    I haven't posted here in ages as I had no news... until now

    DS has just been diagnosed with PDD NOS and probable ADHD. Assessment was a disaster - from 5 till 8pm at night in a tiny office with a nightmare doc with no rappore with kids (or parents in fact)!! So now I'm just trying to get the funding happening to get some help...

    The main thing on my mind ATM is my gorgeous little man - now 4 months old and he's got appauling eye contact and not very happy - in fact he gets really agro often. I worry so much that he's also going to be autistic but who can you talk to?? Noone is interested in a 4 month old baby. So I just play with him and try? to enjoy him as best I can.

    Babydust - wow, it sounds like you've had a very trying time all on your own too... I'm happy to support you as best I can, even though I'm new to this world Glad you're looking after yourself too -what do you do? How's school going for you little girl?

    Anyone else out there that is keen for regular chats and online support??

  6. #706
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    Quote Originally Posted by mum4nay View Post
    HI everyone, I haven't posted here in ages as I had no news... until now DS has just been diagnosed with PDD NOS and probable ADHD. Assessment was a disaster - from 5 till 8pm at night in a tiny office with a nightmare doc with no rappore with kids (or parents in fact)!! So now I'm just trying to get the funding happening to get some help... The main thing on my mind ATM is my gorgeous little man - now 4 months old and he's got appauling eye contact and not very happy - in fact he gets really agro often. I worry so much that he's also going to be autistic but who can you talk to?? Noone is interested in a 4 month old baby. So I just play with him and try? to enjoy him as best I can. Babydust - wow, it sounds like you've had a very trying time all on your own too... I'm happy to support you as best I can, even though I'm new to this world Glad you're looking after yourself too -what do you do? How's school going for you little girl? Anyone else out there that is keen for regular chats and online support??
    Don't worry about your 4month old yet hun If you worry too much, he will definitely sense this. It might contribute to his negative behaviour.....

    Why on earth would they do an assessment on a child from 5pm-8pm???? Kids need to be fed, bathed and tucked in at that time! I know DS would NOT cooperate in any kind of way at that time of night Who did the assessment anyway?

    I got the results in from DS's assessment last week. The assessment was a 2 week process and incredibly thorough. I am very happy with the psychologist who did it. She believes in her professional opinion, that DS does not have autism. However, he was too young for certain tests and wants him re-assessed at 4years old to be completely sure. He does, however, have SPD and GDD with delays in all areas of between 6-10 months. He has started Early Intervention in February already and 2 weeks ago, his daycare finally got approved for the extra funding to get him a 1 on 1 worker for 5 hours each day he's in care. He's been doing sooooooo well since that started.
    He hasn't bitten, headbutted or scratched a child in 2 weeks

    DS's eye contact was shocking when he was a bub. It was his eye contact that set up a big chain of events at the age of 10 months. It was then that we first had to see Early Intervention for an assessment on his milestones and to get tips and advice on how to improve eye contact.

    Now at 2,5yo his eye contact has improved, but still isn't as frequent as we'd like it to be. However, it doesn't mean he is autistic or has Aspergers. He's just delayed with social/communcation skills.
    Yet we keep working on it and hopefully in time he will catch up some of the delay.

    One tip the OT at early Intervention gave me when DS was little, to improve eye contact: People games. Ie: Peekaboo, patty cake, bop him on your legs like a horse, etc.
    When you play the game, you need to pause and watch for his encouragement. If he is excited and/or wants you to continue, he will need to indicate this by looking at your face.
    If he doesn't look at you, you get his attention by giving him a little tickle and when he starts laughing, you continue your game.

    This page has some of the games, explained in more detail. http://teachmetotalk.com/2008/02/23/...bies-toddlers/
    Last edited by Misschief; 22-06-2012 at 22:14.

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    mum4nay  (28-06-2012)

  8. #707
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    Leztanelly, have you heard anything from this Noah's Ark yet? We finally got the funding approved for a 1 on 1 carer for DS at his daycare center, 2 weeks ago.
    So they took a good 6 months to make up their mind. It beats the 9-12 months I was advsed though lol.

    The funding arrived just in time too. With his SPD he has started to bite kids quite badly. He has that oral sensory obsession and whenever he gets angry or frustrated, he bites. It feels good to him.
    Now that he gets the extra care, they can shadow him and act straightaway if they see he is getting agitated or upset.....

  9. #708
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    Hi mum 4 nay,
    at the moment I'm doing volunteer work working at the school tuck shop 2 days a week, but been starting get my confidence back by some consoling , and using respite care, I actually starting to get my daughter sleeping in her own bed at night, I let her choose a new bed and also her medication is working melatonin but it's expensive , she is delayed at school, doesn't use toliet, fussy eater, in her own world but I got some help from dsq to support me at her iep meeting to set up goals , my daughter was recently diagnosed with ADHD as well, and she has a development delay meant , Im doing a social work shop these holidays with her, do a lot ot at home with her, she's starting to read picked up On a few sight words ,

    When I look back she showed signs from birth, but to have autism testing they don't test till they are around 18 months at earliest , my daughter could of had her label back then but I denied it, I keeps getting more opinions till some one said she was deaf completely deaf, so I laughter it of, till it got a lot worse , then I accepted it, and worked with it , 3 years later,

    I wouldn't worry too much at moment But take note when your child starts walking, talking, responding to name, ect i worry if I have more children will they also be autistic as it can be genetic,

    but in the end if they are autistic there is so much support and help,and information, early intervention , they can go on to lead healthy life's with support and a lot of patience , and some times medication and a lot of therapy, it will be ok,

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    Misschief  (23-06-2012),mum4nay  (06-07-2012)

  11. #709
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    Default How to deal pre diagnosis

    Hi dedicated mums out there,

    First of all, what a great job you guys are doing.

    Mum 4 Nay, I am sorry you had to go through that horrible diagnosis. About your 4 month old, it is hard not to worry I know, but as you already know many tricks and techniques to engage your older child, I suggest you try those with your baby. As an early childhood specialist, I encourage parents to find whatever works to engage their child in learning - visuals, kinaesthetics, rhymes, music, stories, clapping etc. There is no one method for any child regardless of level of development or diagnosis. The best thing you can do for your child, autism or not, is provide a stimulating learning environment.

    Baby dust,

    It sounds like you are doing some wonderful things with your daughter. I worked with a six year old autistic girl once and she was one of the most kind and gentle souls I have ever come across. We found that a visual chart for her toilet routine really helped. Perhaps you could try something similar?

    Best of luck and keep up the good work.

  12. The Following 2 Users Say Thank You to HelpAndAdvice For This Useful Post:

    Misschief  (02-07-2012),mum4nay  (06-07-2012)

  13. #710
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    Hi ladies,

    Thanks so much for your postings... I rarely have time to post but mostly read everything every few days or so

    Mischief - I agree, assessing for autism at 5 - 8pm at night is atrocious! It was a private paed and it was all very nightmarish - very very unprofessional eg. bagging out her last patient to us!! We were SHOCKED!! Needless to say, we want a second opinion and we're going through the public system for this. Extremely slow but probably worth the wait. Meanwhile we're having speech and OT anyway - treating the symptoms with good effect so don't feel we're missing out on anything.

    Good news your DS is not ASD - with SPD/DD do you still get the funding for early intervention? Hope so or it must be costing you a bomb!

    THanks heaps for that website - it's amazing! We're doing lots of people games with both our kids!

    Babydust - I agree with above - it sounds like you're doing an amazing job with your daughter. It does take such alot of patience, patience, patience... just coming to realise that now. It's great that you've accepted things and just moving on with it - something that I struggle with

    Did anyone end up finding out about these weighted blankets and can you make them yourself?? My DS when he's unwell likes to sleep on the hard floor or between the mattress and the wall (awful in winter I'd imagine!!). I'm wondering if I should try it out too??

    Anyone's kids got ADHD as well as autism? That was our diagnosis and just wondering how much you can do to help the ADHD apart from meds? DS takes 1 - 2 hours some nights to get to sleep - currently using lots of lullabys and it seems endless trips to the toilet to delay sleep ggrrrrr..........

    Also, anyone doing RDI? Paed thought it would be good for DS but as yet I don't think there's much evidence?? Sounds interesting though?


 

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