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  1. #601
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    Hi poppetfish asked me to drop in here, I never considered it my dd has pdd-nos but to me it's just a develop problem not like autism to me at all... DD is getting alot of extra help and in a year or 2 I've been told we may not notice at all that's why I never considered dropping in...

    DD is 2.5 and has recently said a few sentences "pup sit down" and "where's ????? " we were so happy poppetfish take no notice of what people say your child is special with any stage it doesn't matter what age it is...

    Well since dd goes to speech each week my ds goes to fdc for 4 hours I've been told he isn't passing any milestones for 12-18mths he is 17mths and at one stage they thought he couldn't hear so I've booked him in for paed etc so here we go again...

  2. #602
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    Hi All,

    sorry I have been AWOL for so long. My computer was having HDD problems, and I just got it back today from the shop. Yay!

    I'm sorry to hear some of you guys have been having issues. It is always such a big deal in our house to go out anywhere that isn't on our 'shortlist'. I never take Possum to the shops and hardly ever to the park.

    On the bright side, we have recieved our letters from the DSC and FaHCSIA, so our money problems are [temporarily] solved. I also have a meeting with the local school's principle to discuss Possum's enrollment in pre-school next year. They have had ASD kids before so I am feeling hopeful.

    Bug is now 10 months old. He has 6 teeth, 1 word and he has started balancing. The difference between the two is just so incredible sometimes I can't process it.

    Anyways, I have a lot of catch-up to do and I must run. It a very busy time with birthday parties, moving house and christmas coming up.

    Good luck to all!

    Cheers,
    Monica

  3. #603
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    I had a meeting with the Principle of our local primary school where Possum will be attending pre-primary next year. They have three other students enrolled who are ASD, and one of the pre-primary teachers and one of the year one teachers have been trained to work with ASd kids. They also work with three aides at the moment who have also been trained.

    Amazing.
    Last edited by Jackson84; 02-12-2009 at 11:15.

  4. #604
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    hey everyone!! well its been so incredibly long since ive been in here you prob dont even remember me. and seems to be a lot of new people i dont really know.
    i think i dont come in here much cause it feels like my whole life is consumed by brayden(ds1-6yo-ASD+ODD for those who dont know) and bubhub is kinda my escape. i found bubhub whilst preg or ttc(cant rememeber now) with ds2 Dylan so i guess to me bubhub is about dylan as i mostly chat in his birth group and occassionally venture into other areas like gen chat for a bit of an escape. but sometimes i scroll past and notice the special needs section and i feel guilty for not popping in to say hi and see how everyone is...so here i am

    so we are approaching the end of kindergarten(main******) and he really is not doing too badly i guess. not too great either but you know i think we will stick with it for the moment.
    im terrified of next year and getting a new teacher though, his current one seems to have a reasonable understanding of ASD and she seems to be very patient and understanding with him. i think he is a total pain for her though lol. he constantly refuses to do what he is told is often disrupting everyone. never hands in homework. and is regularly on detention for violence towards others. his reading level is going backwards . last week he pushed one of his best friends to the ground in the toilets then kicked him. im afraid to even go to the scholl as im sure all the other parents must hate me and my son by now.
    on a brighter note he gave me a kiss goodnight last night...first one many months. he dislikes affection and physical contact so thats pretty big for him. he has new friend who lives across the street and they play together all the time. so far so good. only downside is if we have to go out he has major meltdowns cause he is missing out on playing with his friend. and if the friend goes out brayden stands on a ladder peering across the road half the day waiting for him to come home lol.
    im seeing the dr next week about dylan(18 months as yet not asd) as i think we are seeing a few too many asd behaviours . ive brought it up at the drs before and i always get the brush off-he is too young , i am too paranoid etc etc but i heard all that for years with brayden and didnt get a dx till he was 5 and missed the early intervention boat for which i will feel eternally guilty. maybe there was more we could have done for him???
    so back to dylan(srry rambling along as always) he is actually nothing like his brother not aggressive or violent at all which is good and i fel so much more confident about coping with him if he has an asd. the biggest thing at the moment making me think is he avoids eye contact a lot even with us. always with strangers. he does a funny squinty face to avoid people looking at him all the time. he seems to have no social inclination and is terrified of other kids and people. he is very very very sensitve and fearful. unusually placid. big sleep issues. regressive speech patterns, limited and very unclear speech for age. sensory issues. possible emergence of obsessive interests. the list goes on and on. at this point i would imagine he might be apsergers like his brother as he does speak a little etc how does one even get a diagnosis for an 18 month old??? is it possible or will i be told to wait till he is older??


    how is everyone????

    mumjl i dont know how to help, sounds a lot like my son although mine does understand what i say to him he just doesnt care. i wish i had some magic answers for you

    mythreecubs hope u got telstra sorted

    bel1978 i understand how u feel a bit, in many ways im very lucky as my son is very functional in lots of ways (talking, toileting etc) and i almost feel like a fraud being in here but then in many ways he is so so far from a normal 6yo. it seems like as he gets older it is more noticable wheras i had hoped it would be the other way around. i guess a 3 yo who is aggressive and has massive meltdowns is more tolerated than a 6yo iykwim? he hasnt gotten worse its just that the other kids are making much faster progress and so his difficulties have become more obvious
    Last edited by smog; 24-11-2009 at 12:08.

  5. #605
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    Supermum- my dd had the autism test done at 2 take them to a paed, dd had been seen since 18mths at the community centre and now at 2.5y goes to speech she has for a few months now... Paed suggested pre school 1 day a week and next year she will go to 2 days.. My ds is 18mths and not passing any milestones for speech or language he goes to family day care for 4 hrs a week while dd is in speech they have noted with their company that he has a prob and is booked into his paed in Jan.

    It wad sad when u dropped dd at pre school yesterday there was a group of older pre schoolers sitting in the doorway 1 of them said to the other that's sienna she doesn't talk.. I'm felt sad but at the same time dd didn't understand what was said.. I checked with her teacher she told me she was doing well in the 2 yr old room and played with the kids
    Last edited by Bel1978; 25-11-2009 at 05:59.

  6. #606
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    I yelled at a man in a carpark today because he told me Possum needed a smack.

    He then apologised to me and said he didn't know Possum was Autistic, and I said, "Well you shouldn't judge so quick."

    I then spent the next 20 minutes at the shops trying not to cry, and the next hour at home bawling my eyes out.

    And I was having a Good Day.

  7. #607
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    Melly_11 is offline <---------- My little princess is finally coming!
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    Hey guys! Im about 90% sure we will have an autism diagnosis early in the new year.

    My son is Nickolas. He is 3 in Jan, and is a very happy loving little boy. He has some quirks, but most of his problems lie in his verbal skills (or lack of) and understanding of verbal questions etc. They say he only wants to do things on his terms. Nickolas is a twin, and I have another son too who is almost one.

    He doesnt really wanna share things with me and is pretty damn unresponsive sometimes when he is being a naughty little boy.

    Ill have a read through this thread when I dont have him hanging off me lol.

    Nice to meet you all

  8. #608
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    :australia:hi everyone
    It has been so long since i was on here. All is up the creek. Peter has had big melt downs this week at school. (FIRST WEEK!!!!) Feel cr@py and feel a little unsupported at the moment. Have had plenty of issues with him for the last 5 months. Paed got to see a good melt down 2 weeks ago when we had a check up. Peter was punching, kicking, spitting, biting and even pulled my hair. This was nasty stuff and then he was yelling shut up to the paed. We now need to see a psych. We have an appointment on 12th march with a dr who worked at minds and hearts. They now have a practice at Herston in Brissy. Well hope everyone is well and doing better then me. Talk soon.

  9. #609
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    Hi There!!

    It's been so long since I last posted here (Sept - I checked!). And so much has happened.

    Sophie's ABA (Applied Behavioural Analysis) therapy is still going full steam ahead. She's in her second year of Kindergarten (4 year old) and really loves it. We hired another new therapist (Karen) who's really experienced and of course very expensive. But worth her weight in gold. She's brilliant.

    Sophie is a completely different child. She is calm. She is patient. She shares with her little sister (and sometimes doesn't - but hey, that's true of "normal" kids her age). She has very few meltdowns (and these last for a very short time) now, and when I challenge her by changing her routine, or making her wear something she usually wouldn't want to wear: she just shrugs and goes with it (80% of the time - whereas before she would scream and scream 90% of the time!).

    She is speaking in sentences and using pronouns appropriately - even ones like "doesn't" and "hasn't". She doesn't play with toys repetitively but meaningfully and she's developed an imagination. She will often do things like this: pull out something like a washing basket and pretend it's an aeroplane - and no one has ever shown her this - she's made it up herself!
    Although shy she WANTS to talk and play with other kids and will initiate this contact. She's having a birthday party next Monday (she's turning 4!) and the therapist pulled out photos and asked her who she wanted to invite from Kinder and she knew who she wanted! She's affectionate, and wants comfort when she is scared or sad, but more importantly she can TALK about these feelings rather than just screaming or keeping it to herself. She went down the waterslide on the weekend. Not a small one, a big one! A tunnel that splashes water in the face at the bottom, and she goes down over and over and over. She loves it!

    Sophie will do another year of 4 year old kindergarten next year and have ABA all this year and next. But then she'll be off to main****** school and our psych says that an ABA therapist might need to be with her for a term to help her settle in and socialise.

    But otherwise we shouldn't need any more ABA therapy or indeed any other kind of therapy EVER!!! That apart from a little anxiety, stubbornness and quirkiness (that many regular children have) she'll be indistinguishable from neurotypical children.

    So far I estimate this therapy has cost us about $80 000. Worth EVERY cent. Our little girl is incredible and improving at such an amazing rate I can hardly believe that the Sophie I saw 18 months ago and this one are the same.
    :skywriter:

    When this is all over I promise I will support agencies that lobby the government to fund all this for ALL autistic children.

    P.S I've had loads of therapy myself. DH and I are better than ever and doing really brilliantly. Nadia is excellent too, she's divine although a very challenging 2 year old! Eeek...reminds me of her big sister. I have no worries though - she's just too advanced and social to be autistic. I just know it.

    I hope you are all well, I think of you and all the other parents of autistic children out there. Good luck. I will come back but it will be infrequent. Part of the new thing with DH is that I spend less time on the computer

  10. #610
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    Hi guys we have another ASD in the family my son was diagnosed with autism yesterday


 

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