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  1. #381
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    awesome stuff KaM...!

  2. #382
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    does anybody here get the carers payment, for staying home to look after a child with illness/disability?

    Also, KaM, do you have an Allied Health plan? If your GP sets one up medicare will pay speech rebates.

  3. #383
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    Default Introduction

    Hi, hope you don't mind if I join in here?

    My name is Anna and although I've been a member of bubhub for years I haven't posted all that much for a while. Up until last week I thought I had a perfect 3 1/2 year old with a few quirks and a bit of a speech delay and now his preschool have told me they're pretty sure he has an ASD.

    It's been a huge shock and I'm absolutely devastated and unsure as to what this could mean for him and his future.

    We've got an assessment with a paediatrician for his language issues (mitigated echolalia) in just over a week so I guess we'll get more answers then but it would be great to chat with some other mums who have been through this.

    I'm really confused and have heaps of questions which I won't bombard you all with just yet!

  4. #384
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    welcome Anna...i am also in sydney so if you need any information please let me know...where about in sydney are you? PM me if you want some info on where to go/what to do..

    we get the carer allowance for naomi. She has a chromosome disorder and autism. your pead has to fill in the form...it is very handy. we also got the govt helping children with autism package so that is paying therapy this year for us which is ot and st weekly.

    your GP can set up an allied health plan but it is called and enhanced primary care plan and it is 5 sessions basically covered by medicare ( you may pay a little bit out of pocket depending who you see)...this can be used for ot/st or pt or psych. we used ours last year for psych this year i think i may apply to use it for physio for gross motor skills.

    KaM, how did you go today? i am thinking of you guys!!!

  5. #385
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    oh...something funny..i had to go to ikea today with a friend and she has a little boy who is 4 who wanted to go into the play area...we decided to see if naomi could go in also so we went to the front and filled in the forms (i was terrified they would know n wasnt toilet trained and in a pullup..) the lady said " no one in nappies are they?" and my friend jumps in and says "no"...well we put her in and i was worried i would get beeped to say she did a poo or something but no!! they lasted the WHOLE HOUR! i got an hour to myself!! and so i should...if they said anything i would come back with discrimination for sure...so sneaky hehe.

  6. #386
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    Hi Anna,
    Just remember, your son hasn't changed - only his label has.

    If he is ASD a dx will give you lots of support options so that his 'quirks' don't impede on future development. if you're not having huge issues with him at home then it might just be a mild form of ASD.

    I wish somebody had told me that speech delay + quirks could = ASD when possum was 3.5 *sigh* as our new speechy says, it is the luck of the draw with specialists...

  7. #387
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    we had a hard time getting an ASD diagnosis as naomi had other medical/genetic issues....so so hard....finally someone saw it...as much as i hate autism it does open alot of doors for intervention...

  8. #388
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    MyFourCubs is offline MyThreeCubs plus one- I am the luckiest Mum in the world...
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    Ahem Nic, did you not read the part in our contract that says Mums of autistic kids ahve to be martyrs???? A whole HOUR to yourself at Ikea?

    Lol. Good on you, I would ahve been worried sick too, would they have fined you if they saw the nappy?LOl. Tbh I sometimes think it's easier to lok after a kid in nappies than an older toddler who wees in their pants and / or wants to go to the loo every 5 mins!

    Wow you guys ahve been busy since I was last here! Welcome Anna, as we said to the other newbies this week, a dx is a shock, a huge one especially if you don't really see it coming. It is quite devestating and you need time to grieve and work your way through it. I am glad you found us and honestly, it will get better and I agree that your little guy must be on the high functioning end of the spectrum which menas with intervention he will do great

    With a dx of autism you are entitled to funding from the Helping Children With Autism Package. This entitles you to 20 fully funded speech or OT sessions over a calander year, You are also entilted to up to $12000 ($^000 per year over 2 years) of funding for other services including Building Blocks (Aspect,) ABA and a few others. You need to go to the www.fachsia.gov.au website and follow the prompts for details on how to apply.

    I get the carers allowance for Alex- I put off getting it for ages, I think I felt like as I pushed and pushed for a dx then if I walked straight into centrelink with the forms for the allowance it would somehow look like I WANTED him to ahve ASD to gain money from him iynwim. Anyway, I finally did go and put the forms in when I relaised that hsi therapies were sending us broke (this was before the fachsia funding was announced) and I also got a massive back pay that I wasn't at all expecting- about $1900 Now I see that while the carer allowance helps it is nothing compared to what we spend on that child with his gluten free food etc and all his therapies and medical costs so I do not feel bad about it whatsoever!

    The carer payment is different- you are not automatically entiltled to it with a ASD dx, it depends on the severity and / or the related conditions and how badly it impacts on yours and the childs everyday life. It is also means tested whereas the carer allowance is not.

    Alex is on the gluten free diet, he was already allergic to dairy and soy but it is still a big change. Just spent $80 today at the organics place where I get all his food Costs. A. Forune!!! We did just buy a bread maker which is hopefully making it more cost effective for the bread, mind you my dh calculated it was take about 100 loaves before we evened out the cost of the bread maker

    I literally have two kids hanging off me so have to go and finish this later. I apologise for typos don't ahve time to fix them!!!!!!!

  9. #389
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    Dr Blackmore has diagnosed her . . I didnt realise that today was an assessment so it caught me a little by surprise . .

    He said a moderate developmental delay and childhood autism

    Still not sure how I'm feeling . . see how I go when it sinks in properly . .

  10. #390
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    Quote Originally Posted by KaM View Post
    Dr Blackmore has diagnosed her . . I didnt realise that today was an assessment so it caught me a little by surprise . .

    He said a moderate developmental delay and childhood autism

    Still not sure how I'm feeling . . see how I go when it sinks in properly . .



    Jackson84 - i get the payment it covers his gluten free diet...

    Milis - welcome. im rosie and my son seth is 3 in october with an unofficial diagnosis. we are going through the public system.

    naomis mum - hope you enjoyed that hour

    sara - get baking , nice back pay.

    everyone - ruby started clapping yesterday and it hit me for 6. seth didnt do that till over 2

    he said a new word today.. UP!!! woot. still weeing in the toilet but missing heaps coz of the cold loo. dont mind coz im still using nappies lol not undies.

    better go i have to spend time with dh coz its his 25th birthday. he;s old and cranky.. LMAO (inside joke, i dont think 25 is old, its just older then me)


 

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