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  1. #111
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    MyFourCubs is offline MyThreeCubs plus one- I am the luckiest Mum in the world...
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    Great to hear from you again Porridge, that is very encouraging that he is responding to the visuals, still trying to sort out some for Alex, grrrrr... just lackign in motivation at the moment!

    Welcome neostudded, if there is such a strong genetic history of Asbergers then you are probably right. How did it affect you growing up? How did it affect your dad? Obviously you need to amke an appointment with a paed for a proper eassessment and sooner rather than later as the earlier he ahs a dx the earleir he can start intervention. I'm curious to knwo though, havign Asbergers yourslef do you see a need for him to ahve intervention? Does his behaviour seem unusual to you? Sorry if I'm being rude or too confronting just curious.

    Stace that is really exciting about your new house! I hope he deals with the move well and it all goes smoothly.

    Letitia I want his tonsils out now, over them already! Am going to go to the drs and ask for a referral, today he ahd absolutely shocking diarreah from the antibiotics- everywhere, I had to put him in the shower it was disgusting. I work so hard to make his gut healthy and a few doses of ab's and it's out the window even though I'm giving him probiotics as well

    Well the psych was useless. he had no idea about autism, everything he suggested was totally out of Alex's leaugue, would ahve gone completely over his head. I am going to amke an appointment with a psych his speechy reccommended, she is from Aspect and specialises in ASD behaviour, wish I'd known that before we just wasted $150, I think we get some back

    *sigh* just feeling very discouraged. Feel like it's all a bit hopeless. I am angry with myself as I feel I should be strong for him, I know he needs me but it's just like pulling teeth really, I want some fast results!!!!!!!!!!!!!!! if only, huh?

    Anyway, hope you ahve all ahd a good weekend

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    hi girls. things have been hectic here..sorry i havent posted. tomorrow naomi is FINALLY having her ADOS assessment...wish us luck. ill be back for full update afterwards...xx

  3. #113
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    Hi all,
    Just a quickie, cause it is getting late and I need to be in bed, , really tired tonight.
    Had a pretty normal weekend, lol, boring!! So sick of single parenting...yeah I know, signed on for that when I had kids with a sailor, but am really over it in a big way at the moment, and December seems a long way off .
    Anyway, hope all is well for you all.
    Rosie, awesome news about Seth, yay for him! Have you and your DH made any decisions about moving up north? Sure the QLDer's in this thread could help you on the finding services front.
    Sara, had a look for you on FB but there are too many with no pics, so you will have to find me! Sorry life is so hard with Alex at them oment, I know how you feel about wanting the quick fix, wish it would happen like that...can't believe the phsyc was useless to you, some people have no idea, but you would think in their line of work, they would. Good luck with the referral for the tonsills out, I can always give you the name of a great ENT in Sydney if you want and don't mind the travel. She did Jock's grommits and adenoids.
    Porrige, good to see you back again. Fantastic that the visuals have been so helpful for you, I have to tell Jock what we are doing in advance as much as possible so we can talk about it, over and over, just for him to digest the information. Even if we are only going to get some groceries, lol.
    Neostudded, definately worth having your boy assessed, gven the family history, you will probably find it easier to get a dx this early on. That will inturn help you toget services for him as he needs them. I assume you don't notice the differences due to the fact that they seem normal to you, but your mum, being NT, does? What has she mentioned to you??
    Sarah, you are forgiven for life being hectic at the moent, lol. Look forward to hearing how Naomi gets on tomorrow. it all goes well.
    Well, bed beckons, have a good start to the week all.

  4. #114
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    Just thought I would stick my head in here . . I am still a bit bewildered by things . .

    After about a year of trying to get someone to understand that my daughter (who is 3 in about 2 weeks) isnt just a normal toddler nor is she just high strung or spirited . .

    We had been seeing anew paed for a few months . . he did some eliminating of things with blood tests and such . . but about 2 weeks ago as we went in for a check up. . he kind of sat back and watched her a bit and then started writing something . . he said the more he sees her and watches her that he really does think she has some sort of ASD . .

    Ive had this thought myself . . and other professionals have mentioned it as a passing comment . . but most of them just kind of brushed it off as she makes eye contact and is more then happy to give you some cuddles and such . .

    We are in the process of getting an assessment through ASPECT . . I have some other options to chase up but I think that the sooner I can get this the sooner we can really begin the journey . .

    Matilda is very high maintenance .. has a speech delay . . says only a few single words . . has huge mega tantrums . . that can become violent .. has NEVER and I mean NEVER slept well . . even after 2 trips to a sleeping school for a week each time . .doesnt seem to be able to control her emotions and seems very upset after she gets angry and lashes out . . she gets so frustrated also . . especially when I dont understand what she wants and she quickly gets worked up . . she clenches her fists and you can see her shake . . she has the most high pitched squeal also that goes along with the shaking . . there seems to be so many little things that are adding upto a larger picture . . . I really just am hoping for some sort of an answer or a starting point . . I feel like we have been hanging in limbo for so long . .

    Not sure what else to say really . . my name is Krissy . . I am a single mummy and we are from south western sydney . .

    Any advice or suggestions or anything really is greatly appreciated . . I feel stuck in a hole and am not sure how to dig ourselves out!
    Last edited by KaM; 22-03-2009 at 23:24.

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    hugs Krissy.....i know exactly how you feel xxx

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    sara - take it to medicare im sure you will get some back.. also see if you can ask the doctor for a share care plan where you get 20 free sessions (maybe less) with a professional like a psychologist.

    mummyof5 - we have made more arrangements today just staying in vic untill we get seths hearing tested. april 8th. so we dont have anything else stopping us getting his autism assessment.. smart hey lol. omg is your dh coming back in december.. thats such a long way away.. have you got a little hobby you can have or make some activities with the kids. i bet you miss him.. BIG HUGS!

    KaM - its all so scary when you get a few answers even if you had some feeling before hand that you could be right. i noticed in your sig your breastfeeding. does that calm her down when she tantrums or does she refuse then. (sorry just wondering.) all the girls here will be so much support and give you any advice.. also we rant and rave too with no judgement..

    naomis mum - how did you go yesterday ??

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    Welcome neostudded, if there is such a strong genetic history of Asbergers then you are probably right. How did it affect you growing up? How did it affect your dad? Obviously you need to amke an appointment with a paed for a proper eassessment and sooner rather than later as the earlier he ahs a dx the earleir he can start intervention. I'm curious to knwo though, havign Asbergers yourslef do you see a need for him to ahve intervention? Does his behaviour seem unusual to you? Sorry if I'm being rude or too confronting just curious.

    Hello everyone.

    Well, I guess I can't really say how it affected me growing up. Because I was never normal anyway, I am not sure. I used to be a lot worse then I am now.

    I used to have no desire at all to talk to people or have any friendships, I didn't care what people thought of me and I was very bold.

    I still introverted but now I like to have a few close friends and I do talk to people. I go through fazes of being quite social and then I go through fazes of wanting to be completely alone. Being social seems to take my energy away so I need to be alone to be able to "re-charge". lol

    I also still have trouble with non-verbal behavior. Very badly, and I know that, but at the same time I just don't know 'what to do'... I wish I wasn't like that but I just am.

    I am also sensitive or insensitive to sound, light, touch, smell, texture, taste etc. Things like TV just stress me out so badly, and I am quite particular.

    I would not have realized that my sons behavior is not normal unless someone had of pointed it out to me. He is rarely affectionate and rarely gives eye contact, also he is ALWAYS moving. Unless he is eating or sleeping. His body language is different to most toddlers his age.

    I don't really know if intervention would help. Seriously. I just don't know.

    What do they do anyway?
    Has it helped other people?

    I only ever got a small amount of extra help at school, and my mum got help from respite, and I think she got a small amount of money. But even that seems quite minimal.

    I am already planning on home school for Julius, so he will learn one on one. And I would not want respite help, but extra money would probably be helpful. lol Do they still do that?
    Last edited by neostudded; 23-03-2009 at 13:22.

  8. #118
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    hi girls. well we had our ADOS today and Naomi has been diagnosed with Autism. the dev pead is writing the referral to ASPECT for services and now we can get the ball really rolling in terms of helping get services. I am sad, releived and lots of emotions all in one. i really thought he would say no but it was very clear in the assessment just how different she is to the typical child. she showed no empathy, had little initiation, hardly any eye contact, screeched, only did things on her own terms, was aloof, had few gestures, socially odd for example yelled and screeched at the pead and tried to jump on him, little conversational skill and poor language ability and intonation....*sigh*. i knew this was coming but i really thought he would say no....she doesnt meet criteria...but no..she does so this is just another thing to add to her list...he doesnt know if the autism is because of the GLUT1DS, he said they dont have the answers to autism yet, but he is confident that she will improve with time and can be helped with the right early intervention.

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    Quote Originally Posted by naomis mum View Post
    hugs Krissy.....i know exactly how you feel xxx
    Thanks hun

    Quote Originally Posted by SethandRuby'sMum View Post
    KaM - its all so scary when you get a few answers even if you had some feeling before hand that you could be right. i noticed in your sig your breastfeeding. does that calm her down when she tantrums or does she refuse then. (sorry just wondering.) all the girls here will be so much support and give you any advice.. also we rant and rave too with no judgement..
    Its definitely scary . . even with that thought . . each step and being actually told by someone else .. it makes it more real and way more emotional . .

    As a last resort the breast does settle her down . . its more of a sleeping tool then anything as we need all the help we can get in that area!!

    Oh ranting and raving . . I am good at that too!!

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    Quote Originally Posted by naomis mum View Post
    hi girls. well we had our ADOS today and Naomi has been diagnosed with Autism. the dev pead is writing the referral to ASPECT for services and now we can get the ball really rolling in terms of helping get services. I am sad, releived and lots of emotions all in one. i really thought he would say no but it was very clear in the assessment just how different she is to the typical child. she showed no empathy, had little initiation, hardly any eye contact, screeched, only did things on her own terms, was aloof, had few gestures, socially odd for example yelled and screeched at the pead and tried to jump on him, little conversational skill and poor language ability and intonation....*sigh*. i knew this was coming but i really thought he would say no....she doesnt meet criteria...but no..she does so this is just another thing to add to her list...he doesnt know if the autism is because of the GLUT1DS, he said they dont have the answers to autism yet, but he is confident that she will improve with time and can be helped with the right early intervention.
    I think any mother always holds out that bit of hope . . reality can be a big old kick in the teeth sometimes . . . . Just think of all the good things to come . . there will be lots . . and you can now get some much needed extra attention for her!


 

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