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  1. #21
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    Default Are there any docs who can place a Trans-abdominal cerclage in Sydney?

    Hi there,

    Unfortunately we lost our first child this weekend at 19 weeks due to a weak cervix. The vaginal sucture I'd had placed didnt hold because there wasnt enough cervix to grab, and funnelling had already started at 15 weeks.

    Obviously we're heartbroken but are also trying to look to the future and my only option for a successful pregnancy going forward is to have an abdominal cerclage which the doc thinks would be best to place laparoscopically before I get pregnant. However, he doesnt know of anyone in Sydney who has done many of these procedures.

    They're looking into it but as far as we can ascertain, the most experienced specialists that have performed lots of these procedures are in Brisbane or Western Australia.

    Does anyone know of a specialist who can do it in Sydney?

    Ideally one with lots of experience - or would it be worth the risk of having it done by someone who has only done a few of them? If not, I'll have to go interstate.

  2. #22
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    Sorry to hear I lost my little man 2 and a half weeks ago. Yet to have appointment after all the tests but they suspect incompetent cervix. I was too far dilated so I couldn't get a stitch... Was yours preventative or emergent? If you are willing to travel there are some good drs at royal women's that specialise in this. I'm sorry for your loss

  3. #23
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    Default Travel interstate for surgery TAC

    Oh mummymofo, I am so sorry for your loss. Give yourself some time to grieve.
    I travelled to Melbourne from Sydney to have the operation with DR. Alex Ades who works from Royal Womens hospital. ( just google there is some info on this procedure on his website). As far as I am aware no one does it in Sydney and he is quite experienced in doing the surgery laprocopically .The surgery is day procedure but Expect to spend a week in Melbourne, so he can check on you before you are allowed to return home. He was extremely helpful and answered all my questions I had by email, before I even got to Melbourne.

    Good luck

  4. #24
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    Default Transabdominal cerclage in Sydney

    Thanks for the info guys, will def contact Dr Abes.

    Have any of you also heard of a doctor Stephen Lyons as his name was mentioned, along with Dr Robert Ford who could possibly place a transabdominal cerclage?

    Obviously we're still in bits, especially as we got to meet our poor son who died during labour. His bag burst through the stitch and he was born still in the amniotic sac. Just heartbreaking. The docs and midwives were fantastic and are being so supportive.

    I'm going to be closely monitored at the high risk unit at Royal North Shore next time and must say, I'd highly recommend them, unlike Manly Hospital which has been shocking. The midwives are fab but the doctors less so .

    I just wish I'd flown to Perth for an abdominal stitch at 14 weeks after speaking with a Dr Pennell who was willing to do it, but my Manly doc advised against it. Turned out she had no knowledge of the procedure.

    She admitted my cervical stitch was a disaster as there wasn't enough to grab, so it was basically a case of winging it. We gambled and we lost. So regret not flying to Perth there and then.The guilt of my child dying is killing me :-(

    So my advice to anyone with a high risk pregnancy on the northern beaches would be to bypass manly hospital and go straight to RNS, but do your research also. After all this I dont want an abdominal suture put in by someone inexperienced.

    Out of interest, which procedure is best, laparoscopicaly or open surgery caeserian-style? X

  5. #25
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    Default For Woody

    So Saddened to hear about your loss too. Just awful.

    My cervical stitch was a supposedly preventative one after my cervix had shortened from 25mm to just 13mm in a week or so. Then it started funneling at week 18 and was over the day before we'd have been 20 weeks.

    I believe there's a place for vaginal cerclages but in my case, the cervix was already weakened du e to two cone biopsies, being misshapen and having hardly anything left to stitch,

    It's a bloody unfair learning curve isn't it x

  6. #26
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    Were you all put on bedrest with the stitch? The TAC I think I read never requires bedrest, but from the forums I've read the women who were on bedrest lasted much longer. I've been told I won't be given the TAC until I've had a failed TVC (another loss!), but bedrest and a TVC means I'll probably have to sell my business as it has me on my feet all day.

  7. #27
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    Default Tvc

    Hi Woody,

    I find that very heartless that they expect you to go through another one before even considering a TAC. Of course you could go on to have a successful pregnancy, but I can see how you would be hesitant.

    Did you had any scans to measure the cervix length after 12 weeks, or have you had any previous procedures done on it? How far dilated were you?

    I'd had a cone biopsy for pre cancerous cells and because they had to cut away a fair bit of cervix, it was left scarred, weak and very mishapen, so the TVC stitch I had placed at 14 weeks wasn't really strong enough to hold as it didn't have enough tissue to work with. I was already down to 11mm.

    They said bedrest probably wouldn't make much difference so early on but I was to avoid anything strenuous, bending, lifting, sex and no straining on the toilet (TMI).

    Unfortunately I feel the docs should have then referred me to the high risk unit to be monitored because when went there for my morphology scan at 18 weeks, I had already started funneling.

    The specialist was worried and said to cut back on all activities, and that it could give way at any time so they'd monitor me weekly and if I funneled even just 1mm, they'd get me in on bed rest.

    My bosses agreed to let me work from home but unfortunately the cervix gave way at the weekend so before my next appointment.

    I was in a bit of pain over the weekend and started bleeding on Sunday night but as i was already 5cm dilated when i went to hospital, was nothing we could do but hope he could hold in and that infection wouldnt set in. Both long shots and sadly he was born.

    Are you under the care of a high risk unit or obstetrician? because of my previous procedures, my doctors agree that the abdominal stitch is my only hope.

    It may be worth you getting a second opinion as you have so much to lose, and I was told bed rest isn't advisable early on in the pregnancy as can cause its own problems?

    Which state or city are you in?

  8. #28
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    I'm in Melbourne and in june 2nd I had some pain in my back in the morning, I then realized it was coming in waves, so I went to royal women's and they found me 4cm dilated, bulging membranes. They did a swab and found no sign of infection.They took me to l&d but I didn't realize they expected me to give birth... By the morning I still hadn't so they moved me to recovery, put my bed on incline and kept me there (19 weeks)... The ob hoped the membranes would retract so she could place a stitch, but my membranes ruptured before that happened. We agreed to keep me till I got an infection to induce me because I couldn't let go of the hope of a miracle. I lasted till the 11th when I got a fever and had to deliver my little man
    I've never had anything to make me think Id be at risk, no procedures, abortions etc. I've checked my 13 week scan and my cervix was measured at 3.5cm. I'm still waiting for a follow up appointment and referral to one of the specialists at royal women's....

  9. #29
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    Sorry for the delay, we went away for a few days and I didn't have my laptop with me.

    Am so sorry to hear what you have been through and hope they can offer some suggestions for you going forwards. It is horrific and I've already snapped at a few people who mean well but have really peed me off by saying things like, "oh it wasnt meant to be, but at least you know you're fertile and can have another."

    I've got a followup appointment with my gynaecologist next week so will let you know how it goes.

    I'm hoping to get the referral for the abdominal stitch and whatever else I need from him to take to either Dr Ades, Dr Brunello or Dr Umstad as want to get things moving. There are no guarantees but my gynae, like me, believes this is our only option of going full term with future pregnancies.

    Please let me know how you go also and good luck xx

  10. #30
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    My dr doesn't like my chances of seeing dr umstad because he's in such high demand... I sent him my referral but haven't heard back yet... Here's hoping, I've heard such good things about him.

    I might have issues ttc this time, I have some cysts that werent on my ovaries before, i hope there was no damage from infection but the ultrasound report I have to take to my dr in 2 weeks doesn't look good. As if we don't have enough to deal with, I'm starting to think I wasn't meant to be a mother.


 

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