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  1. #71
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    Emily is almost 6 months old. She has a moderate bilateral hearing loss. She also wears hearing aids. So no where near as much of a loss as your daughter.

    Do you know what caused yuor daughters hearing loss?

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    apparently it was genetic. both my partner and i were carrying the gene and unfortunately passed it on to audrey. we now know that we have a 25% chance of the next one having a hearing loss. i don't think i would really be that phased if our next child has an impairment (unless it was worse). we now know what to expect and how to deal with it.

    what caused emily's hearing loss?

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    We dont know. We were the unlucky ones that didnt find a reason. They gave us a 1/6-1/10 chance of the next baby having hearing loss. And like you it really wouldnt bother me because I already understand it all now. But now we are TTC number 2 and Im already scared for the SWISH test at the hospital

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    TTC? sorry, not all up there with the lingo. Of course you are going to be apprehensive when the SWISH test pops up again, not for your own sakes but for the sake of the baby. You want them to be perfect. If they have a hearing loss, you will deal with it in your stride but you are going to be upset for bub because it isn't fair to them. It is a completely normal feeling.

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    TTC mean trying to conceive.

    I know Ill deal with it if and when it happens.

    Where do you go for your Early Learning Program? We go to RIDBC

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    ttc - of course, that makes sense lol.

    We go to the Catherine Sullivan Centre at Strathfield.

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    Hi,

    I just introduced myself in the general section, but thoguht I'd do the same here. I'm Mandy, Mum to three, step-Mum to two and wife to one. I live in country SA.

    My youngest daughter Ella, who we call the Supergirl, has Down syndrome. We found this out two days after she was born, so needless to say, the past year has been an incredible learning curve. Although having a baby with Ds is not something I would have chosen, our family has experienced some amazing moments, and we've met some fabulous people because of having her.

    We are incredibly lucky that so far, she seems to have escaped the many health issues which can affect bubs with Ds.

    Look forward to getting to know you all.

  8. #78
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    boysrgr8 is offline living with a constant look of OMG!
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    Hi Fox in Sox! My son was born with Ds 5 years ago, I completely relate to so much of your post. Lovely to *meet* you.

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    Hi to all, my name is Amy, i have 3 kids, kobe8, Zac 6 and Anaia 1, i am preggo with no 4, Zac was diagnosed with Asperger's, ocd, sensory processing disorder & adhd just before he turned 6, i went to several psycologists and they said it was "just ADD" i knew there was more to his unusual behaviours, he is so smart, can read well and is particularly good at maths, he keeps me on my toes and i woul not have him any other way!!!

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    boysrgr8 is offline living with a constant look of OMG!
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    Hi Amy! Welcome.


 

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