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  1. #101
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    Hi everyone,


    I am a student at UTS and was wondering if anyone will be interested in helping me with answering a few questions? :/ I need your opinions for a report I am currently writing on special needs education. Its aim is to prove that the Snoezelen Room (multi-sensory room) will be of great benefits for a special needs child with their learning progress. If it won't be much of a bother, will you please help me answer some questions? [IMG]file://localhost/Users/sibanlimbu/Library/Caches/TemporaryItems/msoclip/0/clip_image002.png[/IMG]

    Much appreciated..xx

    Q1. Do you feel that education for special needs is an important or unimportant social issue? Please explain.


    Q2. What does special needs education mean to you?


    Q3. Can you describe when you first became aware of children with special needs? What were your initial thoughts and feelings?


    Q4. Do you think children can benefit in regular classroom regimes (“inclusion”) or do you feel it will be more beneficial if they study in special needs schools that have professional guidance?


    Q5. If there were an opportunity to aid these children with difficulties, would you volunteer to take part in it? Why? How would you help them?



    Q6. “The government should focus more on main****** education than special needs education”. How far do you agree with this statement? Please explain.


    Q7. Are you satisfied with the amount of effort put in towards improving the learning environment for children with special needs? Why and why not?

  2. #102
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    hi all i am a single mother of two

    8yr old girl with right hemiplegic cerebral palsy and
    7 yr old boy with classic autism and dd.

    My daughter was diagnosed with cp at the age of 13 months. due to an accident while i was pregnant.
    affecting her right side only, she has regular therapy and botox every six months.

    My son was diagnosed at the age of 4 though presented symptoms at around the age of 2-3 yrs.
    he is non verbal also and attends a special needs school.

    And one on the way due 11/7/12

    lovely to meet you all

  3. #103
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    Hi Lil Lee Lee and welcome... sounds like you've got your work cut out for you. My daughter has CP too, hers is spastic & dystonic quad level 4 but when she's sitting down you'd never know. She can talk the leg off a chair, lol.

    Is your daughter very affected? You must be exhausted by the end of the day coping with two lively young ones as well as being pregnant (congrats btw).

    I hope to see you around the place and look forward to chatting with you some more.

  4. #104
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    Hiya Prickle

    hehe yes my daughter is much the same these days, talks and talks LOL... she also has dystonia to her right side... very mild also compared to what she was a few years ago... she didnt walk until she was four, little trooper walked 2 days before christmas, it was amazing!!!
    Most of people can't tell unless she's wearing her splint and even then they think shes broke her leg LOL!

    I do ok actually, exhausting tho yes hehe I'm not even sure how i do it all but i just do hehe, thanks for the congrats, yeesh, ive only got a little over four months to go now ,but it is very exciting...

    Lovely to meet you too and hope to chat with you again soon

  5. The Following User Says Thank You to Lil Lee Lee For This Useful Post:

    Prickle  (31-08-2012)

  6. #105
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    Default New year

    Hi,

    I'm 35, and consider myself lucky to be the mother of a wonderful 4 year old girl who at 7.5 months old got sick. At the time I called the health maternal nurse & doctor. They disregarded my concerns when she first got ill. Most likely thinking me to be a neurotic first time mum.

    As it turns out, after a day spent running around trying to get someone to look at her, I ended up in Box Hill hospital (it was closer than RCH & I was running out of time) with a baby showing signs of Pneumonia. In fact by the time I got to the hospital I was administering 1st aid in the emergency triage ward. They saw her immediately. It turns out she didn't have Pneumonia, she had Meningitis (bacterial). So this neurotic Mum is very happy to be able to tell you about her beautiful girl. Because I came so very close to loosing her.

    3.5 years later she is currently under going assessment to see if there are further issues going on other than the ones we already know about. I join this forum, in tears, exhausted, hurt & angry for my daughter that has in many cases been overlooked, despite my efforts. I have found this system to be vile & completely of unsupportive of the child & carers' of that child. (I have sneaking suspicion that I'm one of many to feel this way.)

    I would love to hear your stories, adventures, laugh, cry, even yes scream and compare notes.

  7. #106
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    Achievements:Topaz Star - 500 posts
    Hi Everyone.
    I am not sure if I should be posting on here.
    I am 29 DH is 33 DS almost 5 and we are 12 weeks pregnant ( Possibly twins).

    My Son is 5 in a month and has Microtia Atrasia. He was born with 1 ear.
    The other didn't develop past the cochlear. We call it his little ear like Nemo's lucky fin.
    We are going through the process of getting him a Bone anchored Hearing aid so he will not suffer at school. I have home schooled him to make sure he developed in all the ways I could help. He is a smart boy with a little OCD. He was tested for Autism at 2 and I was told he might be but that they wouldn't send him for testing yet. I have a follow up in a few weeks (a year later).

    All of you are very strong and the most loving parents your children could ever ask for. I have read all of the posts on here and feel I have been so very lucky to know what little I have read of you all. Your an inspiration!!

  8. #107
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    Hi everyone, I think this thread is a wonderful idea! I haven't posted here before but my daughter is 4 months and has seizures. After lots of tests and time in hospital they still have no diagnosis, though they suspect glucose transporter deficiency, where the brain can't use glucose for fuel. I am terrified because they have told us she might not develop normally, but actually they really have no idea and we'll just have to wait and see.... Not knowing is hard.

  9. #108
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    Hi all!

    I am new to this forum and really wanting advice and support for what could possibly be the most stressful yet positive experience of my life!

    I am a single Mum of 2 wonderful children, Bella who is 5 and Ben who is 3. We currently live in CHCH, NZ and there are several reasons I want to move including weather (always cold), lifestyle and wanting new beginnings.

    My current situation is that I live in a home I own, I work 3 times a week, Bella is at school and I have a live-in au pair who looks after my son when I'm at work. The children see their father very infrequently and he does not mind that I want to move overseas.

    My son has Cystic Fibrosis and is currently being assessed as to whether he also has Coeliacs disease (they are 95% certain). His 3 years has been fraught with hospital admissions, ill health and gut problems. I am hoping that a change in diet and lifestyle will improve his health no end (the cold weather here means endless colds/chest infections)

    I am hoping that I can carry on with a similar situation in Brisbane...working part time, Bella attending a new school and getting an au pair to help out with Ben, so I want to know how things work over here? Au pairs are heavily funded by the govt so I hardly pay anything, but I believe that is quite different in Oz? I also am curious whether Ben will be entitled to subsidised drugs as he is in NZ?

    Also, what are people's opinions on suburbs in Brisbane? I have my SIL who lives in Bald Hills, so would prefer to stay semi-close to her. I don't want to be paying a huge amount for a rental ($300 max for 3 bed, if poss) and I'd also prefer to be close to schools, shops, transport, etc. As I'm a nurse I am hoping that I would be able to get a job also that is close to where I live.

    I know this is a huge message, but so many questions! I'm really determined to do this despite most people telling me I'm nuts, as I want a better life for myself and my kids, and really, life is too short eh?

    Look forward to getting to know some like minded people :-)

    Sorry for copying and pasting from other intro thread!

  10. #109
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    Hi shell,
    what a massive life change that will be! I live about 5-10 mins from bald hills. I don't think I can answer any of your questions with any certainty. I'm not sure how Medicare works until your are an aus citizen and am just figuring out child care rebate for myself. But get in touch when you make the move. Sounds like you are a very dedicated mum!

  11. #110
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    Hi all you lovely mummas,

    I started reading everyones threads until i seen how many there actually were!!
    Im been on this forum for some time but this is the first time ive actually looked for some support through the SN section.

    Im a 24yo mumma of 2 beautiful munchkins.
    Cooper is almost 3yo and had a rough start at life. He had bilateral pleural effusions, chylothorax, pneumothorax, fetal hydrops and many other issues at birth. There were a fewe points where we were called in to say our goodbyes. Luckily for us he fought on and we got to keep him! He has a heart murmur and an ASD. He is suspected to have blood pooling storage disorder. He has unexplained leg pains, has feeding issues, is delayed in most areas (although is doing quite well), low muscle tone so tires quickly. He has lasting lung troubles from when he was a bub, they are thought to be unsersized and underfunctioning. He suffers repeat Bronc and usually ends up in hosp needing o2 and tube feeds.
    About 18mo ago we seen Genetics and realised all of this stems from a genetic condition called Noonans Syndrome.
    He is likely to be of short stature, he has mild NS features, he has the classic heart conditions, heamatology issues.
    Thats just the tip of our day to day life - ill let you know more later.

    Then we have Addison who is 8.5mo. She was born in picture perfect health

    Looking foward to getting to know you other mummas - i included a few of Coopers issues so that anyone with similar things would feel a bit more ready in replying


 

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