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  1. #1
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    Default Any one else with an Epi Pen kid??

    My daughter has an Epi Pen for allergies to walnuts and peanuts. She goes back soon (when I remember to make an appointment) for tests to see if her allergies are getting better/worse/same but I dont hold out high hopes for them to get better since her reactions were pretty big last year. I wish more than anything she would outgrow them but at 6yo it's not likely.

    Just wondering if there are any other mums out there struggling through this like we are?? Anyone??

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    Hi Anne My 3 year old DD has anaphylaxis to peanuts, she has only had one anaphylactic reaction but it was scary as all hell, she stopped breathing & turned all purple & bruised looking I constantly worry about her & am still a little anal about what goes in her mouth & can be a little OTT with friends & family when they cook for us She had her latest appointment just a few months ago & she's still dangerously allergic & unfortunately unlikely to outgrow it When was your DD diagnosed?

    Ciao,
    Brooke.

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    Quote Originally Posted by DB&O View Post
    Hi Anne My 3 year old DD has anaphylaxis to peanuts, she has only had one anaphylactic reaction but it was scary as all hell, she stopped breathing & turned all purple & bruised looking I constantly worry about her & am still a little anal about what goes in her mouth & can be a little OTT with friends & family when they cook for us She had her latest appointment just a few months ago & she's still dangerously allergic & unfortunately unlikely to outgrow it When was your DD diagnosed?

    Ciao,
    Brooke.
    My DD had her one and only reaction on xmas eve 2006 so she was 4 1/2yo. I hadnt given her nuts before this because she has cousins on her dads side with nut allergy and I was scared to try her. She ate some slice with walnuts and within half an hour she progressed from a slight cough and itching to vomiting, struggling to breathe and going limp with her eyes rolling back. Quite scary to see.

    Her skin prick tests showed her to have a worse reaction to peanuts than walnuts so I'd hate to see what happens if she eats those!

    I find now she's at school to be really scary. She knows not to accept food from anyone else but it's still a worry. I just pray that her reaction is "slow" enough that they can get her treatment in time should anything happen.

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    Quote Originally Posted by missie_mack View Post
    Seems most people with allergies tend to suffer quite a few
    My daughter hasnt actually been tested for anything except nuts, but I have no reason to suspect anything else as she's eaten most things by now with no troubles.

    Eggs would be hard, so many things have egg in them! We have a friend who's daughter was very allergic to eggs but has outgrown it. I wish all kids could outgrow their allergies

    I still let my daughter eat everything even if it's labeled "may contain traces" so unless it directly contains nuts she can have it. It's a bit like russian roulette at times as I honestly dont know "how much" would set off a reaction in her but I figure I cant possibly avoid all food and I cant wrap her in cotton wool. All I can do is try my best

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    My DD (now 3) is an epi-pen kid. She has allergies to egg and dairy and until last week allergies to nuts of all kinds!!!! We had her challenged to peanuts in hospital last week with no reaction and will now continue challenging her with other nuts one at a time at home - so fingers crossed with those ones are safe at home. So far no anaphylactic reaction - though we have seen some pretty severe reactions to dairy - that's how we discovered her allergies. It's such a scary thing - and so hard to trust others with DD. Even just yesterday I was at my mothers and asked her to make DD a sandwich. Lucky I checked just before she was about to give it to her - she had used butter! ANd with others who arenlt as aware I have found it really useful to remind them b y saying even just a tiny bit can be harmful - as some think - oh it;s only a little bit ini it. My fingers are crossed she grows out of the egg and dairy allergy before school - so much more room for error there. Good luck.

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    Quote Originally Posted by mummyofmia View Post
    My fingers are crossed she grows out of the egg and dairy allergy before school - so much more room for error there. Good luck.
    You know i was just saying to someone last week that in a way i'm glad my daughter is ONLY allergic to nuts. Ok, so it could kill her, but it seems to me that it's easier to avoid nuts that it would be egg or dairy etc....

    My DD will probably be tested again next month (when I get around to making the booking LOL!) so my fingers are crossed she doesnt have as bad a reaction. My dream of course would be that she's no longer allergic at all, but for now i'll take a reduction in reactions!

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    Missie_Mack - the minimum weight requirement for epipen jnr is only 10kg, but if your child's allergy is extreme, they will give it from 8kg and include in the management plan a note to advice emergency personnel that an overdose of adrenaline has been given.

    DD (22mths) has had an epi pen now for a year (from 8kg). Prior to that we carried 2 amps of adrenaline and syringes. She is allergic to peanut and egg, with milder allergies to other stuff. We don't worry too much about the lesser allergies, as repeated exposure may help her immune system to respond more normally to them over time, though her eczema has been appalling lately.

    What worries me most is when we get TV reports like this clown the other night who was banging on about how we should all be giving highly allergenic foods to babies and that the reason for so many allergies now is that we don't expose them early enough.

    There is a study that suggests this out of the UK, but it refers only to exclusively BF children - the theory being that minute exposure while under the protection of the antibodies in breast milk can help to develop immune protection in the infant against allergens. Unfortunately clown-features didn't go into the details, just made a sweeping and very inaccurate statement heard by thousands of people.

    That sort of thing is just plain dangerous and fuels ignorant minds.

    I actually had a conversation with another parent (not at our kindy) once about how rude it was that 'all these people with precious kids' want to 'ruin' their kid's life by stopping them from taking peanut butter sandwiches to school/kindy. I murmured my agreement and said that I can't believe people don't want me to send DD to kindy with a loaded gun - same potential outcome that either kid could kill someone. Outrageous. Unfortunately it was lost on her.

    Our next test is in Dec and we are doing an oral trial of cooked egg (in a biscuit) in the controlled environment of the specialist's office. Apparently about 50-60% of kids with egg allergy will be allergic to both cooked and raw and unfortunately the skin prick test doesn't discriminate, so the only way we'll know is by a trial. Pity it won't be before her 2nd birthday, as I haven't found a cake recipe yet that responds well to egg-replacer - they all turn out so hard like stale bread.

    All in all, we avoid all nuts and seeds and any products with egg in them. Fortunately, DD has a healthy appetite and doesn't miss what she doesn't know.

    I do worry about the whole school thing, as while egg allergies often subside with time, our allergist told us that one reaction to nuts is reason enough to avoid them for a lifetime, as you may not react for years, but then have a bigger reaction than before.

    I also worry about birthday parties etc as DD gets older. Kids eating ice cream or cake and because so few people make their own food these days, no one knows anymore what the ingredients are. Most people don't realise that ice cream is made with eggs, or that some brands of commercial icecream contain an additive derived from peanuts. Some people are stupid enough to not know that cake is made with eggs!!

    DD has never had a full ana reaction with the closing of the airways, but she's had at least 4 moderately severe reactions. The first was to something unknown (she was still being BF exclusively, so must have been something I ate), with the whole face and eye swelling etc, the second was when I was BF and ate some salad that had peanuts on top that I scraped off - she reacted within about 10mins of starting to BF, the third was to a tiny, tiny 1mm size crumb of Willow's 'guaranteed nut, egg, dairy etc etc free chocolate' and she rashed up and blew up like a balloon within an hour. The last was a couple of weeks ago to Keflex antibiotic, but I was reassured by our allergist that it is most likely she reacted to the pink colouring and next time, to ask for the plain powder and to add honey to it and try that instead.

    Anyway, I've banged on enough as usual. While I'm not happy to see others with this problem, I'm glad to see some people in here. I felt pretty alone last year when I was haunting this thread and I couldn't get anyone else to share their experience and I knew I couldn't be the only one.

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    I forgot to mention - if anyone has a kid allergic to egg and can't eat Tiny Teddy biscuits, try the home brand (Coles I think) ones. While the branded ones have egg in them, the home brand ones don't. Go figure.

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    Do you know if they have dairy in them? ( Funny but my friend was telling me her friend with an allergic child was telling her about those biscuits!)

  10. #10
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    Hi, my 3yr old son has an epi pen, he has an egg,tomato,and hazelnut allergies, he has one for home and one for pre school, but strangely enough he still can eat peanut butter, and other nuts, it is only things like nutella, is a no,no.. his face puffs up like a balloon if he eats this, not good, but I hope that he will grow out of it.


 

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