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Has anyone stored or is considering storing cord blood & cord tissue?

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  • Has anyone stored or is considering storing cord blood & cord tissue?

    Hi

    We are expecting our first child and are considering storing her cord blood and maybe cord tissue.

    Would love to hear from anyone who has gone down this path or is considering it.

    Thanks!

  • #2
    Yes we have and I would highly recommend it - we will do it for all our children. It's important that you fully educate yourself on the subject, there is a lot to know and the future for stem cell technology is very bright. I did a lot of research on the topic and was amazed just how many parents do it. America and Europe are streets ahead of the rest of the world...

    At the end of the day you are making a decision for your unborn child and family. In my opinion it's much more important to spend money on this 'insurance' than a fancy pram and nursery etc.

    Let me know if you want some websites to do some research on

    Good luck x

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    • #3
      I considered it and decided not to.

      I figured if the child comes down with something early on then it's probably genetic so the cord blood will be similarly tainted and useless.
      If it's something that can be fixed with gene therapy, then they can get fresh cells from bone marrow instead of relying on frozen cord blood. (I know it's invasive and painful.)
      The longer it's stored the more chances that it accidentally thaws (human negligence) and becomes useless.
      With improvements to stem cell technology, I expect there to be ways to increase numbers of existing stem cells collected from appropriate biopsies of tissues, and ways to de-differentiate cells to produce stem cells de novo, and ways to increase the number of stem cells in situ. I expect these anticipated improvements will be more likely to help than genetically identical cord blood. (That's my personal judgement of the odds - i.e. just a feeling on the matter.)

      I did want to donate to the public cord blood bank, as it may have been able to benefit someone (medically or for research) in the here and now, and my child could also try the public bank later if medically appropriate. But it's so difficult to donate to the public bank that we've put it in the too hard basket and will not be doing that either.

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      • #4
        We considered it too in some detail but we want to delay cord clamping so this bub can reap the full benefit if that so its not really possible...

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        • #5
          We think we will, the small amount of research shows not much can be done with it currently but that it is more of an 'in the future' sort of thing. The cost while expensive to start is not that high spread over the years, we probably will as I'd hate to have needed it and not stored it. Would love the research sites LUVBUG.

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          • #6
            Close friends of ours lost their first baby due to a horrible, rare genetic illness. They were both carriers, but couldn't possibly have known that, as it's such a rare condition. It only presented itself when she was around 6 months, and there was no treatment - she just degenerated until she passed at 11 months. It was the most horrible, traumatic thing to happen. Apparently cord blood could have helped as the only possible source of treatment, but of course as they didn't know anything was wrong until 6 months, it wasn't an option.

            Having been so close to this heart-wrenching situation makes me think seriously about it. We don't know what we don't know.
            Last edited by peoniesarepretty; 25-04-2012, 08:59.

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            • #7
              Thanks for starting this thread. I can't find anyone who has done it or anyone who is going to.

              But we will be. My DH has had cancer 2x now, and second time he was only able to have the ridiculously high doses of Chemo to kill the cancer thanks to a stem cell transplant. I figure I want that option in the bank, ready for our child if he needs it.

              I think we will go through Cryosite as they are the only ones I can see in Australia who offer both Autologous and Directed Allogeneic stem cell transplants.

              In case you're not sure [cause I had no clue until hubby got so sick] an Autologous means the cord blood you store can only be used to treat the child in which it came from.
              Directed Allogeneic means that because Cryosite is licensed by the TGA you can use the Stem Cells to also treat other compatible family members.

              It is an additional expense, so you have to way up the options for you as to if you fork out the $$. For us there is no way that I could not store it 'just in case' baby or even hubby needed it down the track. My thoughts are, I pay insurance on my house, car, contents, so why not this?

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              • #8
                I did consider it briefly but haven't done any research yet. At the moment I want to delay cord clamping so the other isn't an option. But I will look into it further b4 I decide 4 sure, although it seems unlikely.

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                • #9
                  Can someone please tell me more about the delayed clamping? I have never heard of this before. What does this achieve?

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                  • #10
                    Originally posted by peoniesarepretty View Post
                    Can someone please tell me more about the delayed clamping? I have never heard of this before. What does this achieve?
                    I would def do my own research but here is one article to get your started http://www.bubhub.com.au/hubbub-blog...cord-clamping/
                    Last edited by BH-tech; 17-08-2015, 10:35. Reason: Link Update

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                    • #11
                      Peoniesarepretty. Delayed cord clamping is leaving the placenta attached to baby for up to a couple of hrs or until cord stops pulsating. If left attached the contents of the cord are absorbed into the baby body. I don't know scientific research/benefits but if have a look you should find them, I do believe they have done some documented studies.The belief is though that the cord is full of amazing cells, nutritions , blood and other goodness that benefits bubs. It's like a natural vitality boost and some belief it enhances immunity and reduces likelyhood of future allergies and alike.Unfortunately its not std practice in most hospy so you need to make ur intentions clear early on.

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                      • #12
                        What I understand about the benefits of delayed cord clamping is that prior to birth, the baby sends some of its blood into the placenta to make its body smaller and easier to get out. When the baby is born, the placenta pulsing is actually the placenta returning the baby's blood to it. It makes sense to me that if that blood was in the baby before birth, and it was just clever enough to store it somewhere else so its birth was easier, then the baby will be better off getting that blood back after birth. I'm happy to stand corrected but I'll definitely be doing delayed clamping.

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                        • #13
                          Originally posted by Lulu56
                          Wanted to, discovered the cost and couldn't afford it.
                          ^ Same for us..

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                          • #14
                            Hi Ladies

                            There is so much to know on the subject and once I started doing my research it became clear to me that its a no brainer. The cost is always the first issue and people stop doing their research when they find this out. A lot of Private Stem Cell Storage banks have payment plans so ask about this... it is expensive but we all have Austar/Fox, why wouldn't you cancel that for a year and rather pay for the storage of your baby's stem cells?

                            Just going off some comments mentioned above - these were my concern to and I did loads of research and found the following out:

                            1) There are currently over 70 diseases FDA approved using stem cells as the treatment
                            2) There are nearly 200 stem cells trials in place - when these are approved there will hopefully be cures for Diabetes, Cerebral Palsy, blindness, deafness, burn treatment etc... the list is endless
                            3) Stem cells frozen in a Private bank are owned by the child and their guardian/parents - there is no way the sample can be used by anyone other than the child or a family member
                            4) Stem cells are frozen at -196 degrees and there is virtually no deterioration in the sample - after recent studies they are saying that these samples can be stored indefinitately.

                            Did you know that if you needed a stem cell transplant right now you would need to go to a public registry... your chance of finding a match is 1:100 000. This figure freaked me out a lot. With your childs own cells stored its an exact match and siblings are a 1-in-4 match! It also costs much less to use your own stored sample for treatment.

                            The websites I used for my research was:

                            Parents Guide to Cord Blood
                            www.parentsguidecordblood.org

                            Cord Blood Registry
                            http://www.cordblood.com/

                            Cryo-Save
                            www.cryo-save.com

                            Cell Care Australia
                            http://www.cellcareaustralia.com/default.aspx

                            Clinical Trials
                            http://clinicaltrials.gov

                            Also, if you decide you cannot afford to store in a private bank you really should consider donating the cord blood and tissue to the Australian Public Bank. Its exactly the same as being a bone marrow donor - this way its non-invasive and your baby's stem cells could possibly save someone's life.

                            http://www.bubhub.com.au/directory/f...rd-blood-banks

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                            • #15
                              The upfront cost is what stopped us. Yes we have austar but we don't pay $2000 upfront for it plus an ongoing fee forever..

                              In a perfect world we would be able to afford it but it worked out that we would need to pay $2300 within 2 weeks of having bub plus we live regionally so would have to pay extra to have it collected by someone from the agency, and then the monthly storage fee..

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