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Any mums with epilepsy?

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  • LizzieTM
    replied
    Thanks monnie24. I'll look the fab page up! Cheers!

    Leave a comment:


  • monnie24
    replied
    Originally posted by LizzieTM View Post
    Hello ladies, thank you so much for sharing your experiences and yours and your bubs conditions.

    Your kind advise, comments or further update with your situation will be very much appreciated as I'm planning to start a family and I've been on keppra for 7yrs. My doc said there is no thorough research on keppra's effect on babies during and post pregnancy. Other than monnie24's bub had heart murmurs (which I hope is getting better), any other bubs had conditions that maybe related to the meds you are taking?

    I've only had seizures in my sleep (mostly when I miss my meds n lack of sleep).

    Also, im concern abt breast feeding while on meds... Please share your thoughts and experience?

    the pharmaceutical companies are not being very helpful at the moment with my enquires...

    looking forward to to hearing from you!
    Hello my son was perfectly healthy at birth and for two weeks (until he contracted a virus) similar to a cold virus. Are you on FB. There is a epilepsy Australia page. Lots of people can offer advice.

    When he was sick, they did give him my medications as they thought he may of been addicted like heroine babies as he was having seizures.

    Just make sure you take EXTRA folate I took 3 tabs a day. My neuro said more meds transfer to baby in utero than in breast milk (which does make sense)

    Sent from my GT-I9195T using The Bub Hub mobile app

    Leave a comment:


  • LizzieTM
    replied
    Hello ladies, thank you so much for sharing your experiences and yours and your bubs conditions.

    Your kind advise, comments or further update with your situation will be very much appreciated as I'm planning to start a family and I've been on keppra for 7yrs. My doc said there is no thorough research on keppra's effect on babies during and post pregnancy. Other than monnie24's bub had heart murmurs (which I hope is getting better), any other bubs had conditions that maybe related to the meds you are taking?

    I've only had seizures in my sleep (mostly when I miss my meds n lack of sleep).

    Also, im concern abt breast feeding while on meds... Please share your thoughts and experience?

    the pharmaceutical companies are not being very helpful at the moment with my enquires...

    looking forward to to hearing from you!

    Leave a comment:


  • Bebedayz
    replied
    Originally posted by monnie24 View Post
    Hello!!!

    Bubs is 6 weeks old now I had her early at 38&4 because my seizures were more frequent (petite mal) I think due lack of sleep. But since then none which is my world record! Bubs has a heart murmur which I of course think is due to my medications.

    How are you going?!
    Congratulations!!! Great news about your seizures, is the heart murmur a minor problem? Does it require treatment? How are you finding the sleepless nights? Are you breastfeeding with the meds?

    I'm good, we started trying last month, but no luck yet. Fingers crossed for this month!!!

    Leave a comment:


  • monnie24
    replied
    Hello!!!

    Bubs is 6 weeks old now I had her early at 38&4 because my seizures were more frequent (petite mal) I think due lack of sleep. But since then none which is my world record! Bubs has a heart murmur which I of course think is due to my medications.

    How are you going?!

    Leave a comment:


  • Bebedayz
    replied
    Originally posted by monnie24 View Post
    1000mg day & night. My seizures improved until I wasn't getting much sleep (being bigger/toilet during night) which was strange I thought.
    Hi Monnie, just wondering how you got on with your baby? Hope you are well and those pesky seizures are staying away!!!

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  • monnie24
    replied
    1000mg day & night. My seizures improved until I wasn't getting much sleep (being bigger/toilet during night) which was strange I thought.

    Leave a comment:


  • Bebedayz
    replied
    Originally posted by monnie24 View Post
    I take !

    Keppra
    Topomax
    Zarontin
    Frisium

    All safe during preg I don't know if you have spoken to doctor yet but maybe start taking megafol (stronger doses than in the pregnancy vitamins)
    Hi monnie24,

    sorry I don't know how to PM - new to this place!!! Already taking megafol and elevit, so hopefully doing all I can to make a healthy strong baby! What dose keppra are you on? You're on quite a cocktail!

    Leave a comment:


  • SimplyMum
    replied
    I have epilepsy but very mild. My triggers are photosensitive. I have myoclonic sezuires so I felt I was safe to cease meds altogether during pregnancy and not drive. Good luck. Thery're are heaps of Mummies with epilepsy- I'm sure you'll be fine.

    Leave a comment:


  • monnie24
    replied
    I have tried to pm you bebe! But I can't seem to!

    Leave a comment:


  • monnie24
    replied
    I take !

    Keppra
    Topomax
    Zarontin
    Frisium

    All safe during preg I don't know if you have spoken to doctor yet but maybe start taking megafol (stronger doses than in the pregnancy vitamins)

    Leave a comment:


  • AliG
    replied
    Im on topamax its the only on I dont have bad reactions to

    Leave a comment:


  • Bebedayz
    replied
    Epilepsy and TTC

    Thanks monnie24 and AliG. Can I ask what meds you guys are on? I know some are considered safer than others.

    Thanks for sharing, AliG it is great to hear of your success with 2 babies!

    fingers I have good luck too

    Leave a comment:


  • monnie24
    replied
    Hi sorry I didn't see your posts!!

    I'm at the hoe stretch now.. Few complications my seizures decreased for about 5 months (I had none) then in one week I had 2 grand mal (VERY rare for me!) I. Booked in for a c section delivery this is my choice along with obs etc. I guess everyone's epilepsy has different triggers mine is

    Sleep deprivation/anxiety/stress
    Food
    Missing meds (which I'm terrible for) during the preg I got my meds Webster packed because I figured I don't want to be very tired and going 'ill be okay until tomorrow etc' and then it's all there organized!

    My neuro has given me a plan-
    Breast feed & DP do bottle feeds at night (me express) so I get a full nights sleep etc. change nappies on floor etc and when feeding try and have supervision. I don't have controlled epilepsy Mine is crap! So this is what I have to do I'm hoping I will adjust and make my 'own' plan lol.

    Good luck and let me know if you want know anything else.

    Leave a comment:


  • AliG
    replied
    Hi I have epilepsy and have 2 girls. I had a few more seizures towards the end of my pregnacys. I had vaginal births with no pain relief. Both girls have no complications from me taking meds and I breastfed both (1st for 7 weeks 2nd for 9 months).

    Leave a comment:

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