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Awesome Mums of autistic kids-how many of us are there (#4) ??????????

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  • #16
    Happy to report yes he made it through until pick up time

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    • #17
      Awesome Mums of autistic kids-how many of us are there (#4) ??????????

      Sending hugs [MENTION=71209]monnie24[/MENTION], the bad times can leave us feeling like failures and struggle. Be kind to yourself and know you are doing a great job, being a Mumma is hard and being a Mumma to a child with autism is like walking through a mine field

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      • #18
        Hi mommies!! My son hd a meltdown at school yesterday and I didn’t know what triggered it... the aide said she just asked him to draw something and he got upset. He is not good with writing and drawings so maybe that’s it and oh he is soooo into everything now at home. I can’t take my eyes off him for a few minutes because i know he will be doing something naughty. Are there any kids here that is like that? He gets into everything now!

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        • #19
          Originally posted by xanadu29 View Post
          Hi mommies!! My son hd a meltdown at school yesterday and I didn’t know what triggered it... the aide said she just asked him to draw something and he got upset. He is not good with writing and drawings so maybe that’s it and oh he is soooo into everything now at home. I can’t take my eyes off him for a few minutes because i know he will be doing something naughty. Are there any kids here that is like that? He gets into everything now!
          Ds2 is like that. He doesn't know how to play, so he can be quiet destructive in his needs to find stimulus. So it means being his shadow a lot.

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          • #20
            [MENTION=41462]White Mage[/MENTION] & [MENTION=71209]monnie24[/MENTION] the new house is a bit smaller actually, but the layout is better I think. It also has a nice flat backyard which will be better than the last house (we can get a trampoline once we're a bit more settled). DS is already used to it and was apparently talking to his teacher about it in a positive way.

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            • #21
              I have now had the same reaction by more than 4 different professionals about the paediatrician we seen. They all dislike him and say he has a tendency to diagnose autism very quickly. DF and I were (and still aren’t) happy with DS assessment, we both believe it isn’t right - how can someone make a diagnosis on a child when they didn’t even sit with them for more 10 minutes.

              The assessment we received from the paediatrician is literally about 4 sentences long. Apparently he is known for only writing a tiny paragraph for everyone.
              I am thinking we really need to start the process again for a diagnosis but I’m wondering if we wait until we have our appointment with the OT to see if they can help with getting it right.

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              • #22
                Originally posted by Hasselhoff View Post
                I have now had the same reaction by more than 4 different professionals about the paediatrician we seen. They all dislike him and say he has a tendency to diagnose autism very quickly. DF and I were (and still aren’t) happy with DS assessment, we both believe it isn’t right - how can someone make a diagnosis on a child when they didn’t even sit with them for more 10 minutes.

                The assessment we received from the paediatrician is literally about 4 sentences long. Apparently he is known for only writing a tiny paragraph for everyone.
                I am thinking we really need to start the process again for a diagnosis but I’m wondering if we wait until we have our appointment with the OT to see if they can help with getting it right.
                Oh dear, none of that sounds right at all.

                A proper formal diagnosis is done over a number of sessions, and there are many questions asked to the parents, plus a play-based assessment.

                How long do you have to wait to see the OT?

                If I was in your shoes, I would not be comfortable accepting the 'diagnosis' this paed has given you and would be seeking to have a proper formal diagnosis done.

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                • #23
                  Hello mommies sorry for frequent posting... i just need some ideas or maybe a mother in a similar situation. My son is having problems at school he doesn’t follow instructions and jusy do his own things at school but at home i can make him sit down and read and write and do some basic maths with help of course but when he is at school he refuses to do anything and when asked repeatedly he will throw a tantrum or have a meltdown. Has anybody had the same experience?? What did you do to help minimize it? TIA

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                  • #24
                    Originally posted by Mod-Degrassi View Post
                    Oh dear, none of that sounds right at all.

                    A proper formal diagnosis is done over a number of sessions, and there are many questions asked to the parents, plus a play-based assessment.

                    How long do you have to wait to see the OT?

                    If I was in your shoes, I would not be comfortable accepting the 'diagnosis' this paed has given you and would be seeking to have a proper formal diagnosis done.
                    Hearing it from more people makes me think he didn’t do it right at all (we didn’t really know what to expect)

                    Hmm. That’s what I thought! We got told to come back in a year if ds grew out of it! Red flags now but not at the time.

                    We actually have an appointment Monday! Hooray. But the OT isn’t here regularly so could be months before we see her again.

                    I think we will speak to our doctor and ask if she can send us through the process again. We already do early intervention - which is great but if he isn’t diagnosed right surely that is going effect everything.

                    Feel like we’ve failed ds. We were so happy to get him help and really thought we were on the right track but now I’m so lost.

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                    • #25
                      Originally posted by xanadu29 View Post
                      Hello mommies sorry for frequent posting... i just need some ideas or maybe a mother in a similar situation. My son is having problems at school he doesn’t follow instructions and jusy do his own things at school but at home i can make him sit down and read and write and do some basic maths with help of course but when he is at school he refuses to do anything and when asked repeatedly he will throw a tantrum or have a meltdown. Has anybody had the same experience?? What did you do to help minimize it? TIA
                      I'm not sure how much help I'll be because my son is the opposite - he is on his best behaviour at school and does what he's told, but at home we struggle to get him to sit down and do any form of 'school' type work. He is however in a small support class setting (only 10 students in the class), so he gets plenty of attention from the teacher & aide.

                      My DS was more of a handful behaviour wise when he was at preschool (ages 4-5). They tried a number of different strategies to try and manage his behaviour and make his day more manageable - some things work, some don't. Our therapists (OT & Speech) were great at helping come up with strategies and would attend the preschool to assist.

                      Is your boy in a mains.tream class? Does he have an aide? Perhaps he is getting a bit lost and overwhelmed, especially if he's not being well supported. Also for our kids, transitioning from one task to the next can be really tough - they need to be advised in advance that the current activity will be finishing up. If they are trying to move him through one thing to the next he might not cope and that's where the tantrums/meltdowns can kick in.

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                      • #26
                        Originally posted by Hasselhoff View Post
                        Hearing it from more people makes me think he didn’t do it right at all (we didn’t really know what to expect)

                        Hmm. That’s what I thought! We got told to come back in a year if ds grew out of it! Red flags now but not at the time.

                        We actually have an appointment Monday! Hooray. But the OT isn’t here regularly so could be months before we see her again.

                        I think we will speak to our doctor and ask if she can send us through the process again. We already do early intervention - which is great but if he isn’t diagnosed right surely that is going effect everything.

                        Feel like we’ve failed ds. We were so happy to get him help and really thought we were on the right track but now I’m so lost.
                        Please don't blame yourself. You are doing your best. It's not your fault that a specialist you trusted hasn't gone through the proper procedure to diagnose your son

                        It's such a massive learning curve and it's really daunting. Once you get a formal diagnosis done you can move forward whatever the case may be. Hang in there and keep persisting.

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                        • #27
                          Originally posted by Mod-Degrassi View Post
                          I'm not sure how much help I'll be because my son is the opposite - he is on his best behaviour at school and does what he's told, but at home we struggle to get him to sit down and do any form of 'school' type work. He is however in a small support class setting (only 10 students in the class), so he gets plenty of attention from the teacher & aide.

                          My DS was more of a handful behaviour wise when he was at preschool (ages 4-5). They tried a number of different strategies to try and manage his behaviour and make his day more manageable - some things work, some don't. Our therapists (OT & Speech) were great at helping come up with strategies and would attend the preschool to assist.

                          Is your boy in a mains.tream class? Does he have an aide? Perhaps he is getting a bit lost and overwhelmed, especially if he's not being well supported. Also for our kids, transitioning from one task to the next can be really tough - they need to be advised in advance that the current activity will be finishing up. If they are trying to move him through one thing to the next he might not cope and that's where the tantrums/meltdowns can kick in.
                          Thank you [MENTION=128153]Degrassi[/MENTION] yes he is in a mains.tream class and he only attends 2 hrs a day for now until they finalise his funding. I feel that his teacher is not that supportive and the aide is a hit and miss. He is there 2 hrs a day and they can’t handle him how much more if he stays for the whole day? I can’t wait till he have our student support group meeting so we can put his ILP in place. He had his acedemic assessment today and they stopped it because he is not cooperating and the teacher looked very disappointed. [emoji30]

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                          • #28
                            Originally posted by xanadu29 View Post
                            Thank you [MENTION=128153]Degrassi[/MENTION] yes he is in a mains.tream class and he only attends 2 hrs a day for now until they finalise his funding. I feel that his teacher is not that supportive and the aide is a hit and miss. He is there 2 hrs a day and they can’t handle him how much more if he stays for the whole day? I can’t wait till he have our student support group meeting so we can put his ILP in place. He had his acedemic assessment today and they stopped it because he is not cooperating and the teacher looked very disappointed. [emoji30]
                            Oh no hon, sounds like it's rough going.

                            Are there any mains.tream schools around your area with support classes? I know it's pretty early on in the piece to consider moving him, but it's vital that he is treated with the extra care he needs and is not treated as an inconvenience. That was my main factor in going with a support class. My DS has done so well that he'll be transitioning to mains.tream next year (grade 2).

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                            • #29
                              Originally posted by Mod-Degrassi View Post
                              Oh no hon, sounds like it's rough going.

                              Are there any mains.tream schools around your area with support classes? I know it's pretty early on in the piece to consider moving him, but it's vital that he is treated with the extra care he needs and is not treated as an inconvenience. That was my main factor in going with a support class. My DS has done so well that he'll be transitioning to mains.tream next year (grade 2).
                              Oh things are not going well at school the teacher doesn’t look concerned with my son and barely talks to my husband when he picks him up and the aide is frustrated because she said my son does not follow her and does not respect her things. She made it clear that she is frustrated. Maybe they are doing this so my son leaves the school?? Anyone been through this? I feel so down and also angry with the aide and teacher. Now I understand what many parents are going through with the system.

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                              • #30
                                Originally posted by xanadu29 View Post
                                Oh things are not going well at school the teacher doesn’t look concerned with my son and barely talks to my husband when he picks him up and the aide is frustrated because she said my son does not follow her and does not respect her things. She made it clear that she is frustrated. Maybe they are doing this so my son leaves the school?? Anyone been through this? I feel so down and also angry with the aide and teacher. Now I understand what many parents are going through with the system.
                                I really feel for you, but sadly I've heard it all before from other parents with kids on the spectrum. It's not right. A good school will do their best to accommodate and support your child.

                                How long has your DS been diagnosed and do you have therapists that work with your son regularly?

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