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  1. #771
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    Quote Originally Posted by pingc383 View Post
    Ladies, has anyone done a laprascopy and the Dr FOUND that they had silent endo?

    Is it really true there are absolutely NO symptoms with silent endo? Surely not with a light AF?
    Hi @pingc383 i have stage 4 endo and had absolutely no idea i had it until fs asked me if i get painful periods. I said yes. And he said id say youve got endo. So they did a lap and its everywhere, one ovary was stuck to my uterus wall, he said it was so (i dont know the right word) but it was so "infiltrated" into my bladder and bowel that if he had have tried to excise it, i would have needed a catheter and colostomy bag. So my period pain was the only indication. But i thought that everyone got period pain, so i used to just take naprogesic and that would fix it. I only had pains for about 12 hours on day 1. So, not trying to scare you but i certainly found its possible to have endo without knowing it. Only symptoms were cramping but i didnt realise my period pains were any worse than anyone else, iykwim. I mean, they sell period pain tablets in the shops, so i figured a bit of pain was normal. It was enough to keep me up at night, curled in the foetal position but i didnt need to take time off work and only lasted a day. I have really light 3 day af too.
    Last edited by gorgeousgeorge; 03-09-2016 at 09:47.

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  3. #772
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  4. #773
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    I used to have horrific period pain, having to take time off work every month. When I had the lap done there was only a tiny bit of endo. My FS said some people will have no pain and heaps of endo, or terrible pain and hardly any endo.

    Got to work today
    Me " hi so &so your hair looks nice"
    So& so "thanks, I'm pregnant"

    Boom! Who wants to be bitter and angry with me today

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  6. #774
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    Quote Originally Posted by pingc383 View Post
    @gorgeousgeorge - oh my goodness! You really suffered through AF.. Did they end up giving you something, apart from naprogesic, to help? Did they remove some of it?
    Fortunately for me, I have absolutely no pain or anything, but apparently that doesn't mean you don't have endo. I'll be doing a lap soon to see.. Just waiting to see Dr M as I'd prefer he did it cos then he could do the NKC biopsy.
    Gee, you must have a pretty high tolerance to pain. I'm pretty **** with pain..
    @pingc383 lol, when i told fs about "oh it only makes me curl up in foetal position for about 12 hours", he was like, "yeah, thats not normal". I dunno really, i just figured i couldnt go all victorian era like an 1800's woman and take to my bed for a week just coz ive got AF. No they didnt give me anything coz naprogesic works if i take it straight away, im ok in about 6-12 hours. He cut out as much as he could without going to near my ovaries coz it can damage them and he said coz my main focus is to get pregnant, not for pain management, to just leave off doing anything. It doesnt bother me greatly, except that its poisened all me bloody eggs. He did also say pregnancy was the best thing to treat endo. :-)

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  8. #775
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    I've been pretty quiet on here. Still recovering from surgery that I had weeks ago, one of the incisions got infected and another one split open and is now healing.
    Got back to work and being made redundant. So hubby wants to stop IVF due to money or until I get another job. I've said we should still do one or 2 more cycles as planned this year. As it would be cheaper this year.

    I've got endo, stage 4 and lots of scarring. At its worst I was bleeding for 4 months non stop, used to pass out in pain. It is very possible to have endo and no symptoms, have lots of pain and not much endo and lots of endo and lots of pain.

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  10. #776
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    @Grace1 I'm 42 also but even though my hormone levels are all good and AMH not to bad for my age we have mfi and my embies don't seem to survive past 3 days so I guess she doesn't hold much hope for me never getting to blast stage but Im still holding onto the fact that it's a numbers game and my numbers may just come up if I keep playing. It's sad that they want to give up on me first.

    @ceseardust how's the flight? good luck for your POAS tomorrow, I have everything crossed for you.

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  12. #777
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    The age 45 is an individual FS thing. Because I have regular cycles and am ovulating normally, my new FS was happy to do a cycle and see what happened even though I'm over 45. I had four follies that looked good, but by the time I was ready for EPU only one was left and I didn't want to spend the money to go to EPU for one egg. He was happy to do another cycle or two to tweak the meds and see if I could get to 2 or 3 follies so we could get an egg pick up and see if there were any good ones in there, but the meds make me so sick I decided it wasn't worth it and that DE would be my path.

    Then as you all know I did fall pregnant naturally last month - so it can happen at 45 - but of course it turned out to be a chem. Although knowing what I know now about Autoimmune Progesterone Dermatitis (which I and my doctor suspects I have), I wonder whether the pregnancy would have continued if I had have either not used extra progesterone, or if I had have been on Prednisone and Clexane prior to using progesterone. We'll never know, but at least I'm getting further testing done to see if I definitely do have that. It was unlikely that it was a healthy pregnancy, but as @Blossom74's Mum can testify - there are miracles that do happen at this age!

    So unless you were regularly getting good healthy numbers and strong, chromosomally normal embies at age 45, I can't see with the odds of 0-1% that it is worth continuing. I had to do another cycle to put my mind at rest, and if I wanted to keep pushing for cycle after cycle at my age, with my results, then I would expect the FS to be questioning my mental health rather than allowing me to keep going with pretty much zero chance of success.
    Last edited by Summer; 03-09-2016 at 11:12.

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  14. #778
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    I have a plan! @Tahli I know you will be happy with me!)

    So, I've been flirting around the edges of DE for about 18 months now and the difficulty has been lack of finances on my part, and my DH not willing to contribute financially at all. It's been a big issue in our marriage, and although things are very good now between us in almost every way - this is still a problem.

    So, I've decided to go ahead with DE 'on my own' as I'm not willing to wait for DH to get his sh!t together. He definitely wants a DE baby, I have no doubts about that, but for whatever reason (and I can't get to the bottom of it - maybe we would in counseling) he has issues with him being the sole breadwinner and also having to fork out for DE. He just spent $50K increasing custody with his son, and pays $23K a year in child support, but apparently there's no funds for DE. Whatever.

    So it's up to me and if lovely single ladies like @Tahli can do this on their own, then so can I!

    My plan is:
    • Start the process with Supercare on Monday to withdraw my Super for DE
    • Do my very best to create $10K net profit in my business over the next few months (which is possible) to also go towards DE
    • Book in for a hysteroscopy, NKC biopsy, scratch and flush with Wazza ASAP
    • Book in with allergy specialist to see if I can get a diagnosis and plan for potential Autoimmune Progesterone Dermatitis
    • Get any further testing that I need done and have appointment with Dr M for any further immune, clotting, NKC, HLA issues that come up (none have been found so far, only MTHFR)
    • Book in with Dr Wyn-Williams in Brisbane for an assessment of whether I could have silent endo - he is apparently one of the best of being able to tell from vaginal ultrasound if he thinks it's an issue
    • Decide on DE options - Hawaii, SA or Known Donors in Brisbane - I have emailed all of them now and will narrow it down over the next month or two as to which way I want to go and what I can afford
    • Aim to cycle in January or February next year

    I'll also see about getting DH into counseling to see if we are on the same page or not, or if I'll be doing this as a single woman. But I'm forging ahead regardless - I think DH will catch up once I've got things rolling - but I still think we'll need counseling to deal with the fall out as I feel completely alone and unsupported with this and actually think he's being quite cruel and selfish in regards to us starting our family with donor eggs. We've dealt really well with a lot of other stuff, so I feel quite confident in our relationship as a whole, but this is a sticking point that hasn't been resolved as yet and it's a biggie.

    But I'm not waiting any longer. BIB you can add me to January for DE!!!
    Last edited by Summer; 03-09-2016 at 11:38.

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  16. #779
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    Quote Originally Posted by pingc383 View Post
    @Summer - is Dr M doing your immune testing?
    @pingc383 I've already had lots of it done and it's all clear, but I do want to see if there are any other tests that have maybe been missed, and also I do need a NKC biopsy. I just need to find out exactly what he tests for and whether Wazza does the same. But yes, I will be speaking to him about immune issues, especially as we now suspect the autoimmune progesterone thing which is fairly rare.

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  18. #780
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    Good on you @Summer for forging ahead to make your dreams come true

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