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  1. #621
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    @Cantw8ttobmummy maybe call primary and ask the nurse if she could clarify with the gp?

  2. #622
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    @Cantw8ttobmummy - Yes, I agree. Usually there are 2 BTs that they need you to do. One on Cycle Day CD 3-5 (i.e. when you are still bleeding during AF) and the other one is CD21 (which is usually just about after you have ovulated). The BT is to check for your fertility cycle (hormone levels between these 2 key events in a menstrual cycle) so that they can try to determine what's causing the infertility. I think the GP would have asked you to do it on CD21 since the start of your last AF instead of wait 21 days to do the BT, best to call and check (or look at your form, if I didn't remember incorrectly, it's stated on there). And obviously the pap smear is to check for abnormalities, etc. If you haven't had a AF cycle since last July, then it might be 21 days from now because they have no CD1 in August to base the calculations on, but I could be wrong.

    Once the tests are done, the GP will look at the results and make notes for the FS. The whole point is try to identify what might be causing the infertility so that the FS can put you on the right drugs and right protocol for it to work. If they don't have the right results, they can't prescribe the medication properly.

    It took me 3 GP visits to then get a referral to see the FS, then a nurse appointment, and then a BT, collect meds and start the IVF cycle. Overall, it usually takes at least 1-2 months to get into "action" - it took me 3 because mine crossed over Xmas period, plus I missed the window for one of the BT and had to wait a whole cycle to get it done.

    We all know how much patience it takes, but hang in there! As many ladies on here will tell you, this is going to be a huge test of patience all through the journey! We learnt not to ask too many "whys" and just follow instructions - we know that they are doing the best to help, so whatever they ask me to do, I just followed it all!

    You just have to take one step at a time, and make sure you are clear about what needs to be done, when and what the actual instructions are - it's very important to follow it all carefully to make sure you don't miss out on anything (for e.g. if you do the BT on the wrong day, you might have to wait one whole cycle to do it again, etc, or if you do something wrong, it might jeopardise results) so if you are not clear, always better to check with the nurses for instructions. They are usually very good at telling you what exactly to do.


    @smilebabynumberone - I don't mind sharing at all. My beta after TWW, HCG was 465, progesterone was 146. Second sneaky beta done at GP one week later, my HCG increased to 3700 but GP said no reading on progesterone (in her words "we don't usually test for this"), so I think only the referral form for BT from primary asked for this (there was a code on there I think that asked for HCG and Prog readings but I can't remember now. P4 for progesterone maybe?) I was only on 200mg one dose a day (not 600mg, or 200mg x 3), so my dosage was low. Hope this helps.
    Last edited by VickyP; 16-08-2016 at 22:12.

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  4. #623
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    Congrats @smilebabynumberone that is a good strong number & with the added progesterone support, you'll be fine xx

    Anyways just wanted to quickly jump in this thread & provide a few examples where Primary have been so off the mark that I say question everything & put your foot down when you strongly believe they are wrong!

    1. The nurses sent me a text message re my FET under GA last Friday...they got the date, time & venue right but royally @#$/^& up the instructions on what to do prior. So it was just a cut & paste job for egg collection instructions i.e your bladder needs to be half full etc. Anyways I stupidly followed their instructions but DH said to me shouldn't you be fasting? Only then did it occur to me that their instructions were wrong but too late by then..the bladder was half full. So at the surgery they made me wait & keep emptying my bladder & the anesthesist stated if i had drank a non clear fluid or had any food they would have cancelled the procedure. She told me how dangerous it is etc.

    2. I spoke to a nurse yesterday about the endometrin tabs that are potentially irratating my cervix, causing me to spot & giving me a skin reaction on the outer if any residual contact occurs. She fobbed me off by saying endometrin does not irratate the cervix or skin & it must just be the embryo has not taken & therefore my period is starting. (Charming isn't she?) To which i replied it might very well be the period but that still doesn't explain my skin flaring up & burning on the outer with residual contact. She said she would discuss with Dr.Nic & get back to me...i wanted to be put back on crinone. I got my prescription but the moral of the story was she wouldn't know what the endometrin side effects are if it hit her in the face. Only you would or the countless of other reports of similar situations world wide reported by people experiencing it or the medical profession confirming the side effect. But never tell a doctor or a nurse that you got this info off such & such site or that they are wrong...their ego can't handle that sh*t. You need to manage their feelings & strategically get what you want.

    3. Remember how so many of us in both states never got our frozen embryo reports? That conveniently Aust Post had lost it. And had done so over the space of months. Well i call bullsh*t on that one as well.

    4. There have been countless of times where my FS says one thing & the nurses say the opposite...the most recent being my purchase of prescribed ovidrel as per FS stating "even if everything points to you ovulating on your own, I need to make sure it happens so the nurses will tell you when to trigger" The nurses told me not to trigger. They said i was ovulating naturally. I was flustered with work & went with the nurses. I hope they were right..I will be asking my FS at our wtf appt as I'm also certain I'm out this cycle.

    Anyway there are many more but I wanted to throw some shade on this because some of the people at primary seem to be overworked, a tad ignorant & care factor zero seems to result from so many hormonal ladies asking too much of them. But if you feel you have a strong case, push it forward & stand your ground...do it nicely though...remember egos bruise easily with the medical mob.

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  6. #624
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    @VickyP thanks for the advise dear I will call them up today just to make sure

  7. #625
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    @tjuls yes it says on the paper day 21 my cycle last normally 5 days of bleeding and I'mvery irregular I didn't get a period for 1 year now it's terrible

  8. #626
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    @Giraffez yes will call them today for sure

  9. #627
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    Sorry to hear about your experiences @Peridot. I think I fall under mostly the "usual" group of patients. There have been a couple of situations where there has been careless mistakes and I'm not saying don't question them at all. I'm saying - understand how the instructions apply to you and if in doubt always check and double check. I think it's good to have a general idea of what a "usual" cycle is like and how your own cycle is different from a run-of-the-mill cycle so that anything that looks weird can be questioned and checked. That's how I got through mine. There was the "oh that's how it usually is" and "that's how I'm different" so when I have doubts, I'll check with the nurses and ask them to check with the FS if needed.

    I think in Sydney, we do get our letters about frosties and I'm not sure why it's been inconsistent in Melbourne. Maybe because the Sydney clinic is more established and have a better system going while Mel clinic is relatively new. I always go with what the FS says and if the nurses said something otherwise, I tell them that's not what I was told and asked them to double check.

    Yes, they are overworked and things could be better but I am just so thankful to them to even have gotten this far without paying through our noses. It's been nothing short of a miracle for me. I personally think that every clinic poses its challenges (in different ways) and you just learn a lot and try to educate yourself along the way too.

    I hope you are feeling well @Peridot. Sending you lots of sticky baby dust!

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  11. #628
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    Thanks @VickyP. Don't get me wrong though I'm not in the slightest ungrateful for their fantastic business model that allows us to pay a pittance for miracles but I just wanted to make it clear there are a lot that is not right & to be vigilant. Question anything that doesn't seem right & nicely ask for things you feel necessary for your personal journey. I've always said my FS & the embryologist are fantastic, it's the lack of (properly trained) staff & communication that is letting the whole system down. Still a mile better than spending 10k a cycle to finding out all these flaws. Mind you though, just because we pay minimal amounts doesn't mean Primary are not profiting from the Medicare rebates. And most importantly everyone providing a service of this nature has a duty of care to provide thorough & correct information everytime...not just some of the time.

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  13. #629
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    @Cantw8ttobmummy- it just occurred to me that u meant ur last period was in July last year?!! :O
    Have u seen a doc about this before seeing Primary? Have u had a HyCosy done?
    If u haven't had a period in a year-round I would imagine ur family GP would have started u on estrogen and progesterone supplements to get u to have a period and then on clomid to get u to ovulate.
    I'm wondering if the Gp at Primary misunderstood you and thought u meant July 2016 and not 2015!

  14. #630
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    Quote Originally Posted by Peridot View Post
    Thanks @VickyP. Don't get me wrong though I'm not in the slightest ungrateful for their fantastic business model that allows us to pay a pittance for miracles but I just wanted to make it clear there are a lot that is not right & to be vigilant. Question anything that doesn't seem right & nicely ask for things you feel necessary for your personal journey. I've always said my FS & the embryologist are fantastic, it's the lack of (properly trained) staff & communication that is letting the whole system down. Still a mile better than spending 10k a cycle to finding out all these flaws. Mind you though, just because we pay minimal amounts doesn't mean Primary are not profiting from the Medicare rebates. And most importantly everyone providing a service of this nature has a duty of care to provide thorough & correct information everytime...not just some of the time.
    Totally with you @Peridot! I too am extremely grateful to Primary for enabling us to continue with IVF when our finances had run out (and of course for the fact that we got our first ever BFP with them and now have 2 bubbas on board!).

    However, I totally agree that 'they' (the system/nurses) right royally messed up with several of their communications to me and their medication advice. Had I of not been experienced from so many cycles with Monash, I wouldn't have questioned or known.

    It is true that their staff are overworked and possibly overwhelmed, but their duty of care - particularly where medical advice is concerned, should be paramount. I think the Melbourne clinic opened up, then got overwhelmed by demand before they had good processes and enough staff in place.

    So, this is not to put anyone off going to Primary - I would recommend them to anyone venturing on the IVF path. I would simply reiterate what @periot said - stay on your toes and question anything you don't feel right about. Most of the time I was able to resolve issues with them fairly quickly by questioning things, and the FS (more praise for Dr Nic!) would often call me back personally.

    Lots of love, blessings and babydust to you all

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