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  1. #11
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    @MrsTickle thank you for the extremely good sound sensible advice.

    I did have a very expensive consult with a MTHFR naturopath and came away feeling they were prescribing me a ridiculous amount of supplements and trying to lock me in for further v expensive appointments. Which I have cancelled all after chatting to my doctor.

    We sometimes don't think rationally when we are desperately seeking answers and are grieving. I did too much googling and made myself quite sick last week with exhaustion and overload on info that might not relate or be safe to me.

    Dr recommended I chat again to my obstetrician and then if I want further info consult with a recommended reproductive immunologist... Someone as you also said who scientifically knows exactly what they are talking about and will treat me correctly.

    I'm going to chat to my ob tomorrow.

  2. The Following User Says Thank You to VioletMay For This Useful Post:

    Mrs Tickle  (14-07-2016)

  3. #12
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    Default Does anyone have MTHFR A1298C mutation???

    @basilmint thank you so much for the post and for sharing your experience. I really appreciate it. I'm sorry for your losses and I congratulate you on your 33 wk pg. I am on aspirin everyday and during the first 14 weeks am always prescribed twice daily progesterone. I will chat to my ob to see what her thoughts on clexane and folic v methyl folate for me are.

    Thank you for the well wishes. All the best for a safe arrival.

  4. #13
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    Please do not take folic acid at all our bodies can't process it so the only forms we can't process are folinicacid and methyfolate. I get my supplements off Iherb .

  5. #14
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    Quote Originally Posted by VioletMay View Post
    @Miss.Glitter thank you. Did your ob put you on clexane and methyl folate? My ob didn't think I needed anything.
    After lots of reseach i put myself on methyfolate and he places me on clexane injections as i have had 3 losses which aren't MTHFR related. The injections are just a precaution and i am on progesterone ect but thats due to an incompetent cervix ect

  6. #15
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    Quote Originally Posted by Mrs Tickle View Post
    I would urge you to please see a medical specialist about this before you think about going to a naturopath.
    MTFHR mutation is very common, most of the population have it but most people are unaware of it. There are medical professionals that deal with this issue specifically as the issue is a very, very wide one with lots of variants.
    Please ignore the wild claims and prescriptions made online. They're primarily false and are not supported in any way by science (and some with no evidence at all). For example, methylfolate can be quite dangerous for some people and is not the automatic prescription for those with a mutated MTFHR gene.

    If you are unclear, speak to your doctor who can refer you for a more detailed explanation at which point you can divulge a targeted strategy if need be. Some hospitals also have 'multiple miscarriage' groups that also inform and refer.
    Hi

    I feel so confused about who I should see.

    I had my first pregnancy/baby at 31 weeks due to a placenta Abruption and have since found out that I have mthfr Heterozygote.

    My gp didn't know anything about it and had to google it in front of me. I then went online and found dr Ben Lynch in the US and that has then led me to a naturopath that I have an appointment with this week.

    I feel really confused about who I should be seeing, my gp has been no help and the hospital that I had my baby at who diagnosed me just gave me a referral with no dr on it.

    I just want to do what's best for my body and any future pregnancy/baby.

    I did have a private ob with my first pregnancy but have decided to go public this time as with my daughter the private hospital couldn't help and sent me on to public due to being only 31 weeks and I figure if it happens again I will be public anyway.

    Any help/recommendations would be appreciated.

  7. The Following User Says Thank You to sarahjane914 For This Useful Post:

    AdelMum  (19-07-2016)

  8. #16
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    Hi,

    I too am homozygous for the A1298C gene. I have been seeing a nutritionist who specializes in this and she says that shes a lot of secondary infertility with this gene combination as the body just doesn't have enough folate to sustain a pregnancy, all used up in the first.

    My protocol is:
    2 x 500mcg Folinic Acid
    1 x Vitamin E 1000IU
    1 x chewable B12 5000mcg (methylcobalamin)
    2 x Vitmain D drops 2000IU
    1 x Zinc Citrate 30mg

    I had 2 miscarriages previously and now after chaning to this protocol and changing diet, plus good eggs (egg donor) have sustained a pregnancy of twins to 8 weeks so far and am continuing to work with my specialist to make sure my body has the nutrients to carry these twins to term.

    It is hard to find anyone who really puts much stock into the NTHFR mutations and it really was great to find someone. I am in Adelaide so not sure where you are, I go to www.perfectlynatural.com . It is one of the key things that has helped me after 5 years of trying.

    Good Luck

  9. #17
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    Quote Originally Posted by AdelMum View Post
    Hi,

    I too am homozygous for the A1298C gene. I have been seeing a nutritionist who specializes in this and she says that shes a lot of secondary infertility with this gene combination as the body just doesn't have enough folate to sustain a pregnancy, all used up in the first.

    My protocol is:
    2 x 500mcg Folinic Acid
    1 x Vitamin E 1000IU
    1 x chewable B12 5000mcg (methylcobalamin)
    2 x Vitmain D drops 2000IU
    1 x Zinc Citrate 30mg

    I had 2 miscarriages previously and now after chaning to this protocol and changing diet, plus good eggs (egg donor) have sustained a pregnancy of twins to 8 weeks so far and am continuing to work with my specialist to make sure my body has the nutrients to carry these twins to term.

    It is hard to find anyone who really puts much stock into the NTHFR mutations and it really was great to find someone. I am in Adelaide so not sure where you are, I go to www.perfectlynatural.com . It is one of the key things that has helped me after 5 years of trying.

    Good Luck
    Congratulations on your twins

    It's so hard to know who to see, my gp was no help.

    I think I'll keep my appointment with the naturopath and see what she says.

    Fingers crossed it all goes well.

  10. The Following User Says Thank You to sarahjane914 For This Useful Post:

    AdelMum  (19-07-2016)


 

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