Dateline: stunting growth of disabled children | Bub Hub
+ Reply to Thread
Results 1 to 8 of 8
  1. #1
    Join Date
    Aug 2012
    Posts
    5,818
    Thanks
    5,300
    Thanked
    4,230
    Reviews
    20
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 posts

    Default Dateline: stunting growth of disabled children

    On Dateline tonight, there is discussion about whether parents should be able to stunt the growth of disabled children in order to better care for them.

    What are your thoughts?

    For those that want to watch, it's on SBS at 9:30pm.

  2. #2
    Join Date
    Oct 2010
    Posts
    9,476
    Thanks
    2,805
    Thanked
    5,630
    Reviews
    2
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 posts
    Awards:
    100 Posts in a week
    I was just telling my DH about this. I saw an article about it today.

    I plan to watch so I can contribute an informed opinion.

  3. The Following User Says Thank You to Mod-Degrassi For This Useful Post:

    atomicmama  (21-06-2016)

  4. #3
    Join Date
    Aug 2012
    Posts
    5,818
    Thanks
    5,300
    Thanked
    4,230
    Reviews
    20
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 posts
    I think it should be accessible in Australia.
    Obviously, it's not a decision that a doctor would make lightly, so it would probably be quite a rare occurrence anyway.

    When it comes to caring for someone with a physical disability as high needs as those that will be on the show, the limits placed upon them as they grow can get quite substantial. Basic things that you & I (generally speaking) take for granted can get practically impossible.

  5. The Following User Says Thank You to atomicmama For This Useful Post:

    Mod-Degrassi  (21-06-2016)

  6. #4
    Join Date
    Oct 2010
    Posts
    9,476
    Thanks
    2,805
    Thanked
    5,630
    Reviews
    2
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 posts
    Awards:
    100 Posts in a week
    The two children featured in this story are profoundly disabled. I can definitely see why the parents have chosen to stunt their growth.

    These children's care needs are so significant - if something can be done to make their ongoing parental care possible (rather than surrendering them to a facility when they reach adult years), I think that's a positive outcome for all.

    Yes it's controversial to make this decision when they cannot consent, but I would imagine such treatment would only ever be made available in the most extreme of cases.

  7. #5
    Join Date
    Sep 2011
    Posts
    7,161
    Thanks
    1,700
    Thanked
    3,394
    Reviews
    4
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 posts
    Gosh. This sounds very interesting. I'll have to watch on catch up.

  8. #6
    Join Date
    Aug 2012
    Posts
    5,818
    Thanks
    5,300
    Thanked
    4,230
    Reviews
    20
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 posts
    I think they said this treatment has been administered 70 odd times worldwide? That's a very small number, so as you said, it would only be for the most extreme cases.

    It would help maintain a quality of life that often diminishes once they reach adulthood, because many things become far too impractical or complicated, like getting on to a beach, going on holidays, or even going to a friend's house.

  9. #7
    Join Date
    Aug 2012
    Posts
    5,818
    Thanks
    5,300
    Thanked
    4,230
    Reviews
    20
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 posts
    Quote Originally Posted by Tamtam View Post
    Gosh. This sounds very interesting. I'll have to watch on catch up.
    It actually wasn't as informative as I was hoping, though it did give first hand accounts of two families and what the treatment has meant for them. It's called growth-attenuation therapy, if you want to read about it

  10. #8
    Join Date
    Apr 2015
    Posts
    1,970
    Thanks
    1,813
    Thanked
    1,609
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    My mum works as a respite carer for people with disabilities. They often have very loving families who are struggling to afford care, but can't look after their adult child themselves due to the fact that they are getting older themselves and can't lift them to help them toilet, bathe, etc. I also have a friend whose 2yo son has a degenerative condition, he will become profoundly disabled by the time he's a teenager. At the age of 2 he's already the size of a 4yo, and she's very worried about how she'll continue to care for him as he gets older. She's only petite, and is already struggling to lift and carry him.

    So I do think that this should be an option in certain circumstances, where its going to improve the quality of care and quality of life for all involved.

  11. The Following User Says Thank You to Frankenmum For This Useful Post:

    atomicmama  (22-06-2016)


 

Similar Threads

  1. Crises during pregnancy (father has cancer, caring for disabled mother, DH overseas)
    By Lulu Kitsune in forum Pregnancy & Birth General Chat
    Replies: 10
    Last Post: 12-12-2015, 18:30
  2. Regular Growth Scans
    By nelljm in forum Second Trimester Chat
    Replies: 9
    Last Post: 17-08-2015, 13:10
  3. Anyone concerned with their 1yr old (weight & growth)
    By Nafsika in forum Toddlers (1 year olds)
    Replies: 5
    Last Post: 22-07-2015, 07:49

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
Free weekly newsletters | Sign up now!
who are these people who write great posts? meet our hubbub authors!
Learn how you can contribute to the hubbub!

reviews
learn how you can become a reviewer!

competitions

forum - chatting now
sales & new stuffsee all
LCF Fun Languages Australia
Your chance to win the perfect tool to help you reinforce your child's language learning at home with our unique online learning resource, Babelzone! Enrol and pay online for any Term 4 Fun Languages club in Australia by Monday 10th October 2017.
Visit our website to enrol and find out how to enter
featured supporter
Stirling Speech Pathology
Are you worried about your child's speech, general development and/or school performance? We can help.
gotcha
X

Pregnant for the first-time?

Not sure where to start? We can help!

Our Insider Programs for pregnancy first-timers will lead you step-by-step through the 14 Pregnancy Must Dos!