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  1. #1
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    Default Hip dysplasia at 11 weeks

    Feeling so deflated. Just looking for advise or someone to share stories.

    My second child was placed in a Von Rosen splint when she was born due to her being frank breech and very obviously dislocated hips.

    Because of this, every other child I've had automatically has an ultrasound to check their hips.

    I wasn't expecting anything to come back about the ultrasound and the hip was apparently only few degrees off normal and was told they usually correct themselves but saw an ortho anyway.

    Turns out my now 11 week old has two ddh and is now in a Denis Browne bar. His muscles are tight and we are hoping the brace will release the tension in the muscles.

    The surgeon didn't give much confidence that my baby will be out of the brace any time soon, in fact said he will need it until he's reached some milestones - ie crawling and walking.

    I wish I had found out sooner. I feel terrible.

    Can anyone shed some light on how long their little ones were in a brace if it was detected at this later age?

  2. #2
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    Sorry you are in this position for a second time.

    My DD was diagnosed at 6 weeks. She was in a Pavlic Harness for 3? 4? months. I can't quite remember the exact time frame.

    Not long in the grand scheme of things. She rolled pretty well the day after the harness came off and her gross motor skills have always been very good.

  3. #3
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    Thanks secret squirrel, that's reassuring and you're right it isn't that long in the scheme of things. I just wonder if because I've left it for a few more weeks it will mean he will have to be in it longer? If his muscles are already tight they've probably already compensated for the deformed hip.

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    Following

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    Both my daughters have/had ddh. First wasn't braced but my second is still being braced at night and has been using a brace full time and part time since she was 9 weeks She is now 9.5 months and is being night time braced till she is one as she regressed after dropping to nights only. Yours has still been picked up early so I wouldn't stress that you have waited too long at all 6 months is considered late. The bracing won't slow them down much at all for example my braced baby is hitting her gross motor skills much faster than her older sister did who wasn't braced so definitely don't be worried about that.
    You can't be worried about the length of time he will be braced as it will just do your head in and he is much better being treated bow then later. The standard course of treatment is to be braced full time for 12 weeks and then go part time ie nights or nights and naps for a while longer to prevent regression. However the treatment periods varies from baby to baby and could be longer or shorter.
    There are various Facebook support sires which are a wealth of information

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    This is the Australian Facebook page but there is specific ones for each state as well
    https://www.facebook.com/groups/ddhsupportworldwide/

  7. #7
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    Flowers thank you so much for your reassurance.

    I'm slowly starting to accept that this is a journey we have to go through and I can't keep thinking about the future and just let things happen, be it good or not what I was hoping for.

    Thanks so much xx

  8. The Following User Says Thank You to SookiLala For This Useful Post:

    flowers21  (09-06-2016)

  9. #8
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    I was born with a hip dysplasia it seems easier nowadays but well my story I didn't get diagnosed til age 4 (born late 80's they didn't do the hip examine when first born so didn't get braced or anything) when they first checked my older sister who was 7 yrs old my mum had it since birth to but at the stage didn't know it was generic.
    I can know get a hip replacement anytime now I'm over 25 and I've stopped growing and etc but just waiting on some other health problems to clear up.
    Yes it hindered me I could never run or really jump as a child never play netball basketball or ballet or do cross country at school I got into swimming when I was about 5 or 6 and that was really good and didn't hurt.
    Now days I have good days/weeks til Wednesday this week my right hip was basically dislocated and I could hardly walk without pain finally got it back into place last night and can walk again without as much pain.
    I also had to see a specialist every yr in Sydney (my closet capital city) so they could check on them have xrays and just do obs etc.
    That stopped when I was about 16 I think sorry over 10 years ago.
    But my life hasn't been all bad went through school and tafe got my cert 3 in childcare and worked in retail for a while which wasn't the best job standing all day but it was a job and was able to get a car and can drive only automatic but can drive and yes I get a disabled permit.

    So that's basically my story.
    Last edited by Mum to a miracle; 09-06-2016 at 20:13.

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    SookiLala  (13-06-2016)

  11. #9
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    Quote Originally Posted by UmmInayah View Post
    Flowers thank you so much for your reassurance.

    I'm slowly starting to accept that this is a journey we have to go through and I can't keep thinking about the future and just let things happen, be it good or not what I was hoping for.

    Thanks so much xx
    It sucks I know but it does get easier and becomes part of every day life I am even nervous now to stop bracing when the time comes ☺. I will keep my fingers crossed that your new journey is a very short one

  12. #10
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    Mum to a miracle,
    Thanks so much for sharing your story with me. I am so sorry that you are in pain sometimes. I really hope things get better for you soon xx


 

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