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  1. #1
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    Default Tongue & lip tie on my 4wk old :(

    I've been told that my baby has a posterior tongue tie & upper lip tie.

    Everything was going good at the beginning, but nearly 5 weeks in the feeding is not improving - I'm still having difficulty getting him to latch & there is some pain in my nipples. He's gaining weight & sleeping well, but I'm now suspecting that he's just feeding off my letdown. I have seen an IBCLC who suspects ties & the chiropractor also said 100% ties.

    I'm totally devastated! Been crying my heart out every day since & my anxiety is through the roof. I couldn't feed my first born due to latch issues (possibly lip tied?) & now I'm going through this with my second. I'm dreading each feed

    Im so torn about what to do!! I'm considering going & having a consultation with a dentist in Brisbane who lasers them. But the thought of him having to go through the procedure terrifies me. What if he doesn't improve & I regret my decision & forever hate myself for it!! Or the ties grow back? It's such a risk to take!

    I'm tossing up whether to just put him onto bottles (assuming he will actually take one??) but then my heart will be broken as I so dearly wanted to breastfeed this baby. I love him so so very much & I love the feeling of him needing me.

    Hubby is supportive but thinks I'm overreacting. He knows how badly I want this to work but he thinks I should wait & see if the feeding improves or gets worse first. All he sees is baby feeding, gaining weight & sleeping. He doesn't get my gut instinct or the pain in my nipples.

    I really need some advice mummas! What would you do in this situation? HELP!!

  2. #2
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    Hi, I'm sorry you're having such a tough time at the moment.
    my DS had suspected tongue and upper lip tie at birth but none of the Drs/midwives/lactation consultants etc could agree, we had issues feeding but pressed on and it did eventually get better. He's now 18 months and still doesn't speak which is suspected to be connected to the lip and tongue ties, we are in the process of being referred to a speech therapist and looking at getting them cut/laser. To be honest I wish I'd gone with my gut instinct instead of listening to the Drs and got it done when he was younger as I imagine it will be far more traumatic to have it done now that he's older and more aware.
    On a separate note, when we had issues feeding with latch and pain I used nipple shields for the first three months and it definitely helped - a complete pain in the bum to use but helped us and I managed to feed till 12 months when he self weaned.
    Hope this helps xx

  3. #3
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    Thanks @Daydreaming for sharing your story.

    I have tried once to use a shield but he is not one bit interested! He spits it back out. He also has a very small & tight mouth, probably due to the ties causing compensation in the muscles.

  4. #4
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    Hi Snooze - sorry you're having such a tough time.

    Both my kids had tongue tie and my DD also has mild upper lip tie. Both kids fed well and were putting on weight but, like you, I think my letdown was so strong that the milk just poured down their throat. Feeding was extremely painful and I had to use a nipple shield with my DS, DD wouldn't take one. We had the TT snipped by a paediatric surgeon. The other option is laser.

    I still had to use the nipple shield with my DS for several months on my right side as he still struggled with latching but there was no pain. Feeding was pain free as soon as my DD received treatment.

    As PP mentioned, there are other things that tongue tie can effect such as speech and eating so even if it doesn't solve your breastfeeding issues it may be beneficial for other reasons.

    Best of luck with it all!

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    My third bub had a posterior TT and a lip tie and he was also born at 31+5weeks so that complicated things!
    I noticed it when he was still in the NICU at four weeks old and it was snipped - I was there with him and yes it wasn't nice but I'd seen him go through so much already. He had to have it snipped again at 5 months corrected because his latch was still rubbish - I breastfed him for 2 years and 2 months so for me, it was worth it.

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  7. #6
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    How did you both go with the stretches? People tell me the first week is the worst. What was the hardest part for you both?

  8. #7
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    Quote Originally Posted by wobbleyhorse View Post
    Hi Snooze - sorry you're having such a tough time.

    Both my kids had tongue tie and my DD also has mild upper lip tie. Both kids fed well and were putting on weight but, like you, I think my letdown was so strong that the milk just poured down their throat. Feeding was extremely painful and I had to use a nipple shield with my DS, DD wouldn't take one. We had the TT snipped by a paediatric surgeon. The other option is laser.

    I still had to use the nipple shield with my DS for several months on my right side as he still struggled with latching but there was no pain. Feeding was pain free as soon as my DD received treatment.

    As PP mentioned, there are other things that tongue tie can effect such as speech and eating so even if it doesn't solve your breastfeeding issues it may be beneficial for other reasons.

    Best of luck with it all!
    Thanks

    At what age did yours have them snipped?

  9. #8
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    I had my DS3 (3rd child) lasered lip tie and posterior tongue tie at 2wks.old by a paed dentist. Best decision ever! My supply was questionable with oldest 2 but absolutely awesome with 3rd bub.

  10. #9
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    My 2nd had PTT (I'm assuming by the way his teeth have grown in also an ULT but that wasn't problematic). He also had what seemed like a small mouth compared to his big sister and just couldn't seem to do the big open mouth ready to latch. I gave him until about 6 weeks to get bigger but feeding was still so painful. I'd asked a middy in hospital to check him for TT as right from the start I didn't think it felt right but she said he was fine - hence persisting so long. I'd had pain with my first and needed shields due to having very firm breasts, but by 6 weeks things were improving a lot.

    So I saw a LC who dx PTT then saw a GP who snipped them. He said DS was at the older limit of what he would do in his rooms with no anaesthetic. It was as simple procedure and his tongue movement was noticeably better immediately. It still took a few weeks for pain to get better but I successfully fed him til 10m. I could have gone longer however I have unrelated supply issues and need medication to make enough milk, so I was ready to stop by then.

    Please don't be upset. This does not mean you won't breastfeed, it can be treated and things will improve!
    Last edited by Stretched; 14-05-2016 at 22:53.

  11. #10
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    Quote Originally Posted by Snooze View Post
    Thanks

    At what age did yours have them snipped?
    From memory, My DS was about 3/4 weeks old and my DD was 2 weeks.


 

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