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  1. #51
    littlesunflowers's Avatar
    littlesunflowers is offline It's not about the seeds - it's how you grow the flowers
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    @Johnathant I don't know how useful this will be for you to know, but my husband has sperm maturation arrest. All tests showed normal but TESA, biopsy and mTESE found no mature sperm. His urologist asked about his history of radiation exposure as a possible cause, and said that even lots of xrays in the area as a child could cause this kind of problem. We used a sperm donor. My advice would be to line up the mTESE ASAP if you know you want it - you can drive yourself mad trying to interpret the numbers from the tests. Been there!

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    Ditto what littlesunflower said. This journey is long and no one can tell you an absolute answer whether you have sperm production or not based on the result. The only way to find out is through the surgery. Yes, you can't just rock up and say you want the surgery next month. There is always a wait and preparation.

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    Thanks so much. You have given us hope. I am willing to try any operation. I will mention X-rays to my fertility specialist.

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    I had follow up appointment yesterday and apparently they found 1 specimen that could be soerm but not sure. They have diagnosed me with secondary Sertoli cell only syndrome

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    Good to hear that u have answers and sorry to hear it probably wasn't the news u were expecting.

    My husband has sertoli only syndrome too.
    Curious, what is the difference between secondary and normal sertoli only??

    Our story is (spoiler alert, it ends with donor sperm)...
    We were living in Perth when he was diagnosed. They also found 1 sperm at hubbys biopsy and it was 'abnormal'. We were pretty much told that was the end of the road.
    We moved to Sydney and changed IVF clinics were we saw a specialist urologist. He said chances of finding sperm were low, but recommended medication for hubby followed by m-TESE. This would give us our final, absolute answer (and closure). He said the fact there was 1 abnormal sperm was worth trying the m-TESE.

    Unfortunately, the m-TESE was not successful and we have used donor sperm.

    I hope I haven't disheartened you, but wanted to be honest with our story. We are glad that we did the mTESE (which is much more invasive than the biopsy) as it gave us absolute closure.

    Have they given you any further options?

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    This is my first time hearing about secondary Sertoli cell only. From a scientific content, I assume secondary is less severe?
    @Barca07: they also found 1 abnormal sperm for my DH with mTESE. The fact that I didn't have a live birth, 2 miscarriages, they sorta hint that it was the poor sperm quality.

    The chance is extremely low. I was told that 20% luck for the surgery to find sperms and then only 50% of those end in live birth. So that's 10% chance.

    That says there is a miracle recently from Zoe.

    Hang in there jonathant.

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    Primary is from birth, secondary is caused by something else in my situation chemo.
    Our FS told us there is another operation we could try. I can't remember what it's called but they open the testicle like a book and examine the tubules

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    Right, so my DH had primary.

    Sounds like they are referring to the mTESE. Like you said, they found one sperm from a random piece of testicles they biopsied. During the mTESE they explore during the operation so have more chance of finding sperm if there is any. If they have found one previously, then there's always hope!!!

    Did they mention any medication to increase your chances?

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    No they didn't but I'll ask. She was very honest with us and said there's only bout a 5% chance of the finding anything then it has to take with Ivf. But not giving up going to seek other opinions. I just don't want a dr to tell us they'll do it just for the money but a few of you have recommended Drs so I'm going to try a few

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    Right. My husband is also secondary because he had a medical condition at birth. Some people with his condition have low count not azoo. I guess we are unlucky in this regard. However, lucky and appreciate the chance to have a family in the end. A lot of people don't even have this chance.
    @jonathant: Yes, they are referring to mTESE. But who does it here in perth? The new dr? They have to do it concurrent with the IVF. With secondary, i bet the dr will give you 50% chance. I know for sure that the drs being recommended here do it for a living, not for the $.


 

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