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  1. #11
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    Quote Originally Posted by Jholla View Post
    Hi

    Yes I had an internal scan yesterday, which showed nothing (yet there is a pregnancy somewhere as levels keep rising, for now). As I was already at risk of ectopic, chances are this is one but obviously must wait until there is conclusive evidence.

    It will be through a private hospital on the Gold Coast (Pindara).

    What is the "poke test"? Is that another term for the internal? Sorry to ask a silly question!
    When doing an internal scan if they see what they think is the egg they can poke at it with the wand, if its a certain shape (donut I think?) they can confidently say it's ectopic.

    I just saw in your other post there is a lot of fluid.... I'm surprised they're not keeping you in if that is the case? Do you have a specialist womens hospital? I'm not sure what it's like in QLD, but in WA private hospitals/obs will refer us to KEMH in this instances because they're better equipped to deal with it. Free fluid is normally a sign it's ectopic. I'm really surprised they're not treating it with more urgency to be honest :S

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    Jholla  (20-04-2016)

  3. #12
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    Quote Originally Posted by delirium View Post
    If it is ectopic, consider methotrexate. It's an injection that strips the body of folate and basically everything and ends the pregnancy without surgery. You do need to be in certain perameters - your tube distention has to be within a certain range, as does your HcG. There was a third one but I forget. I had the choice of surgery or the shot and chose the latter. Methotrexate is good when it's early on and you haven't ruptured yet.

    The injection pro's - no surgery, little to no time off work. High success rate.
    Cons - you can't get pg for 3 months as it is essentially chemotherapy. In rare cases it doesn't work and you need a 2nd injection. You feel exhausted for a good 2 weeks.

    Surgery pros - once it's over it's done, no lingering effects like the injection.
    Cons - surgery can scar the tube if they save it, which can ironically lead to more ectopic. Longer recovery time.
    Just on a note about methotrexate, make sure someone sits with you and explains all the risks to you properly. They basically told me "it's the best option, there are some side effects but it will work with no surgery required"
    I had two doses and it still didn't work, my tube ruptured. You also can't go in the sun for a couple of months, it can effect your liver, it can make you pretty sick. It caused jaundice for me and I was really off for a while. They also say don't TTC for 3-6 months either.

    But then again, I've heard heaps of success stories too! Just have them explain all your options to you and very clearly.... with a support person too so someone else can take in the information too.

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    Jholla  (20-04-2016)

  5. #13
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    Quote Originally Posted by delirium View Post
    If it is ectopic, consider methotrexate. It's an injection that strips the body of folate and basically everything and ends the pregnancy without surgery. You do need to be in certain perameters - your tube distention has to be within a certain range, as does your HcG. There was a third one but I forget. I had the choice of surgery or the shot and chose the latter. Methotrexate is good when it's early on and you haven't ruptured yet.

    The injection pro's - no surgery, little to no time off work. High success rate.
    Cons - you can't get pg for 3 months as it is essentially chemotherapy. In rare cases it doesn't work and you need a 2nd injection. You feel exhausted for a good 2 weeks.

    Surgery pros - once it's over it's done, no lingering effects like the injection.
    Cons - surgery can scar the tube if they save it, which can ironically lead to more ectopic. Longer recovery time.
    Hi

    Thanks for the info.

    I can't have the MTX shot as we know the tube is damaged so I could end up having another one, plus we don't have 3+ months to wait to try again due to AMH level.

    They will remove the tube regardless due to it being damaged.

  6. #14
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    Quote Originally Posted by Anjalee View Post
    Just on a note about methotrexate, make sure someone sits with you and explains all the risks to you properly. They basically told me "it's the best option, there are some side effects but it will work with no surgery required"
    I had two doses and it still didn't work, my tube ruptured. You also can't go in the sun for a couple of months, it can effect your liver, it can make you pretty sick. It caused jaundice for me and I was really off for a while. They also say don't TTC for 3-6 months either.

    But then again, I've heard heaps of success stories too! Just have them explain all your options to you and very clearly.... with a support person too so someone else can take in the information too.
    Agreed. It's not for us, as you said, have to wait 3-6 months, which we can't as that's too long.

    Plus I could end up right back in the same position, knowing the tube is damaged so FS isn't considering MTX .

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    Quote Originally Posted by Anjalee View Post
    When doing an internal scan if they see what they think is the egg they can poke at it with the wand, if its a certain shape (donut I think?) they can confidently say it's ectopic.

    I just saw in your other post there is a lot of fluid.... I'm surprised they're not keeping you in if that is the case? Do you have a specialist womens hospital? I'm not sure what it's like in QLD, but in WA private hospitals/obs will refer us to KEMH in this instances because they're better equipped to deal with it. Free fluid is normally a sign it's ectopic. I'm really surprised they're not treating it with more urgency to be honest :S
    Oh wow, I didn't know that about the fluid. To be honest I was tearing up by then from him spending 5-10+minutes searching and not finding anything and then he marked the fluid but I didn't ask what that meant and he didn't elaborate as we moved onto what not seeing anything meant (or could mean).

    I am having daily blood tests and go back Friday for another scan as he said if levels have kept doubling and are over 3600 we should well and truly be able to see where it is.

    I've started to get different sensations, sometimes minor stabbing pain or just minor cramps but nothing serious to need pain relief. No bleeding yet either.

    I'm in QLD, through a specialist FS / OB, who is really good, he's very popular and I do have faith in him, but I'll ask him what the fluid meant when I see him.

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    @Jholla Just so you're aware, sometimes mtx is needed in addition to surgery (unfortunately). After surgery they will track your hcg levels to make sure they're falling appropriately and get back to zero. In my case, they plateaued and then started rising again 1 month after surgery so I had to have the mtx injection after all (it just meant that some placental-type cells had remained floating around my belly and got hold of some blood supply). Then I had to wait 3 months from then for my next ivf cycle, which really sucked! It's not that common, but it does happen sometimes so I thought I'd let you know so you're aware of the possibility, and also the reason for the repeated blood tests after the surgery.

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    Jholla  (20-04-2016)

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    Hi Jholia,

    Sorry you are going through this. I had an ectopic two years ago, I opted for surgery as I wanted the certainty that it was over which they couldn't guarantee with methotrexate. I didn't rupture, but had surgery at 6 weeks as they couldn't locate the pregnancy even though my uterine lining was thickened indicating a pregnancy. My HCG continued to go up but rather than double every 48 hours it was doubling every 3-4 days; when I had surgery my levels were around 3000 but had only gone up from 2800 2 days prior. They ended up removing my tube, and the recovery was difficult for the first 4-5 days, but afterwards I was okay, the gas leaving my body was quite painful. The good news is I fell pregnant with my now 15 month old in my next cycle, another reason I didn't want methotrexate.

    Good luck xo

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    Jholla  (21-04-2016)

  12. #18
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    Quote Originally Posted by MrsChino View Post
    @Jholla I am so sorry this is happening to you. I had an ectopic last year and it was a really hard time (especially the whole ‘pregnancy of unknown location’ time before it was found) – I wouldn’t wish it on anyone so my heart goes out to you. Like @seasun said, it is really good that they are monitoring you closely. Hopefully this will avoid any kind of emergency situation. I guess in preparing for the weekend I would just make sure you have a plan in place so you know what to do if anything happens before your surgery day (pain etc). Get straight to hospital quick sticks if you do feel any pain, as once a rupture has occurred things are much more difficult to manage.

    In terms of recovery, I took a week off work. I was still pretty sore when I went back so probably should have taken longer, but mentally I needed the distraction as I was struggling just being at home alone with my thoughts. The time after surgery was a bit of a rollercoaster emotionally, so I guess maybe just prepare yourself for that too. For a couple of days I was on a bit of a high, just so relieved that the surgery had gone ok and there were no complications. But then after a couple of days the sadness hit like a ton of bricks and it wasn’t a good time at all.

    My surgery was a bit more complicated than normal because the pregnancy was in my ovary, but my understanding is that if it’s in the tube and a rupture has not occurred it is a relatively straightforward procedure. I’m sure your phobia adds another layer of stress to the whole situation, but I know in my case I was grateful for the anaesthetic as I could finally just float away after the stress and worry of the preceding couple of weeks. I was pretty teary and upset just before the surgery so it actually felt like a relief at the time. Make sure you let the anaesthetist know how you feel and they will take care of you (they might give you something to help you relax beforehand). I found all the staff absolutely wonderful and so caring and sensitive to what I was going through – I hope that’s your experience too.

    Re distance from hospital – I didn’t have a rupture, however as soon as my pregnancy was picked up on the scan I was rushed straight from my FS’s rooms to hospital for surgery. Even so, it was a couple of hours before the surgery started, so I would think being 25 mins away would be fine.

    All the very best for the coming days. I hope it all goes smoothly and your recovery is quick and as easy as possible. Let us know how you get on
    @MrsChino, you are the only other person I have come across that has had an ovarian ectopic. Mine was treated with Methotrexate and I responded way out of all the current literature they had. I got lucky though, even though it took a long time to actually happen.

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    Quote Originally Posted by Jholla View Post
    Hello

    I will try to make this as short as possible (here's hoping):

    I am almost five weeks pregnant and am likely to have an ectopic pregnancy.

    Levels are still doubling but there is no visible sac in the uterus. My FS advised by now 90% of women would show a sac via internal ultrasound.

    If my levels have doubled to over 3200 by Friday (1600 as of yesterday) and he cannot see a sac then he will take this as confirmation of being ectopic, given I have a damaged right tube (ultrasounds over the past months have shown a very clear hydro in right tube, although there was spillage during HSG, which made the situation more confusing). The tube is not a normal shape though which indicated an embryo may still have trouble going through. As there was no definitive answer he allowed us to try naturally for a few cycles before moving to IVF since I have an extremely low AMH level for my age (with the plan to have a laparoscopy prior to IVF).

    He confirmed I ovulated out of my right ovary, which is the side the hydro is on.

    I was hoping I could get some first hand information from those who have had surgery to understand:

    1. What was your recovery like?
    2. How long did you have off before going back to work (I realise it depends on the individual)?
    3. How long was your surgery and was it complicated?
    4. How far away from hospital were you if tube ruptured (my FS is through a private hospital, which is where my surgery would be, about 20-25 minutes drive away)?

    I have an extreme phobia to general anaesthetic, therefore my mind is currently telling me this isn't going to end well, which of course I know is very unlikely as I'm being monitored daily and we will know the outcome by Friday.

    If the ectopic is confirmed Friday he will operate on Monday or Tuesday as he doesn't want to wait any longer than a few days, given I only have a week or so until I'm at high risk of it rupturing (again I know ruptures have happened prior to six weeks, it all depends on where in the tube it is located).

    I haven't had any cramps or other pains as yet (or bleeding).

    I've cancelled my work travel and will work from home after today until I have a clear answer so that I'm close to hospital.

    Thanks in advance for any information.
    I'm so, so sorry you are going through this. It really is awful. I had an ectopic at 7 weeks. Initially had methotrexate and ruptured 2 days later - then hand emergency surgery.

    To answer your questions-

    1. What was your recovery like?

    A little slow, the first couple of days were pretty sore and emotionally hard. And I was so, so tired. I did manage on not too strong pain killers though. I had four incision sites. I could not sleep laying down for almost 4 or 5 nights.

    2. How long did you have off before going back to work

    Initially 2 weeks. I wish I had taken another week as I really needed it but my boss wanted me back. I ended up going back a week and taking another 4 weeks off (other issues with work lead to that in part)

    3. How long was your surgery and was it complicated?

    I think it was about 3 hours from going in to waking up. I think the actual surgery was not too long.


    4. How far away from hospital were you if tube ruptured

    It took us about 20 - 25 mins to get from our house to either hospital in town. I was at hospital having a blood test while it was rupturing:

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    Jholla  (21-04-2016)

  15. #20
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    Quote Originally Posted by lulupetal View Post
    Hi Jholia,

    Sorry you are going through this. I had an ectopic two years ago, I opted for surgery as I wanted the certainty that it was over which they couldn't guarantee with methotrexate. I didn't rupture, but had surgery at 6 weeks as they couldn't locate the pregnancy even though my uterine lining was thickened indicating a pregnancy. My HCG continued to go up but rather than double every 48 hours it was doubling every 3-4 days; when I had surgery my levels were around 3000 but had only gone up from 2800 2 days prior. They ended up removing my tube, and the recovery was difficult for the first 4-5 days, but afterwards I was okay, the gas leaving my body was quite painful. The good news is I fell pregnant with my now 15 month old in my next cycle, another reason I didn't want methotrexate.

    Good luck xo
    Sorry you had to go through that.
    Sounds a bit like where I'm currently at (not being able to locate it). He's going to make the call to operate if he doesn't see anything on Friday and can't locate it anywhere else (assuming levels still rising and above 3600), which they were as of yesterday). I'd really love to hear a conclusive answer on Friday! Deep down I know the answer but still.

    Glad to hear you had a positive outcome the following cycle


 

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