Can't keep up with this discussion...
On Google. ..googling information is not the root of all evil. Even my DD'S paediatrician tells me to Google sometimes. Without Google I would not know half the stuff I do about my daughter's syndrome. And flagged the info to her doctors.
5 years is a long time for a young child to suffer. His life is hospital. Doctors. Treatment.
It's heart breaking. I've been through such a tiny amount (with more to come and lots of unknowns) of surgeries anz treatments. Watching your child suffer. .with tubes and wires and not even being able to hold them is awful.
I'm not sure of the background of this family. .but I can understand why they may have made the decisions they have. no one can know this heartbreak unless you've walked in their shoes.
Stop judging from your own safe little world. We should be feeling compassion. I'm not saying I agree with their decision or disagree. .but they need compassion and care. .not judgements. They are losing their son. It's beyond imaginable. So awful.