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  1. #11
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    Quote Originally Posted by Sonja View Post
    @VicPark the facts as you state them aren't correct. He may not survive. He'll live for another 5 years and be very sick from chemo. They are choosing quality of life over quantity of years.
    .
    I don't recall anything from the 60 minutes story or anything I've read online which has said the poor child will survive for 5 years and then likely pass away? I thought the 5 year mark was just a benchmark chosen by which to measure statistical chances of survival by. Happy to stand corrected though.

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  3. #12
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    I didn't see the 60 minutes story, but I read about this today. From what I understood there's a 50% chance he'll live for 5 years and will most definitely be severely brain damaged. That was in the Age newspaper, I will try to find a link.
    I don't trust 60 minutes as far as I could throw the whole cast and crew. They are currently facing possible legal action over their actions in Lebanon. Gutter journalism at its worst.

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  5. #13
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    To my knowledge the judge based his decision on the fact that we won't know if there will be advances in treatment...not because he thought the boy might have a chance of living a long, healthy life with his tumor and treatments currently available.
    I'm not saying I'd make the same choice as these parents, I don't know what I'd do. I'm not angry at them, though. It upsets me that they would have made the hardest decision of their life, and then are being forced in to doing something to their son they didn't want to in his final months/years.
    And thanks, VP. Not my first friend to fight a brain tumor. My other friend was given a 30% chance of living for another 5 years. She had all the treatment and made it three years.
    I don't think anyone has the right to pass judgement on these parents when they don't know all the facts (I'm not saying I do, I don't...but I'm not judging them either). The publicity and judgement is the absolute last thing they need right now.

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  7. #14
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    Default 60 minutes: court order treatment for child

    ImageUploadedByThe Bub Hub1460288380.666363.jpg

    The article is not on the website, but this is from the Saturday paper. Sorry it's probably hard to read.

    'doctors on December 1 diagnosed Oshin with medulloblastoma, a condition from which most survivors suffer lifelong, radiation-induced brain damage- if they survive'

    'Doctors at first told them that prescribed chemotherapy and radiotherapy would give Oshin about a 50 per cent chance of surviving another 5 years. After discussion... Oshin was estimated to have a 10-30 per cent chance of surviving that time frame'
    Last edited by FearlessLeader; 10-04-2016 at 21:43.

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    Default 60 minutes: court order treatment for child

    I don't know, I can't imagine being in this position.

    Part of me is glad the court has ordered treatment, art if me is saddened that the boy has to go. through this.

    As a parent and an outsider looking in I don't think I could withhold treatment - I wouldn't be prepared to say goodbye without a massive fight, would we always wonder if we had tried would something, anything be different.

    But by the same token I see why they don't want to put him through it.

    But does the child truly understand the implications - yes my DD at 6 understands death is that you're not coming back but it's one thing to say they understand but do they truly, what happens if the boy changes his mind and it's too late.

    As adults we fully understand the consequences of stopping or not even starting treatment, but can a 6yo really comprehend that, and can parents facing one of the most devastating things a family can face really make that decision.

    I don't know, my heart goes out to anyone who's been in this situation.

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    Quote Originally Posted by FearlessLeader View Post
    I didn't see the 60 minutes story, but I read about this today. From what I understood there's a 50% chance he'll live for 5 years and will most definitely be severely brain damaged. That was in the Age newspaper, I will try to find a link.
    .
    Please do. Anything I've read/seen this far has not mentioned severe brain damage being a certainty.

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    Default 60 minutes: court order treatment for child

    Quote Originally Posted by FearlessLeader View Post
    Attachment 80184


    'Doctors at first told them that prescribed chemotherapy and radiotherapy would give Oshin about a 50 per cent chance of surviving another 5 years. After discussion... Oshin was estimated to have a 10-30 per cent chance of surviving that time frame'
    From what I understood from the story the stats dropped as the parents refused chemo/radiation in the crucial first weeks/month after surgery.

    50% stats was with chemo and radiation. 30% was just with chemo.

  12. #18
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    Quote Originally Posted by VicPark View Post
    From what I understood from the story the stats dropped as the parents refused chemo/radiation in the crucial first weeks/month after surgery.
    But it's still only a 50% chance of living another 5 years, most likely becoming severely brain damaged in the process, and living that whole time with the horrific reality of constant chemo and radiation therapy. If they were my own odds, I would choose palliative care. I think it's absolutely horrific that this poor family can't make the choice not to have their little boy spared from that fate- EVEN if there's a tiny chance that there could be developments in treatments in the next five years. And to top that off, they can now not grieve in peace because they have every armchair commentator calling them horrible names all over the internet because of this story. It makes my blood boil. If you don't agree with what they've chosen you should keep your mouth shut. Their baby boy is dying. Definitely dying. How would you feel if there were people all over Australia making awful comments about you if one of your DS's was facing terminal cancer? As if they don't have enough on their plate.

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  14. #19
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    Default 60 minutes: court order treatment for child

    Quote Originally Posted by FearlessLeader View Post
    But it's still only a 50% chance of living another 5 years, most likely becoming severely brain damaged in the process, and living that whole time with the horrific reality of constant chemo and radiation therapy. If they were my own odds, I would choose palliative care. .
    Die within a month .... or 50% chance of living for at least another 5 years. I haven't read anything to suggest the poor child will likely have severe brain damage. I honestly don't understand how this is even a choice that is open for debate.
    Last edited by VicPark; 11-04-2016 at 05:31.

  15. #20
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    VP read the article I posted.
    I think your comments are in really poor taste.

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