What a tragic thing to have to go through. I can't comment on their particular case but if it was my son, I would get him whatever treatment was advised. I would try to get a 2nd, 3rd, 4th opinion and then go with whatever gave him the best chance of survival. Even if that meant permanent brain damage. Being brain damaged doesn't forfeit your right to live. And there could even be a cure for that in the future, who knows? I just could never let go of my boy, even if it meant years of hospitals, doctors and treatments. But that's just me.