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  1. #831
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    Achievements:Topaz Star - 500 posts
    @PING383 you should follow this thread..

  2. #832
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    Cuddlybear I plan to try for natural conception. I have no trouble falling pregnant though. I have trouble staying pregnant.
    I am flying to Sydney tomorrow and will discuss with Prof M that is he okay with natural cycles so I can feed it back here if you like?

  3. #833
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    Well hello there ladies

    I never thought I would be joining this thread. After 1 silent miscarriage at 8 weeks i thought i would see Dr M just in case and didnt think I would get any new things to put on my long list of medical conditions. Oh how wrong I was about that hope.

    So today I got results that I have the MTHFR gene mutuation..I'm not surprised about that after doing some research this evening as I have spina bifida and I guess i inherited the mutation from my mum. I also have high NK Cells.

    So Dr M has put me on Clexane and Prednisone.

    My question to you lovely ladies is what side effects did you get while on these meds?????

    As mentioned I already have Spina Bifida and scoliosis (it says to inform your doc or pharmacist if you have a spinal deformity and plan on taking clexane but Dr M never mentioned this)
    I also have anxiety and a heart condition called Ventricular Tacchychardia and I read Prednisone can cause anxiety etc but also fast, irregular heartbeat and pulse sooooo don't know what to do. Will be calling my cardiologist to discuss.

    Thanks for any stories or advice about side effects girls

  4. #834
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    Welcome @Evelynmoo

    I only had severe bloating from the pred and coming off it had steriod withdrawals

    Also ate heaps more haha

    All normal side effects

    Nothing that wasn't manageable

  5. The Following User Says Thank You to Velvet16 For This Useful Post:

    Evelynmoo  (20-08-2016)

  6. #835
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    Quote Originally Posted by pingc383 View Post
    Hello everyone! I've been doing IVF now for 6 months. My FS did some tests, which I only just came across because I requested a copy of my file.

    I am homo (a1298c) MTHFR.

    I found out today have:

    1. anti-nuclear antibodies (ANA) with a speckled pattern 1:80 titre; and

    2. I have 50 u/ml of anti-thyroglobulin Abs (Immulite), normal is <41.

    I don't really have any symptoms, but my embryos don't seem to be getting me a BFP.

    I'm not sure whether you were all tested for these things first before they went on to do the NK cell test? Please let me know. I tried to ring Prof M today, but got an answering machine.

    My FS doesn't think there's anything wrong with me and she doesn't believe in NK cells.
    Yep tested for me all normal

    Ivf still didn't work

    I personally would pay to have all the tests to know i was giving ivf the best chance

    Otherwise so much emotional energy and money wasted

  7. #836
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    I really don't understand this NK stuff. Ive looked at my results and they really dont seem high or elevated.

    Cd 19- 13%
    Cd 3- 75%
    Cd4- 54
    Cd8- 19
    Cd3-/cd16+cd56+ nk cells-12%
    Cd3-/cd16+nk cells- 11%
    Cd3-/cd56+nk cells- 10%
    Cd3+/cd16- <1
    Cd3+/cd56- <1
    Cd57- 6%
    Cd57/cd8- 1%

  8. #837
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    @pingc383
    Hi luv, def book in with Dr M, keep trying his office - they are old school and hard to get into.
    I also have an mthfr mutation. Are you taking the methylated form of folic acid - there's some good websites on mthfr and pregnancy, totally worth looking at as you are homo for that mutation (one inherited from both parents so can reduce your methylation.

    I don't know much about ANA. You also mentioned thyroid antibodies. yes you must get this addressed and it can be addressed! Naturopath who specializes in hormonal (endocrine) system should be able to help. I'm assuming you know TSH and rT3 etc... Where abouts do you live? I don't have a great naturopath although I've seen a few. I've got a recommendation for another I will see soon.

  9. #838
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    @pingc383

    I have mthfr and now pregnant.

    I changed from commerical pregnancy supplement to very basic

    500 of folate
    B6
    B12

    Which is what is reccomended.. fell pregnant 3 months after switching

    I dont know if it made any difference at all

    Doctor M also suggested this combo

    Mthfr support australia i thought were twats just from an email to dicuss a consult lol

  10. #839
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    I brought solgar folate from iherb

    I believe 500mg is the max you should take

    400-500mg is ideal you body will excrete what it doesnt need but it also doesnt like to much.

    I just took over the counter aussie brands of b6 and b12.

    Ill take photos of my bottles

    I moved back to a commerical pregnancy vitmain at 11weeks (blackmores)

    On dr m reccomendtion i am now 33 weeks and still jist on asprin due to mthfr will ween off at 36 weeks gestation

  11. #840
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    Quote Originally Posted by pingc383 View Post
    @Velvet16 - you don't take the absorbable form of folate and vitamin B. It sounds like you only have heterozygous mthfr, yes?
    I dont think so
    But ill have a look up my test results as my brain is broken lol


 

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